Fibromyalgia treatment nj

Common Questions and Answers about Fibromyalgia treatment nj

fibromyalgia

Avatar n tn I wouldn't know if I am more clumsy, because I haver always been clumsey. I don't think it is fibromyalgia because my pain has been different. What do you think? Thanks for your time. Your opinion would be greatly appreciated.
Avatar f tn My brother-in-law claims that there is no such thing as fibromyalgia and that the "disease" or "syndrome" was created by the drug manufacturers only AFTER they created the drug Lyrica. Do any of you have any credible evidence that this absurd statement is true??? I was recently diagnosed with FMS and am pained by his unwillingness to believe that this horrible syndrome is a valid, medically-accepted diagnosis.
Avatar m tn She has seen numerous MD's, eats salt, drinks alot, takes a beta blocker, also the steroid (I forget the name), sees a Neurologist, Endocrinologist, Cardiologist, and now we have tried an alternative medicine MD. Does anyone know a great POTS MD in either NJ or NYC? Does anyone ever go on permanent disability because of POTS? HELP!
1692704 tn?1307215380 I know that there are many factors that determine response to treatment. I am just starting to feel discouraged again. I see my doctor tomorrow and I assume she will increase my antibiotics and possible add another since I am tolerating what I am prescribed now. I guess I just need to hear that there is a light at the end of this dark tunnel. Thanks!
975514 tn?1325001538 section_id=27670#sec_27670 I urge you to introduce yourself below and tell us a little about what brought you to the Fibromyalgia/CFS Forum. Again, welcome to MedHelp and the Fibromyalgia/CFS forum!
748543 tn?1463449675 For the past few weeks I have been throwing around ideas as to the best way to respond to this matter. You see a recent article ( Feb.3 , 2009 NY times) titled "Best treatment for TMJ May be Nothing" nearly made me clench my jaw to pieces. While well written, I found that the author, Ms. Brody, relied heavily on out dated and narrow perspective supplied to her by a small group of dentists.
Avatar f tn Please do not accept easily doctors opinions, as this is a huge challenge for them as well, for dx and treatment. Fibromyalgia is not one specific disease! It is a combination of serious and varying symptoms, from a long list of symptoms. That is why it is classified as a syndrome. Make sure you look into pathogenic mycoplasma infections as well. 99% of fibro cases have this as an infection or co-infection. Take care.
Avatar f tn I went to a Muscul/Skeletal center, there I was diagnosed with reheumatoid arthritis, He also did other test and said I tested positive for Lupus , but because of the lack of other systems he didn't think I had that , also mild back flow of left heart valve. Treatment was a shot of cortisone in each hip and priscribed Meloxicam 1 day for 6 weeks this all helped a great deal.
Avatar f tn //www.medhelp.org/forums/Fibromyalgia/show/44 Very best to your sister!
483733 tn?1326802046 He says swelling is not due to Lyrica (it is clearly stated as a side effect) and he says as we continue treatment that my memory issues will go away. Want to believe him but doctors really don't understand Fibromyalgia. the Lupus seems to be under control. He wouldn't do my blood and urine tests as he didn't want me to get discouraged. Frustrating as I want to ensure with the swelling that all is OK in there.
329994 tn?1301666848 Here is a recent film from "Today Family" where Fibromyalgia and the National Fibromyalgia Assoc are the focus. http://www.youtube.com/watch?v=QFuX49RyDeU (highlight, right click ,copy and then paste to your browser) It shows what is being done in Washington DC. about opening up people's awareness to Fibromyalgia and CFS. It profiles the illnesses symptoms from physical to social difficulties. OH IT IS a very real illness, those that are skeptics should watch this clip.
Avatar n tn B or D- the doctors said non-AorB. I went to a GI doctor in central NJ and went on interferon after a biopsy that said i had mild inflammation and un-bridged fibrosis, also mild. 8mos. later the treatment was stopped because i did not respond. my enzymes either went up or stayed the same.
Avatar f tn I did so she helped me and my mother-in-law make an appointment in NJ. My QUESTION - should I drive the 10 hours to NJ to take this test? The dr said that if it was positive I would need to stay a while and that would mean being split from my husband (remember that we are newlyweds). He also said I should have a spinal tap. REALLY? Is that necessary?
Avatar f tn com/forums/lyme-disease-support-forums/general-support/1042931-need-a-good-lyme-doctor-in-or-close-to-florida It is stealthily handled when it comes to finding a Lymes dr. Treatment has become a controversial thing. This is due to insurance, treatment debates, and just plain docs covering their behinds because of the great misunderstanding of the disease by influential people. Again, watch the movie to better understand what I'm talking about.
596143 tn?1226651654 But he doesn't understant that it is more than just aching. So, I'm doing my own research and found out about Fibromyalgia, and the symptoms fit. When I found this site I was so excited to see people going thru the EXACT same thing I am. (I hate the pain you are feeling, but excited that I'm not crazy or dramatic-I've been called both when I talk about my pain I feel in my body) Anyways, just letting you know I've joined. And am interest to know everything about fibromyalgia.
Avatar f tn It's sad that things have to go this far and every day I have it that I dont get the proper treatment is another day its wreaking havoc in my system. Im sitting here as we speak with pins and needles in both feet! That says that its effecting my nervous system and I hear that it can cause irreversable damage if its not treated. Very frustrating but Ive come this far, so I guess im in it for the long haul! Thank you for your input. At this point, every little bit helps.
Avatar f tn Another incorrect diagnosis docs often make (instead of Lyme) is 'fibromyalgia' [which means 'painful muscle fibers' in Greek -- which is a good description of how some of us with Lyme feel], but a symptom like muscle pain is not an illness or infection. So, no, it's not uncommon for docs to tell a patient with Lyme that the patient has hypochondria (meaning an imaginary illness).
Avatar f tn In the US and Canada there is a political battle being waged about the treatment of Lymes. The basic treatment for it is long term antibiotics. One side of the war says first, there are HARDLY ANY CASES OF LYMES IN THE US AND the ones they do find do not have any medical proof of long term success of antibiotic use. There are issues that fall behind long term use of antibiotics such as potency for other disease in my opinion.
3065262 tn?1342126161 In the end, it was through my ILADS LLMD that I got treatment for chronic infection, which in turn cleared up my so-called fibromyalgia... Good luck as you decide how to navigate through your situation to better health.
758371 tn?1234202013 I am so sorry that you have been on lyme treatment for the last 3 years and yet the treatment seems to not be working. You are exactly right, your MRI sounds very non-specific and it doesn't seem to indicate demylinating lesions, which even if it did with lyme disease, this would simply not mean anything. I am not familiar with a doctor in your area. I live in Georgia and I am seeing a doctor in Georgia. There is a popular physician in SC that you mentioned and also a Dr.
Avatar f tn I have none of the tender spots seen with fibromyalgia. Extreme fatigue, muscle pain, and joint pain for the past dozen years or so. Brain fog, balance issues, and cognitive difficulties that have gotten much worse over the past year. Loads of other symptoms as well, all consistent with Lyme. I used to spend a LOT of time hiking, camping, and just generally outdoors. I was living in NJ when my symptoms first began.
158939 tn?1274918797 ), my Lyrica for the fibromyalgia, my sulfasalazine for the arthritis pain, put ice packs on my ankles, a heating pack on my neck, and try to sleep. :-( Hope someone else out there had a better day.
443136 tn?1210539925 Your list of symptoms is absolutely typical of EDS. There is hardly no need for further investigations. Treatment should be supervised by your doctor. There is a french specialist named Claude Hamonet in Paris who has published the list of symptoms on his website. I hope this will help you.
Avatar f tn Koretz, emeritus professor of clinical medicine at the University of California, Los Angeles. Dr. Koretz said there was no good evidence that treatment made a difference since many patients cured by the drugs might never have developed serious problems anyway. http://www.nytimes.com/2010/07/22/business/22hepatitis.
590968 tn?1226991167 Would eating a few percs have any adverse reaction with treatment. I took my shot Tuesday and can barely think my head feels like someone is sitting on it...As long as it isn't an everyday thing, can percocet/oxycodone be taken?
Avatar f tn I wanted to comment that I think the extra symptoms I acquired which pointed away from MS were a direct result of the steroid treatment. Steroids are often used to treat MS flares. But they are TERRIBLE for Lyme patients! The steroids surpress the iummune system, allowing the infection to get worse. I did feel better from the steroids in the short-term, because they relieved the inflammation and gave me a ton of energy.
662361 tn?1225338107 Several members of my HG boards have also recently been diagnosed with Fibromyalgia so I suspect (as do they) that our pregnancy conditions were likely a trigger. My physician keeps putting me off for a legitimate check. So far my Thyroid has been checked ("within normal range"), Lupus came back negative as well as various other tests that I'm unaware of what they mean. One thing that came back was a very low Vitamin D level - not sure what that means.
Avatar f tn I've been sick over 12 years misdiagnosed with Fibromyalgia when I had Lymes and several co-infections. Maybe now FM is part of my condition. Since treatment this March I've felt worse. It's been a helluva ride so far.
163305 tn?1333672171 Hepatitis Treatment Center, 20 Prospect St Hackensack NJ 07601 The best Doctor I have ever had. Lots of experience. She treats the entire patient, not just the disease. She is always available when you need her and is dedicated to getting you through your cure.
Avatar f tn I agree that the doctors need to look at the whole picture of your symptoms and it may be time to get to a new doctor and/or have a melt down in the office of one you are already seeing. I see you are in NJ. Can you get to one of the medical schools up there? I swear by them as they seem to be more open to researching ailments and have a built in network of specialists to refer you to.