graves disease johns hopkins

Finally, sent to endocrinologist at Johns Hopkins who diagnosed me with Graves Disease and treated me six weeks ago with an RAI treatment. My TSH is going up (1.50 now) but my symptoms haven't changed, seem worse now. Anyone have RAI treatment that can give me hope that this is going to work ? It has been so hard but I focus on what I can do and not what I cannot do.

The best advice I can provide is that you and your doctors seek consultation with a group of physicians who have engaged in research and reported on their experience with this disease. One such group is at the Johns Hopkins Medical Center in Baltimore. Contact information follows. Orden, Roy Anthony. Timble, Hersha. Saini, Sarbjit S. Johns Hopkins Bayview Medical Center, Baltimore, Maryland., Division of Allergy and Clinical Immunology, Johns Hopkins School of Medicine, Baltimore, Maryland.

Mine was trained at Johns Hopkins, and I see you are from Baltimore, maybe you can find one there to help you and suggest some measures to give you relief while you wait to get your thyroid levels stabilized. Good luck to you.

Johns Hopkins-East Coast; Mayo Clinic-Central; Mayo Clinic-Scotsdale, AZ and University of Southern California-West Coast. Hope this helps you and you are able to get the answers you need and deserve. As I said, I completely understand. I have been in constant pain for 8 years and the pain is now so severed I have been unable to work for over 3 years.

Now I have a lot of endocrine disorders ostopenia, hashimoto, PCO, possibly hypercalcemia and those are the only ones that have been diagnosed. My doctor has told me I need to go to Johns Hopkins to see an endocrinologist since I have so mnay endocrine problems going on. My question is should I see a regular endocrinologist or a neurologist/endocrinologist. Is there possibly anything going on the requires me to see the specialities of both fields.

2011 and I got diagnosed with psudotumor cerebri. Does that disease effect the memory in any way possible? Anyone know? If so please, please, please let me know? I've been trying to get an answer no one's giving me an answer.

She has a history of dysautonomia and it is worse now. Any thoughts, and I want her to go to a MAJOR medical center for neurology... perhaps Johns Hopkins.

I would get a second opinion too...you can never be too careful with this disease! I actually sent my pathology slides to Johns Hopkins to be reviewed as well (I'm from Canada) and they did some tests that my doc's here wouldn't do. Are you able to maybe meet with a gyn/onc from there? I would think, since they have most of your info anyways, that would be the route to go.

not definitely benign, but 40% suspicious for malignancy. I want to avoid unnecessary surgery, so a sample was sent to John Hopkins university for another cytopathology. Result was one word: benign. However, my endocrinologist now says she is not comfortable with benign as the final word, although she has been supportive of my desire to avoid unnecessary surgery, a thyroidectomy primarily for diagnostic purposes.

http://www.hopkinsmedicine.org/healthlibrary/conditions/infectious_diseases/chickenpox_varicella_85,P00619/ Most people who have had chickenpox will be immune to the disease for the rest of their lives. However, the virus remains dormant in nerve tissue and may reactivate, resulting in herpes zoster (shingles) later in life. Very rarely, a second case of chickenpox does occur. Blood tests can confirm immunity to chickenpox in people who are unsure if they have had the disease.

She has to go to Johns Hopkins to have a lymph node removed and checked. shes really scared, not sure what to expect.

I guess I questioning myself, if I should have gone to someone else instead of sticking with the head EP at Hopkins. You like to think the Johns Hopkins has some of the best in their fields. Of course there is always that percentage that it just does not work on. Did you ever discuss actual surgery? Although they do not usually do that just for Afib. BTW, did you ever get tested for sleep apena? Apparently there is a correlation between the two. My test said I did not have sleep apnea.

Just recieved email from Johns Hopkins that i have an appointment on Nov.11 with Dr. Michael Lim. I want ALL dirt, details, good and bad dealings that anyone knows about Mr. Lim I wanna go in prepared. . . with so much on this Dr. its as if we are long lost pals...... so lets have it......dish.

I had some blood tests to rule out some endocrine disorders because of family history (Graves, Addisons, pituitary tumor, etc.). All came back ok. Holter monitor and echocardiogram showed mild mitral regurgitation and rare PAC. Neurologist, endocrinologist, and cardiologist have all said that they do not know what is causing my issues. My biggest complaints are the spasms, especially in neck, and the tremors. Any insight on how I should proceed or things to test for?

She only does about a dozen thyroid surgeries a year. I am now seeking treatment at Johns Hopkins Hospital ( about 3hrs drive). I have several appts. set up for 4-22. I will be seeing an Endo who is very well published and a thyroid specialist (not diabetes), having a neck ultrasound and meeting with an endocrine surgeon. There is the possibily of another biopsy but I have not yet heard a decision on that.

I am glad to hear you are getting some answers. I too am going through Johns Hopkins for my surgery in less than 2 weeks. From what I understand none of the doctors comnsider themselves "specialist" , they have "special interest". And to me it seems that they all work together as a whole to figure out what the problem could be and refer you to the doctor that best fits your problem.. I have been to countless NS's and I can honestly say, I love the doctors there.

I agree with Ess's opinion. Johns Hopkins does have a good reputation but it is a different experience for every one as each person has a different set of symptoms, etc. I say, if insurance would cover it, I'd go for another opinion, especially if you doubt your current doctor. Don't forget all your previous testing , etc as Ess said. Wishing you luck with your decision and your health.

When it comes to Lyme Disease, Johns Hopkins stands firm on the it exists controversy but there's nothing we can do. It's all over their Web site..even a special page dedicated to the controversy and where they stand. It's ironic though that on their twitter Q. and A. site, someone asked the question about a correlation between Lyme and RA. Their son's heart had been affected by Lyme disease and he was now developing RA and they wanted to know if Lyme caused RA. They said no.

Although she says she still has some hope I can tell after 33 years of being with her and 27 of those being married that she is slowly succumbing to the fact that she may not survive this. I started the ball rolling by calling johns Hopkins to review her current status and the history of this nightmare. At this point she has a hard time keeping food down unless she takes this pill to help empty her stomach.

So so sorry that you are going thru this....i think the red flags were thrown all over the field on this one my friend but the great news is that at least you see them and can do something about it.....John Hopkins from my understanding is one of the most progressive and best in the world so sounds like you are choosing well.....don't give up hope my friend...with medicine the way it is today your resolution may just be around the next turn....and thats horrible about the nurse googling.....

He said fibromylagia. Mind you my last neurologist did the same thing and told me to go to Johns Hopkins to get looked at further. So I think I wasted my time. I got a prescription for Savella so we'll see how it works. My only concern is the fact that no one up to this point has done an MRI of my brain. Should I wait it out with Savella or push to have them do the MRI and/or Spinal just to rule stuff out? I had a MRI of my spine last year and nothing showed up.

Graves disease johns hopkins

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