Fibromyalgia uk

Common Questions and Answers about Fibromyalgia uk


369533 tn?1207592062 went to see rhumo specialst and has diagnosed me with fibro/dercums dont think he realy knows need to go back in 6 months he whants to moniter my condition ,has anybody in the uk been succsesfull in claiming disability allowance for fibromyalgia,
Avatar f tn fibromyalgia. severe pain under left rib. I was cleaning my kitchen bin and felt a searing pain under mt left rib, at the side. I'm now bed bound, unable to move without screaming in pain. Pain meds, including morphine, don't help. I have slipped discs in my lower back as well. It hurts when I breath. What could be the cause of the extreme pain I'm in? Having slept on my right side last night, I now have extreme shoulder pain. I do have a memory foam mattress.
Avatar f tn Iam a mother with 2 young children and I was diagnosed with fibromyalgia 4 years ago. Since then I have been suffering with extreme pain that never lets up. I am curious if anyone else has ideas on which medicines work better for pain. I also suffer from depression and anxiety issues. I also have difficulty sleeping, I feel so alone, because neither my family or friends understand my problems. They think I do not really have medical problems. I appreciate if anyone replies!
Avatar n tn My mother who is 55 suffers from not only Fibromyalgia but she was diagnosed with MS just 8 months ago. I'm sure you're wondering why I haven't asked her, well she is VERY touchy and sensitive about these issues so I'd rather not ask her and upset her. Also I had to be seen over the weekend once at a Urgent Care center and the doctor was concerned that Fibro could be what was causing some of my issues and said I needed to do a lot of testing.
4861077 tn?1360159739 Hi all just a quick question I have just been diagnosed with fibromyalgia and live with pain everyday. I find it hard to do all my daily things to the point that it hurts to peel potatoes what kind of help can I get for this as it is all new to me. I take lots of medication and am still in pain please help.
1770280 tn?1314588560 I was diagnosed with Fibromyalgia Syndrome back in the mid 1990's and was given amitriptyline for it a few years later. I went on a vitamin and supplement regimen which kept the pain to a tolerable level for four or five years. Then I started with Elavil/amitrip for about five years before that wasn't working too well and I was placed on Effexor XR. NOT a good drug.
Avatar m tn Development of loss of use of limbs,movement memory,blindness,loss of speach,gate loss,inability to masticate,and bells pausey developed.I was referred to Atkinson Morley hospital in London in UK who carried out Abreaction,hypnotherapy,and specialist physiotherapy.In march 2008 I was reffered from Frimley Park in surrey to The National Hospital London UK for CBTtherapy as a rare serious case for further treatment.
5142668 tn?1364234345 For those that don't know it is a bleeding disorder. Not long after that I was diagnosed with Fibromyalgia. So here is my issue. With the von Willibrand I can not take anti-inflamitories. I have 4 children at home so I do not like taking certain pain meds. What kinds of things does everyone use to help with painful flare ups. I have a heating pad but that only does so much.
Avatar f tn Thank you so much for this link. I was diagnosed in 2000 with Fibromyalgia but suffered many years before being diagnosed. I was diagnosed with PTSD in 2003. I always thought the two were connected. The constant vigilance, insomnia, and muscle tension since I was about five has surely caused this condition. It was encouraging to see that studies are proving what I always suspected about why I have this debilitating condition.
806806 tn?1239516614 I've been diagnosed with Fibromyalgia, Chronic fatigue, adrenal fatigue and a pituitary microadenoma. Oh yea, depression too. I feel like **** at least 90% of my days. I get overwhelmed very easily, any stress to me can put me down for the day. Stress to me lately can be the phone ringing too much or traffic etc. Is there anyone with any advice on what to check or questions to ask. I'm wasting away.
Avatar f tn I have had Fibromyalgia for about a year and a half and now im starting to have some bladder issues. I have to go to the bathroom all the time but I can't go until its so full it feels like its going to burst. And it burns when I go to. I have had many bladder and uti infections before and I was just wondering if it is because of my fibromyalgia.
470168 tn?1237474845 Hi, I have recently been diagnosed with Fibromyalgia (after 25 years) and have a son diagnosed as on the autistic spectrum. I am noticing that he is getting pain in/around his shoulder joint usually lasting for 24 hours. I started with the same symptoms. Does anyone else have both these conditions within the family and especially anyone with autism and fibromyalgia. On a different topic, I have had alot of success recently using dietry intervention.
Avatar n tn Does anybody get numbness with their fibromyalgia? If so, please can you explain where you get it and how long it last for? Do you get any other symptoms with the numbness? The reason i ask is for the past week i have been experiencing some numbess in my arms and legs along with pinching type pains in my back and neck.
Avatar f tn com recently published results from a UK study that found that many fibromyalgia patients do have a vitamin D deficiency. I actually realized this before the study was published. I had been on a research protocol targeting the pathogens responsible for my immune dysfunction (lots of work and a few years) and everyone there had a low vitamin D level and higher vitamin D 1,25 hydroxy. If your vitamin 1,25 hydroxy gets too high... you are at risk for organ failure.
209591 tn?1267418314 My main symptoms are Migraines, elevated pulse (rarely under 110 to 115), burning pain in muscles, stiffness, swelling (worse after any infection), fatigue, malaise, depression, irritability, anxiousness, weakness, urinary retention, tingling sensations, major cramps and spasms, loss of sensation in a few areas of my body, chronic urinary tract infections, back pain, extreme fatigue in muscles and extremities, decreased memory, coordination, judgement and attention span, mouth ulcers, inabi
Avatar f tn Hi My doctor tells me I have fibromyalgia. I have so many of the symptoms eg pain in back,hips,thighs kness,neck.shoulders so on, burning,aching. numbness, itching, muscles weakness. poor sleep pattern. Symptoms are worse with stress, monthly cycle and activity. I also have eye pain and intraocular pressure of 26 in my left eye, and foot pain. I could continue. There is one thing which greatly puzzles me and this is that I have painful lumps in my fatty tissue.
Avatar f tn I would read the book ' The complete Idiot's guide to Fibromyalgia.' This book explains fibromyalgia and what I can only assume is a vast majority, if not all, of conflicting conditions and symptoms of other diseases. It has three pages listed of sypmtoms that you can check off if you have them, and then you can bring them to your doctor. You can also further read about conflicting conditions. Overall, the book is very helpful!
Avatar n tn I have had similar problems to your own and quite a fight with the medical profession in the UK where accepatable levels are lower than elsewhere (150-900 pg/ml). My b12 levels eventually became deficient as did my folate. The fact that my levels were always dropping was not thought important as I was within the acceptable lab levels and at that time I had no other hematological changes. I hope you get to the bottom of your problem. It would be nice to know how you get on.
215021 tn?1224886057 Stella - yes there is a lot of controversy here in the uk too as to whether 'Fibromyalgia' is in fact a 'disease' or a 'symptom'. (And some docs who think it is a state of mind!!!). When I was origianlly diagnosed as having FM, the Rheumatologist I saw did very specific examination of me and used various pressure points etc to establish that as he said I was 'typical' of Fibro patient. I have since done some reading and the pain points he singled out are particular to Fibro pain.
662361 tn?1225338107 I went to see the Rheumatologist that my insurance referred me to and it turns out she's not board certified but she did go through my list of symptoms and history and did confirm (after an extensive discussion and checking pressure points) that I have Fibromyalgia. She recommended Physical therapy and Anti-depressants to start with but I quickly declined the anti-depressants as I'm still nursing my daughter.
Avatar n tn com/ where patients review doctors, maybe there's a better one in your area. I live in Ottawa, Ontario, Canada, so I'm not familiar with US or UK doctors. Take care and I'm sure you'll get an answer from a doctor eventually ... I've learned with FM that one needs to keep pushing. For now, I would try and not worry about having an autoimmune disorder or FM until you've ruled out everything else.
Avatar m tn Hi there-I have RA/Fibromyalgia and my new DR. has put me on Methadone for the last 30 days- 2weeks 15mg then up to 20mg second 15days. And now I am realizing this is bigger than me in the physical addiction/w drawals senario. I was resistant n bitched ect. but he still gave me no other options of information about this drug. So wanting temp relief I did it. I have b4 been on 30mg/day of percocets for 2yrs. n had little problems getting off physically, mentally-none.
Avatar f tn so far i have been told i have costochondritis, gasrto osophageal spasms and possible fibromyalgia and M.E i had a 5 min neuro exam which apparently was normal, my heart is fine i have pernicious anaemia which is controlled. sorry this is so detailed but please could you HELP im so fed up and need to get to bottom of things as i am a single mum of 2 boys and some days struggle physically to look after them.
551343 tn?1506834118 OK I get really confused about the pain found in MS, some neurologist still say there is no PAIN in MS, then on the news in the UK there is this lady who went to court about assisted suicide as she wants to be able to go to Switzerland for assisted suicide and not have her husband arrested, WHEN THE PAIN of her PPMS gets too much for her to bear. Then there is the pain in Fibromyaligia and M.E. When I talk to people who have FM & M.
757597 tn?1315805412 Today is one of those days when I feel like I need to get off the Fibromyalgia Rolla Coaster.....It seems like it never ends. It's one thing after another. I now feel pain in my right foot that has Morton's neuroma and extra swelling on the left side of my collar bone. It makes it diffcult to turn my head to the left . It's raining outside so you know what that friend stiffness even more....Grrr....I just want my old life back.....
741515 tn?1262540739 It is so difficult to find good doctors. When you have fibromyalgia there are not enough specialists. It is a controversial problem as a lot of people ith fibro cannot work and the doctors find it complicated and sometimes do not want to get involved. Since I have had fibro all the doctors I had gone to like it when a patient comes in and then goes right out. Glad that you have found help concerning your family and you.
975514 tn?1325001538 section_id=27670#sec_27670 I urge you to introduce yourself below and tell us a little about what brought you to the Fibromyalgia/CFS Forum. Again, welcome to MedHelp and the Fibromyalgia/CFS forum!
Avatar m tn I was having major fatigue symptoms and have had all the points checked for fibromyalgia with accuracy... If what you had was rheumatoid then I would say that trying what I've tried (going on a mostly vegan diet and eating more raw foods) would help (there is a research article on PubMed verifying the efficacy of this) because it has helped me with a lot of my pains... Um, I have a good friend with Hepatitis and she has a lot of fatigue due to her liver having major issues...
Avatar f tn I have been diagnosed with very low vitamin d, I have also read a great deal on forums and articles from across the world. The maximum the UK doctors are allowed to prescribe is IU 1600 per day of D3. I'm nearly 2 months into my 'recovery' if it can be called that! From what I've read the prescribed amount is nowhere near what is needed to get my levels up.
217229 tn?1192766004 right now -- not flying off the island just yet) - doesn't have a lot of knowledge about HCV, Fibromyalgia or Interferon TX --- connections. In trying to explain to him that I believe that the current pain I'm in is Fibro and I think that the TX I took may be the culprit --- I get a glassy eyed "sure hon" look. Here, take these pills --- call me in a week if you still feel uncomfortable. And he quotes that flu like symptoms and the other "MILD" symptoms should now be gone.