Graves disease pain
Common Questions and Answers about Graves disease pain
graves-disease
ve been having these severe migraines for over 2 months now, my eyes hurt terribly from all the pressure, im not sure if its the pressure in my nerves from all the spasms and intense pain and weakness im having in my limbs but im scared that its ocular migraines, i could not read properly with having bad pain in my head, i have graves disease but with my doctors appoinment yesterday at the endocrinologist the doc says im 'normal' when im everything but the muscle weakness is so sever i
Hello Mary,
Welcome to the Pain Management Forum. I am sorry to hear that on top of Chronic Pain you have also been DX with Graves Disease. You've asked a good question.
I have a close friend that has this condition. He has not noted any difference in the effectiveness of his medications. I have what's called "Dumping Syndrome" meaning that everything I ingest gets rapidly put through my system.
I am a 25 y/o female diagnosed with hyperthyroidism at 16 and later with Graves Disease and Goiter. I have been on Tapazol along with Atenelol (for the Tachacardia) off and on for the past 9 years with no results. Every doc I see wants to discuss nothing but RAI or surgery. My husband and I have been trying to conceive for a few years with no success. I finally found out that I was pregnant the beginning of last year and made it to 4 months and suffered a miscarriage for no apparent reason.
Hi, I am a 28 year old woman and was diagnosed with graves disease 3 years ago. I have commented o many forums regarding my problem but would like your advice. I was treated with radio active iodine in 2006 and then became hypothyroid, I now take 150mg of levothyroxine daily. I have never suffered from graves opthalmology as far as i'm aware.
For the last 6 months I have had a chronic daily headache. This started 3 days after purchasing new glasses.
iam apatient who suffers graves disease. My question is : Although I am almost 4 months on Carbamizole treatment 60 mg + Taking inderal ( propanalol), but the levels of my T4 & T3 are still high and the levels of TSH is less than 0.01.
what do you think , should i sstop the medication and think of the other allternatives like the radioactive iodine or surgical removal?
I really thought I was losing my mind, I have had this for about 4 yrs and just now was diagnosed with Graves disease. My Dr put me on Methimazole and after 3 weeks had a severe reaction and was covered head to toe with a horrible insanely itchy rash. Mr Endo told me I have a couple options radio active iodine or somthing else which he did not tell me what. My question is how has the radio active iodine worked for others?
I have been sitting here reading your stories and I feel your pain. I was diagnosed with Graves in October. Put on 10 mg x 3 of Methimazole, and 20 mg Propanol x 4. Since being on medication I have put on about 15 pounds, have a bloated belly, had jaw and tooth pain for the first couple of weeks on the meds, severe leg cramps, muscle pain in my shoulders, abnormally heavy periods (more frequent), and have been on edge and agitated to the point of driving away my family and boyfriend.
Graves is an autoimmune disease and unfortunately for life. Controlling whether they raise or suppress is key to beating the symptoms of the disease.
If you are on Levo now - your labs must be abnormal and now lean towards hypoT levels. You would feel like cr@p right now with the swinging patterns you have been on.
"Once Graves.... always Graves" is the saying here. But I am positive your endo or ???
I was diagnosed with Graves' Disease in 2001 and my symptoms were incredibe fatigue and pain all over that felt like my muscles and bones were being pulled apart. When put on the methimazole, the aches and fatigue stopped immediately. After 5 years, however of being on the methimazole, still could not control TSH for correct levels and has thyroid removed.
I have been going to an Endocrinologist for almost 1 year. He has done several ultrasounds showing that I have 5 tumors on my thyroid. I have a biopsy which showed they were benign. I recently had another ultrasound which showed one of the tumors had shrunk but another one appeared.
I was diagnosed with Graves disease 11 years ago. My endo prescribed Methimazole, which I was allergic to, so he told me he didn't want to prescribe me anything else because sometimes the allergy kills the thyroid. It apparently did, because all of a sudden I was hypo and I had to go on synthroid. Since then, I lost my health insurance and got handled by my PCP instead of the endo (cheaper).
Have you been tested for thyroid antibodies to make sure you do, in fact, have Graves disease and are not simply in a hyper phase of Hashimoto's? Both Graves and Hashimoto's are autoimmune.
While Graves is always connected with hyperthyroidism, Hashimoto's is most often connected with hypothyroidism, however it's not uncommon for one to have periods of hyperthyroidism in the beginning stages.
You should ask for thyroid antibody tests.
If you don't mind. I see you posts starts out as Graves Disease and you are looking for a surgeon?
While I would have to do some checking around on this can you post the reason for the removal? - Is it for Graves disease?
Has your doctor told you, you have Graves Disease? Yes, your TSH is extremely low and your FT4 is extremely high, indicating that you are hyper, but your antibody tests indicate Hashimoto's. TSI is the definitive test for Graves Disease and I don't see that listed.
Have you been put on antithyroid med?
Did I develop neutropenia from the Graves disease and how do I stop the neutropenia from getting worse? Also, what are some things that I should avoid as a result of my neutropenia? In addition, my heart rate ranges from 120-140 and I feel very tired and confused. Are these feelings a result of my heart rate? Thank you in advance.
I am glad I found this site, I found out today that I have graves disease, I also have a multinodular goiter and I had a thyroid scan and it showed a cold area, so I have to have a biopsy. I am so scared, I have never really been sick and now all of a sudden I get this. Has anyone had a biopsy on a nodule and how long does it take for the results to get back? Any help is greatly appreciated!
I've just been diagnosed with Graves' Disease. I have autoimmune thyroid disease that has changed from being primary Hashimoto's thyroiditis to Graves's Disease. I was diagnosed in 1997 with Fibromyalgia. I also have severe osteoarthritis, especially in both hands. What am I doing wrong? The doctor told me I'm a very strange case. What's that mean?
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