Graves disease young children
Common Questions and Answers about Graves disease young children
graves-disease
My daughter was diagnosed with Graves on June 4th. She is 6. Luckily, I'm a teacher and have been able to stay at home with her the past couple of months to get this under control. I feel like our lives have been turned upside down. We started out with a sore throat and a diagnosis from an ENT of Thyroiditis......We ended up seeing a pediatric endocrinologist in an emergency visit because of her heart rate. We've been on methimazole since.
In young children (0 – 3 years), weak muscle movement, spasms, or twitches can be overlooked by doctors who are unfamiliar with special needs children. Movement disorders in young children can be caused by a number of factors, but it is important for the parents to keep watch and consult with the child’s doctor. If you suspect your child may have one of these or if you are curious please visit our website/blog for more information: http://www.cpfamilynetwork.
I am very concerned for her and have talked to a friend who is an MD and they said without a doubt it is Graves disease. This MD has not met her, though says she needs to see a doctor asap! She also mentioned to me that she should not be caring for young children as the episodes I described to her demonstrated her emotional state. My question is...can someone tell (as this doctor has) without a doubt with a list of physical symptoms that she does indeed have graves?
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
I am 27 years old ... have had thyroid problems since pregnant with my daughter almost two years ago! they were watching my thyroid levels prior to that pregnancy though. They say that I have hypothyroidism (thyroid don't work) buut I also have antibodies for graves disease ... although my thyroid jumps from hypo to hyper frequantly ... my question is will I ALWAYS have the antibodies for Graves disease? Makes it possible to get graves disease and most importantly ... is it heretitery?
Thyroid disease doesn't discriminate by age. While older people are often the ones who develop it, children are not immune. Thyroid disease tends to "run in families", which is a term used when a genetic connection is suspected, but unproven.
Have your daughter's FREE T3, FREE T4 and TSH tested to see where her thyroid hormones are at. You might also want to have thyroid antibodies, TSI (thyroid stimulating immunoglobulin) tested to see if she has Graves'.
I am a 16 girl who just found out she had Graves Disease this summer. I haven't met anyone else with Graves Disease and I don't know anyone else my age who has any sort of problem like that. Why did I get it so young?
My mother was diagnosed in her early 40s with graves disease and her thyroid was removed, around the same time she was diagnosed with stage 3-4 colon cancer. I'm aware there are connections between autoimmune diseases and thyroid and intestinal diseases/conditions. As I'm getting older I'm noticing I'm following in the same physiological footsteps my mother did before she was diagnosed.
7 of those children had Graves disease. 66 children had a positive ANA; 4 with Graves disease. Unfortunately the study does not list an ANA pattern for these 4 children. 20 of 93 children (21%) had another autoimmune disease. 3 of the 7 children (43%) with Graves disease had another autoimmune disease.
"The ANA pattern was homogeneous in 61/66 (92.4%), coarse/fine speckled in 4/66 (6%), and nucleolar in 2/66 (3%).
Similarly, sarcoidosis of the thyroid gland may develop in response to an established thyroid disorder including Graves’ disease, nodular goiter, and thyroid cancer. Patients with Graves’ disease may also have concomitant conditions of sarcoidosis affecting the lungs. Patients with systemic sarcoidosis may also develop sarcoid lesions in various organs including the thyroid gland.
I was diagnosed in April 2011 with Hashimoto's (the dx came after several different rounds of bloodwork, a thyroid ultrasound and the nuclear uptake scan.) I was prescribed synthroid and was told "we'd have to wait and see" how my symptoms responded to the meds. I would go for labwork every 6-8 weeks and each time, either I had to increase or decrease my synthroid dosage.
they told me if i was going to ave the radioactive drink u ave to stay away from the children (i ave 2 young children myself) for 3wks and there is no guarantee it will work the first time u mite ave to ave it few times
hope u get things sorted soon and get better i no how ufeel and how draining it can be with all the wry and stres xx
About a year ago, she was diagnosed with what appears to be Graves Disease due to her thyroid level tests. She was on Tapozole for a couple months, which did not work, so in November or December 2009 she switched to PTU. Her levels have been improving up to this point and the Endo has been lowering the PTU dosage amounts - she is now taking 25mg in the morning and 25mg at night most days but a couple days a week she takes 50mg in the morning and 50mg at night.
My daughter was diagnosed with Graves disease at 15. At first her whole face was swollen and her eyes were bulging. It took 2 months to diagnose her. She is on Tapezole, which brought the T3 and T4 to about normal. Her eyes are still bulging and she is in pain from severe dry eyes. Now they want to take out her Thyroid. Then do eye surgery. Does anyone know if a thyroidectomy would help the bulging eyes? Please help!
Graves is an autoimmune disease and unfortunately for life. Controlling whether they raise or suppress is key to beating the symptoms of the disease.
If you are on Levo now - your labs must be abnormal and now lean towards hypoT levels. You would feel like cr@p right now with the swinging patterns you have been on.
"Once Graves.... always Graves" is the saying here. But I am positive your endo or ???
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I think it unlikely that the Graves Disease will attack your body in another place once your thyroid is gone. My aunt had the Radioactive Iodine a few years ago and now has to take thyroxin every day because now she has no thyroid gland to make it. I guess my advice would be not to rush into it (which I guess you're not). Either way, the chances are both of us will have to take medication for the foreseeable future, perhaps forever.
s disease, then still not feeling well, and finally diagnosed with graves disease and vitamin D deficiency. Then came Graves eye disease, not severe and under control. So yes have levels checked, I had only TSH checked in Feb of last year, and it came back in normal range, when i had my physical my tsh was 0.00 so they tested T3 and T4 and they were not normal. Good luck, it is a slow process, and i get depressed about it often, it is not a disease with an easy cure, it is a long battle.
I have been going to an Endocrinologist for almost 1 year. He has done several ultrasounds showing that I have 5 tumors on my thyroid. I have a biopsy which showed they were benign. I recently had another ultrasound which showed one of the tumors had shrunk but another one appeared.
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