Hi, I'm 16 years old and suffering from what I've been told is medullar sponge kidney disease. I have been to countless doctors, including the mayo clinic
in Jacksonville, Florida, Children's hospital in St. Louis, and many local hospitals. Every doctor that I've seen has thrown around many ideas of what my disease "could" be, but none of them have ever actually diagnosed me. It started out as a kidney stone two years ago, had gotten better on and off for the past two years.