Fibromyalgia treatment baltimore

Common Questions and Answers about Fibromyalgia treatment baltimore


Avatar f tn I am full blown with Fibromyalgia _ I was to John Hopkins Baltimore Md. for a 2nd opinion for Dercums Disease & it was confirmed there. Because I only have 25% of my heart left I am not allowed to take any prescriptions for pain - + I also had 2 very serious back surgeries neither 1 was successful - so I am also in constant pain from them.
748543 tn?1463449675 For the past few weeks I have been throwing around ideas as to the best way to respond to this matter. You see a recent article ( Feb.3 , 2009 NY times) titled "Best treatment for TMJ May be Nothing" nearly made me clench my jaw to pieces. While well written, I found that the author, Ms. Brody, relied heavily on out dated and narrow perspective supplied to her by a small group of dentists.
Avatar n tn I haven't seen an immunologist since I was a kid, I'm not even sure if I'm sick enough for treatment. Do you know of a forum where I can discuss this? I'd really appreciate any advice.
Avatar m tn Hi Mae, I know you asked about NJ/NY for a POTS specialist, but there is one in Johns Hopkins in Baltimore, MD named Dr. Peter Rowe. His treatment protocol is available online, including the salt/liquids that you mentioned, but also drugs like Florinef. However, I've ready elsewhere from a chronic fatigue doc (Dr. Paul Cheney) that Florinef can stop having therapeutic effects after 6 months so he advices against it. You mention your daughter tried alternative medicine.
1611319 tn?1378621999 This sounds like B.S. to me. I am a Registered Nurse for over 20 years in hospitals---never ever have heard of this crap. You apparently are from some planet that is different from the one I've been on for years. I would say you need to see psychiatrist to determine why you would encourage this kind of "treatment" in someone who obviously has health problems. I have been a respiratory patient myself for 62 years, mis-diagnosed with asthma for 61 1/2 yrs., instead of bronchiectasis.
Avatar f tn I let him do his assessment and he started to go towards occipiital neuralgia and a slight fibromyalgia. He agreed that I could have an MRI of my brain and cervical spine. I tried to insist upon an upright MRI, as I've read that is most helpful. But, he'd never heard of it and sort of poo-pooed it. I didn't want to press my luck, so I didn't insist any further. Will these MRIs be helpful? I know that upright can show the herniation, which could appear to disappear when supine.
Avatar n tn 640) and was diagnosed with CFIDS. http://www.fibromyalgia-symptoms.
620923 tn?1452919248 TCI told me I had the hypermobility type and am waiting to see the Dr in Baltimore....I need to pay off some bills b4 I make more..... It was great to know why I was bruising so easy and taking sooooo long to heal.
131817 tn?1209532911 The impact on my family, and my job, attitude problem Best thing about treatment: Finding out what a good man Bill1948 is, after 25 years, I guess I'll keep him!!
Avatar n tn Any advise on the disability claim, I know that some people have gotten it while on treatment but not for post treatment problems.
Avatar m tn This seems to be happening to you, and polypharmacy can be a real problem in the treatment of people like you who may have multiple, unrelated, conditions. Fibromyalgia and chronic pain may also be confounding your symptoms and causing pain.
147426 tn?1317269232 The doctor at the CC looked over my tests from 2000 and could see it this all started then. Treatment is working very well for me and I continue to improve. I have my life back. Had I not joined this forum 1 1/2 years ago, I might not have learned enough to know that a mimic might be the answer. Sorry this is kinda long.
Avatar f tn Have you ever heard of fibromyalgia? It can be hard to get a diagnosis when you have fibro, and it's confusing because the pain "moves" around. I have bad sleep issues with my fibro. I used to sleep 8 hours and it felt like I'd only slept 4 hours. My sleep test showed I did not have sleep apnea. I had a rheumatologist diagnose me but I also was given a real run-around. Not all rheumatologists are honest and fair or "believe" in fibro.
Avatar n tn I couldn't speak or anything. I was medi-vac'd to baltimore,given IV steroids,sent home w/ oral steroids, muscle relaxents & pain pills. I felt better after a couple weeks.From that point on, these episodes have acurred frequently. I also have severe stabbing/sharp chest pains and the cardiologist said not the heart, he thinks neuro.I have stabbing pains in my jaw and head that go into my eyes nearly daily. I have bad vertigo, my memory is going, and my coordination is getting worse.
217229 tn?1192766004 The mechanism of nerve involvement is thought to be MC-well-established related vasculitis of the small blood vessels that supply the nerves. There is no well-established treatment. Treatment with interferon, corticosteroids, or cyclophosphamide (cytoxan) has not shown any consistent results although some patients appear to respond to one or a combination of these drugs (5). KIDNEY MANIFESTATIONS The kidneys are also affected in some patients with hepatitis C.
Avatar m tn The MDs who believe the CDC/IDSA view on Lyme as being hard to get and easy to cure are believers in easy and inexpensive diagnosis and treatment. So ... how's that working out? If you don't like the '2d hand Lyme labs' (I assume you mean labs like IGeneX), then you have the right and privilege to go to an MD who doesn't use them. You might not like the diagnosis or the outcome, but hey, at least it was cheap.
220090 tn?1379170787 Many of us have talked about the lingering side effects of treatment. I think it would be useful for us to gather statistics on how many have lingering sx and how many don't. Some are mental and some are physical and that would also be useful. My lingering side effects are severe insomnia, memory loss and a mild case of psoriasis. If you select other, please leave a comment describing your experience. Thanks.
Avatar n tn Sorry if this has been asked before but what's everyone's opinion on the best place to live for fibromyalgia. The cold and damp make me hurt so I'm thinking a desert location. Anyone have an opinion on San Diego or Tuscon? thanks!
Avatar f tn I've had the orbital problems associated with the disease, and that has been the most incapacitating. besides being on methotrexate, my doc has suggested something like maybe restasis for the eyes. but I also get the formation of this film across my eyes which totally makes driving very difficult.
1797925 tn?1341099804 I am genotype 3a and my liver biopsy from Dec 2011 indicated Stage 2, Grade 3. I started 12 week treatment with sofosbuvir & GS-5816 (no interferon or ribavirin) on May 22nd, in a Phase 2 trial. My starting levels were VL: 6,500,000, AST 47, ALT 58.
181575 tn?1250202386 I am reposting articles / summaries on the treatment management of chronic HepB. "cajim" located these articles which are quite informative. I thought about putting them on a seaprate Health Page but didn't think it was appropriate since we didn't write them. Let's make this a sort of "Unofficial Research Thread" or "URT" for this type of information. Let's keep this URT free of comments.
147426 tn?1317269232 It is either pure arrogance such that if they don't know the answer then the patient must be weak-minded or it is a chauvinistic attitude toward women. This isn't just a rant about the treatment that women get, because we hear the same complaint from men. In addition to arrogance it is the product of a very mediocre and lazy mind. Afterall, once you blame the patient there is no need to think further.
Avatar n tn Thanks for your post. i've looked into this to sticky skin syndrome, will these symptoms seem simliar to mine. I have not taken any drugs that are known to been connected to the disorder ie ketoconazole and doxorubicin. My demratoligist prescribed ketoconazole cream and urea cream which seemed to have no effect it. the most recent plan of attack was Triamcinolone acetone. cream. to early to tell as to whether this is an effective treatment.
Avatar f tn thought of the worse like MS, fibromyalgia, or even Cancer of some kind. I saw another NP on 3/3/2011. She recommended I increase my Vit D to 4000IU daily for a month and see if it helps. She assured me symptoms really don't point to direct MS. We'll see. I'll keep you all posted. By the way, I'm a 29 year-old mom of 2 kids. One age 3 and one 8 months old. I'm from Wisconsin.
560501 tn?1383616340 Tomorrow we are signed up to take a couple of classes in Baltimore at the science center. I hope Nick will be able to go, but I'm not getting my hopes up. If not, I will take the little guy and since there is no school tomorrow (elections) my daughter will stay with Nick. It's hard knowing what to let him do and what to caution him against. Right now we are in the camp that if he wants to do it, let him, because so often he just doesn't feel like he can.
3229560 tn?1347041110 Also, scientists in Japan are probably the leaders in exploring Chronic active Epstein-Barr and have even had success helping people with bone marrow transplants. That kind of treatment is out of my price range. For now I try to find others like me and surround myself with as many understanding people as I can. There's nothing easy about it. And actually it's more like 95% of adults 40+ carry EBV. Unfortunately it's the healthy people who pass it on usually.
Avatar n tn Whether it be Hollywood, Florida, Baltimore or Alabama, our worlds are what we make of them. Happiness does not come easy, we took short cuts with drugs, and we learned that there truly are no short cuts in life. Work hard to make yourselves happy, and everything else will fall into place!
Avatar n tn Be sure to freshen up the Castor oil on the knee occasionally, more frequent early on in the treatment while always using the same flannel cloth. My wife just used a piece of her old flannel knightgown. My new Ortho. Specialist believes I have a mechanical problem with my knee joint and is planning on fixing it through arthroscopy. I hope the Castor oil, flannel and ace bandage help you all. God bless...
Avatar f tn it's like being waking up paralized and I can barely breathe but I look asleep. That sleep disorder I've had my whole life along with headaches, seeing spots/floaters, and the sleep thing that is NOT sleep Apnea. Can someone in my situation have just as severe and debilitating Chiari even though mine doesn't go as far down as it should for surgery? If so, would they they even do surgery if I wasn't past the 5mm?