Graves disease treatment radioiodine
Common Questions and Answers about Graves disease treatment radioiodine
graves-disease
My daughter was diagnosed with Graves on June 4th. She is 6. Luckily, I'm a teacher and have been able to stay at home with her the past couple of months to get this under control. I feel like our lives have been turned upside down. We started out with a sore throat and a diagnosis from an ENT of Thyroiditis......We ended up seeing a pediatric endocrinologist in an emergency visit because of her heart rate. We've been on methimazole since.
I finnaly got in to the Endocrinologist i was told i have graves disease i was given the option to do pill therapy or I-131 i talk with both my sisters (both have graves) both did the pill therapy with no sucsess so i decided to do the radioiodine treatment will i have to do the iodine tretment again? i was given a very low dose both my sisters say thier dose was much higher. is it also normal to be put on Prednisone after the treatment?
Just got back radioiodine uptake tests. 4 hr 15.7%, 24 hr 42.7%. Both high. I understand there are many causes of an overactive thyroid. What tests can I take to find out what's causing it? E.g. too much or not enough of a vitamin or mineral.
I was diagnosed with Graves disease in 1997 and was treated with radioiodine treatment. I started developing symptoms of hyperthyroidism on my maintenace dose of Synthroid 200mcg. The other day I experienced severe dsypnea and after a trip to the ED, lab showed a TSH level of 0.0. My physician lowered it to 175mcg and said I could resume it the following day. He said the half-life was fairly short. Everything I can find suggests that the half-life may be long.
s Disease is an auto-immune disease that MAKES your thyroid the problem. The only treatment for the disease is to treat the thyroid.
It sounds like you were rushed into making a choice, which is too bad. Had you been given six months or a year to mull it over, you probably would have still chosen RAI over the other two choices.
I was diagnosed with Graves Disease approximately 10 years ago and have been treating it and dealing with it fairly well. I have even gone off maintenance meds (methimozole) was on very low dosage, did not respond well after a long time. Recently was put on PTU and it has been suggested that I do Radioactive Iodine Therapy or Thyroid Surgery even though I am responding to PTU positively. I am on 150 mg a day and it is said that might be lowered to 100mg/day.
72 and 3 years before it was 2.0. My mum has had an overactive thyroid and has now had radioiodine treatment and my older sister has an underactive thyroid. I have also been feeling generally unwell for about a month and have put weight on and very difficult in losing any. Is it likely to keep rising and develop into underactive thyroid? And is 4.51 enough to be feeling symptomatic even though it's in normal range?
47% which is hyperthyroid, thyroid lobes enlarged with homogeneous trapping of radioiodine. Also, no photopenic area noted. What does all this mean. However, all my blood work is normal. My endo. says my thyroid is working fine but still wants to do a FNA for a left nodule that measures 1.2cm. Should I be worried?
While there may not be anything to really worry about right now, I do think further testing is warranted, because nodules aren't real common on a completely "normal" thyroid.
Free T3 and Free T4 (not just T3 and T4 - there is a difference) should be tested every time a TSH is tested, though I know most doctors don't agree with that.
My mother has graves disease and went through the RAI. It caused her to have the Graves Eye Disease, and left her open to other autoimmune diseases. She has lupus now and really bad arthritis. I know we are two different people, but she is only 50 and just had a hip replacement. I dont want to end up like my mother. I have been trying everything to get as healthy as I can. I started running 6 months ago, but they made me stop because of my heart rate.
I got hyperthyroidism and have been taking PTU for 4 years. I move in California now and see the doctor. The Endocrinologist told me I got grave's and suggested a radioiodine therapy. Before that I need a thyroid uptake and scan test. The doctor repeatedly told me I need to stop using PTU for 4 weeks before the scan test. However, when I make an appointment with the scan test lab, the guy told me I just need to stop using PTU for 3 days. I am confused and called back to the Doc.
Anywho, I was wondering if anyone has done the RAI treatment too? I just took the radioiodine last Thursday and started taking the Methimazole again on Saturday. But, I still feel kinda crappy, tired and such. I was wondering how long it took people to start feeling better again???
You have overt, not subclinical hyperthyroidism (ie high T3) due to Graves disease. This needs to be addressed before pregnancy and treatment with PTU is the most common choice. We try to keep the dose at a minimum - ie 50-200mg/day total dose in order to keep the T4 and T3 in the upper-normal range. The hyperthyroidism does decrease fertility. Often the PTU can be discontinued in the 2nd trimester, then after pregnancy is sometimes needs to be resumed due to a flare.
Once you have Graves' disease, you have it for life. Antibodies may go into remission, but they never go away completely. Symptoms will come and go if your antibodies go into remission.
Your endo will probably do a TSI test (thyroid stimulating immunoglobulin), which is the definitive test for Graves' and will confirm it. In addition, he should test your free T3 and free T4, which are the actual thyroid hormones and much more indicative of thyroid status than TSH.
now) was dx with Graves disease several years back and began Methmazole at that time. We went thru one round for a year when she was taken off. Within 8 mos she was back on the Methmazole. We have just finished another year and her Ped. Endo said her levels are not good, even on the Methmazole. She has been taking 1 10mg in the am and pm. She admitted that she may be missing up to two doses per week (probably on the weekend when she spends the night with friends). Our Dr.
s an autoimmune disease that unfortunately always plagues you in one shape or another even after the radiated iodine treatment. Since thyroid disease runs in my family, and I have borderline hyperthyroid tendencies, I always keep an eye on the thyroid board on MedHelp. The folks there are very knowledgeable. You may want to pop in there for some advice as well. Both diseases (FM and Graves symptoms overlap) Make sure you stop back in both places. Take care.
I was diagnosed with graves disease and had the radioactive treatment to destroy it a few years back. I have had a few times where I did not have my meds for a week at a time. Is it normal to feel so tired and cranky? Also I took Zirtec for my allergies and I felt like I was cloudy and just wanted to sleep and tightness in my chest..... I am currently on 137 mcg of Levothyroxine.
I will let you know .......I go for radioiodine on the 18th...
I am a 25 y/o female diagnosed with hyperthyroidism at 16 and later with Graves Disease and Goiter. I have been on Tapazol along with Atenelol (for the Tachacardia) off and on for the past 9 years with no results. Every doc I see wants to discuss nothing but RAI or surgery. My husband and I have been trying to conceive for a few years with no success. I finally found out that I was pregnant the beginning of last year and made it to 4 months and suffered a miscarriage for no apparent reason.
I got the lab work and the Uptake scan results. I am a little confused though because the lab work for Antibodies didn't have TSI listed unless I am reading it wrong:
Scintigraphic and laboratory findings are most consistent with a mild productive Thyrotoxicosis. Consider Hasitoxicosis given discordant normal thyroid trapping in conjunction with low radioiodine uptake values at 4 and 24 hours. Grave's disease is unlikely here, given the low radioiodine uptake values.
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