Fibromyalgia xolair
Common Questions and Answers about Fibromyalgia xolair
fibromyalgia
I just started Xolair 3 wks ago. My allergist feels it will help my moderate-severe asthma. I'm not so sure but want some relief! I haven't noticed a difference yet, although allergist said it could take 6-12 mos to have an effect. I have noticed a slight eczema-like rash on my arms, legs, and stomach which may be due to the Xolair (need to consult w/allergist).
Thanks for your comments. I've heard of aquagenic urticaria. Her urticaris chronic autoimmune, which basically means that her immume system is attacking the mast cells in her skin. Those are the ones that produce histamines so she produces way too many histamines, hence the red dots, hives and itching. I don't know her IgE levels but I'm guessing they're high if they're looking at 2 xolair shots per month.
These are delayed pressure hives and the outbreaks resolve and return with regularity depending on clothing, sitting on hard benches, wearing closely confining clothes and shoes, etc. We are now looking at a very expensive therapy, Xolair (Omalizumab) injections at $750 a pop. Before taking the plunge I am seeking personal experiences with this ************** for autoimmune urticaria so that we can make a more informed decision.
I have been using xolair for 2 years and it has been great as long as I receive the shots every 4 weeks. During the past 2 months I noticed small patches of hives the days before the shots are due. Now I am worried because I got my shots last week and I now have hives in the soles of my feet and palms. I am also taking zyrtec and syngular. Is it possible that at some point the mediction will stop working? Anyone with the same experience.?
After many allergy tests and rounds of prednizone, it was my allergy doctor who realized that I probable had high Ige levels....and blood work proved him right. I began my first series of Xolair with very high hopes. It worked great...but I rebound higher after each series. Normal levels are under 150...I started off with just slightly higher at 183. This was a couple years ago.
I have also contacted the researchers of Xolair, which was just approved last week by the FDA for CIU.i then contacted my allergist who thinks it's too much of a hassle, paperwork to get thru my insurance. I gave great insurance, married to a NY State Trooper. Today I just had a melt down and asked myself why she doesn't care. Then, I called a previous allergist and they are talking to a rep from Genetech, makers of Xolair about my case. Thank you so much for getting back to me.
I just ended up in an ambulance and the ER for the first time in my life with an acute attack of chronic idiopathic urticaria angiodema, due to my thyroid disease, Hashimoto's. The hives are inside my body, so it swells and inflames, shutting everything down, including my ability to breathe. I'm on my knees. Can't believe it. It flared up, because I've got a slight cold and scratchy throat.
I have adult asthma & have lived on Predisome for several yrs. My Dr. suggested Xolair. I'm really concerned about the side effects/cancer.
I have been suffering from dermatographia for the last 10 months. I have been on prednisone and 6 different anti histamines that barely help. I've went to 3 immunologist and a dermatologist and everyone tells me there isnt much they can do to find the cause of the problem. They seemed to get worse everytime after prednisone was prescribed. I've been on an anti inflammatory diet, keto diet,candida diet, leaky gut diet, alkaline diet, detox (Green juice) diet and those didnt work either.
Have you talked to your Doctor about Xolair injections? I started out with occasional Hives which I was able to deal with O.K...Then over the past few years they became more frequent and started lasting for days,then weeks at a time, robbing me of sleep and nearly drove me to insanity.My GP didn't seem to know what to do for me and from my point of view seemed apathetic about my condition.
If you have moderate to severe asthma, there is a treatment that binds with IgE keeping it from binding with receptors and triggering more allergic symptoms. That is Xolair, and it runs $1000 minimum a dose in the states. It has very high standards to get on it.
Are you taking any antihistimine? Have you considered allergy shots? You might also want to purchase a HEPA air filtration unit. Also, you might be better treated by an allergist since IgE mediator.
Ive even been on XOLAIR for 6 months, but stopped because i wasnt getting much relief from it. so im going back to antihistamines, but no matter which one i use, it knocks me out! l cant function. my doctor told me to take montelukast sodium with zyrtec. if i take these at night, will they still be as effective the next day? will i still be drowsy all day? Do you have any other ideas for me to use to combat my solar urticaria?
I went to the ER on 8/6/08 because of a severe headache that my specialist believed was a adverse reaction to Xolair. (It is a IgE blocker). At any rate the ER did a CT scan that came back abnormal. Since then my doctor ordered an MRI the following is the Impression:
1.Bilateral cerebal white matter signal hyperintensity, particularly within the centrum semioval, and pons. There is associated enhancement within the centum semiovale, more so on the right.
t work, I was started on the Xolair injections every 4 weeks (2 viles) which I am still currently taking.
I was able to taper off the Cetirizine, Singulair, and Zantac and now my hives are being controlled by the Xolair itself.
I constantly have a "sick" feeling. Everyday I feel sick and extremely fatigued. I was tested for autoimmune disorders, I believe Lupus and Vascultiis. Both were negative, even though at one point I had bruising all over my body.
My IGE level is 225, I want to know what that means as to severity. I have been on Xolair for one year, 300mg every two weeks, and I don't feel as if it has helped. I am considering stopping treatment due to no change. I am on Advair 500\50, Singulair 10mg, Spiriva, Claritin, Albuterol (both by nebulizer and fast inhaler) prednisone every month, for the last 2 years and I don't feel any better.
I have tried every anti-histiame and all steriods and all that have resulted is weight gain and tiredness. My doctor mentioned Xolair and from what I have been reading on the forums is that people within a Amercia have found the results amazing. The one problem with the injection is finding a doctor who whill do it and funding. Amercians seem to claim off insurance but I don't know what I can do here in the United Kingdom? Any thoughts?
We are seeing a new allergist/immunologist in Dallas, and he mentioned a treatment called Xolair, which is an IgE inhibitor; unfortunately, it is only approved for patients 12 years and older. It is an injection which is given either every 2 weeks or every 4 weeks. It has been proven to reduce the incidents of asthma exacerbations as well as decrease the eczema flares. You might speak to your doctor about it.
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