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This neuro said that he feels Mayo has little to offer for MS - he said they are very good with Parkinson's disease but are definitely not leaders when it come to Multiple Sclerosis.
We have heard very few success stories here. Most come away feeling that they have wasted time and money. Even if your insurance covers the medical part you still have the expense of traveling and staying for several days.
The best of the Mayo satellite sites seems to be the one in Florida.
But for day to day treatment, I see a local neurologist who can confer with the Mayo doc as she sees fit. Then I will go to the Mayo and see them about 1x year if everything is going smoothly. It is a lot of money to travel, what about Vanderbilt in TN, wouldn't that be closer? They are excellent as well I hear. Good luck!!
It will tell if you have any irregularities with your heart. Remember that heart disease is the number one killer of both men and women in the U.S. It is always best to find and treat it in its early stages.
Shortness of breath is not a symptoms of liver disease until someone develops advanced End Stage Liver Disease (ESLD). This occurs when the liver is no longer able to perform its functions. Fatigue become extreme and a person hardly has the energy to walk.
I have pretty strong history of heart disease on my mom's side but nothing tricky. And mostly due to diabetes and hypertension. I am not diabetic nor do I have high blood pressure. Well, I used to always be in the 65/105 area and now I am in 120ish/80ish. Not high per se, but higher for me.
I have an appointment at the Mayo Clinic on Feb. 16. I am hoping to find some help there as I am feeling worse and worse.
I have read NUMEROUS posts/questions from readers re:fifth's disease, AKA human parvovirus B19. All the doctors keep responding that the symptoms "don't sound like fifths disease" BUT THEY DO!! Or at least a result of it! IT HAS BEEN WELL KNOWN FOR YEARS that fifth's disease can lead to arthralgias, and autoimmune (hashimotos, myocardidtis, uveitis to mane a couple) and the whole host of symptoms that go along with them.
Hospitalized for 2 weeks, could not walk, talk, seizure type symptoms. I have elevated liver enzymes, slightly enlarged liver and spleen, fluid around my heart. I have rashes that come and go. Suffer from extreme fatique and neurological problems as well. I have been to 15 doctors and still have not answer. I am on a waiting a list for the Mayo Clinic, but that could take months. I turn jaundice, have Reynauds syndrome, and ITP.
Shortness of breath (dyspnea) when you exert yourself or when you lie down: Considering that I don't work out often, I don't think I get overly "winded" when I overexert.
Fatigue and weakness: This is extremely common for me--however, it's also a primary Lyme disease symptom.
A GP, Internist,Rheumatologist,heart specialists, eye doctors,and a foot doctor.
The Rheumatologist called my symptoms an "Atypical Connective Tisue Disorder". But the treatments and drugs he prescribed have not taken away the numbness and pain.
I am weary of this search for relief...is the Mayo Clinic the place to go????
I have alot of the same symptoms as you. I just recently started to take Prozac again about 3-4 weeks ago, it has made all those strange feelings worse than ever. So maybe my problem is anxiety because they say sometimes when you first start taking AD your anxiety gets worse during the first few weeks of treatment, and mine definently has for sure. What is your next step with your problems?
It may be worth you looking into lyme disease, especially with the array of symptoms that you are having. I have read that Post-Viral Syndromes can sometimes take up to 2 years of recovery time. Whatever this is, I hope we find the answers before this turns into something worse.
Take care and keep fighting.
What is known about GAVE disease and the prognosis? I am scheduled for a blood transfusion tomorrow, (my HGB is 8.7 & HCT is 27.3) and iron infusion the following day. If anyone has answers please let me know what you have learned. I was diagnosed with what they believe is GAVE disease after double balloon scope. Numbers are dropping and I'm scared! What kind of side effects go along with the infusion therapy? Any info will be appreciated.
Have any of you had problems with Liver disease?
I need to stop taking vic's, I feel like something is going to
happen to me, like I will die in my sleep, or cause my liver irrepairable damage.
Have any of you felt anything similar?
If you have a more complex disease, go to a university where you are more likely to find better talent because the average mayo doctor doesnt have that great of resume since they just cover up their mistakes. I got a professor when I swiched from Mayo to the U of M and much more intelligent answers. Plus my MD had 2 DUIs at mayo who screwed up my care.
The test result information you provide, if valid, effectively rules out the common causes of such acute symptoms, such as classical pulmonary embolic disease and coronary artery disease with acute heart failure and raises the possibility of uncommon disorders.
One caveat is that in a circumstance such as this, tests that may ultimately provide a diagnosis (for example, heart catheterization, CT scanning of the lungs, echocardiograms) may be normal or marginally abnormal at the outset.
It also appears to be diagnosed through xrays and echos so this leads me to believe the acupuncturist was making an assumption that your pvcs were caused by and enlarged heart but not necessarily being able to know this for sure. It is likely your heart is fine if you don't have any other symptoms besides the pvcs but since you haven't had a work up on your heart since 2007 it might be worth getting a check up. Take care I am sure you are fine.
I tested positive for HyperAdrenergic POTS and my cardiologist is trying to help, but I am his only patient with this disease. I also have many other symptoms and my family doctor thinks that my adrenal glands are the big culprit. But, how do you know when your symptoms are serious and can I have a heart attack brought on by the POTS.
I have had 3 surgeries to my neck and am fused c3-c7. right now i have severe disc degeneration of t5-t10. my symptoms are severe chest pain. it mimmicks an MI. my docs tell me the surgery is too high risk for paralysis and want me to exhaust all pain med options before surgery consideration. i'm currently taking fentanyl and oxycodone so i can continue to work. I'm a healthcare worker.
I agree with Julie....lymenet offers lots of people who can help with your questions.
I ca offer this:
is your doctor a member of ILADS? ilads.org
ILADS is a group of doctors who treat lyme disease and the co-infections that go along with this illness. This group DOES NOT follow the restrictive IDSA guidelines. Lyme Literate Doctors or LLMD's treat based on symptoms along with test results.
If you have no history of depression it seems likely to me there is some physiological reason for the symptoms you describe. I would suggest another more proactive step, and that is to go to a diagnostic clinic like Mayo, Cleveland, or a university hospital where you can be evaluated by a team of specialists. If you are not making progress in your health, then your doctor treating you now should be very willing to make a referral. If not, do it on your own.
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