Fibromyalgia support groups

Common Questions and Answers about Fibromyalgia support groups


Avatar n tn I have shied away from going to support groups for various reasons but am beginning to think now maybe one would be helpful. Thoughts? I feel like I am losing ground daily not only physically but also emotionally. I have applied for social security disability (something I said I would NEVER do) because my physician refuses to release me to go back to work. I just feel that I can no longer be the "strong" one.
672839 tn?1305796547 To me, there are two types of groups, 1) Support and 2) Self Help. Support Groups are places to go and feel safe. Lead by others with medical conditions like ours, opinions are shared by all, and comfort is widely given while tears flow. The discussions are personal and individualized making this the place to be when your chin is on the ground. Self-Help groups relieve a different pain. In this setting professionals teach you the steps necessary to better yourself and your position.
Monster Many patients with fibromyalgia feel that their joints are swollen, although there is no visible inflammation of the joints (arthritis). ### FIBROMYALGIA TESTS — There are no specific laboratory or imaging tests used to diagnose fibromyalgia. Thus, the diagnosis is typically based upon a thorough patient history, a complete physical examination, and blood tests, which are used to exclude conditions with similar symptoms.
1550149 tn?1340004330 They were surveyed to assess their response to pain and noise. Of the three groups, the fibromyalgia patients were least tolerant of and most attentive to such stimuli. A 2001 analysis of studies on fibromyalgia, however, found no strong support for the hypervigilance theory. Immune Abnormalities Fibromyalgia has some symptoms that resemble a number of rheumatic illnesses, including rheumatoid arthritis and lupus (systemic lupus erythematosus).
Avatar n tn Fortunately, there is a ton of information on the Web about this disease and a lot of support groups. If this, in fact, is what you have, you can get in touch with an organization called The Fibromyalgia Partnership. Just type it in and press "Go". It'll take you right to the sight.
Avatar f tn I have Fibromyalgia plus other diagnosed probs. Am joining a support group in my area where we all get together for a wee moan once a month but also a laugh n can offer support to others. You can learn a lot from these get togethers, no one judges you - as they all have some problems.
Avatar m tn Hi. I also have Fibromyalgia since 2005. Struggling to support myself financially since I can't do office work any longer. To sore on the arms. In the meantime I tried D-Ribose but be careful if you have low blood sugar as I do. D Ribose was helping until I got bad headaches. So again, I thought I found something and am too sensitive to its benefits. If you know of anything else that can help let me know.
Avatar f tn I have had several doctor friends (one a DO, an orthopidist and even the nuero I have seen) tell me that Fibromyalgia is not a diagnoses. Because there is no test that proves that that is what you have or even tells you what the cause is from. And that after that diagnoses is made other doctors will not treat pain as any thing other than that when it could be something, but they just tend not to look.
1178983 tn?1279667255 ) Otherwise, I know the National Fibromyalgia Association ( lists local support groups by state on their website and you could probably Google some other resources too. I hope this helps.
773755 tn?1328123377 i'm in the preliminary stage of getting some documents written on these matters, to present to support groups and medical bodies, to initiate change and improvement. cfs > VIRAL FATIGUE SYNDROME or POST-VIRAL EXHAUSTION this sort of thing.
7826278 tn?1395400980 What other support do you have in place? Does your fibermilagia inc depression? There are free support groups thru NAMI. It will help you to understand & be with others thru your ordeal. AA & NA. You may want to ask your DR to prescribe Clonidine. It's used off label to help with withdrawals. So it's going to be a body & a mind thing. What are your plans for a pain killer substitute. Indoor pool exercises, yoga. Meditation.
Avatar m tn Get to some Fibro support groups and get some good info there... I feel your pain! Good luck.
Avatar n tn The best thing for you to do is get on line and find a support group in your area for fibromyalgia and they will lead you to a good doctor in your area. If there is no group available, look for a rhuemetologist that handles fibro. Not all do. This disease (if you are diagnosed) can change your life and you need to get all the support you can find.
Avatar f tn I had called the pharmasist, did online reasearch and have had feedback from online support groups. Been on Cymbala for 4 weeks and aggitated, hostile, aggressive. My doctors nurse was not very pleasant. Stating i need to keep journal of medicine i am on because they had switched a couple. I cannot always feel that i can concentrate. I have been honest with doctors all along to the best of my ability. She has the records right there. yeshh. Isn't that what they are for?
Avatar f tn Hello. I am new to this group. Recently diagnosed at Mayo Clinic (after 3 visits during past 4 months) with Fibromyalgia, Central Sensitization Syndrome, Sjogren's Syndrome, Dysautonomia (Autonomic Dysfunction), Migraines and Joint Hypermobility Syndrome. Today, a local rheumatologist in South Florida said "I don't support disability for fibromyalgia." After I questioned this, she said "never, ever" not even when combined with the other diagnoses and symptoms.
136956 tn?1425609872 However, the reality is that this is a support forum and people at one time or another, are going to need support. Both fibromyalgia and CFS can make you disabled. In addition, both of these diseases aren't recognized by many people and there is no treatment. (although the MP may change all of that... there are many success stories) Therefore, most people who have CFS or fibro feel isolated. That is why we are all here... supporting one another.
Avatar f tn I have been in a Methadone program for over one year now and am struggling to get off of and manage to stay off of Methamphetamine. I also suffer from Fibromyalgia and Reflex Sympathetic Dystrophy ... I believe that between the chronic fatigue from the Thrombocytopenia and the chronic fatigue from the Fibromyalgia, that this plays a large role in the struggle we have both dealt with regarding Methamphetamine and using it to self medicate for energy, enthusiasm and motivation.
Avatar n tn In addition, there are community support groups available that you could also join like depression groups, etc. Information contained within The Forum is intended solely for general educational purposes. The information contained in this service is not intended nor implied to be a substitute for professional medical advice relative to your specific medical condition or question.
Avatar n tn Anxiety will only exacerbate both conditions. You should also ask your doctor or his staff if they can recommend support groups in your area. I had a bit of a heart issue last year and had to go to cardiac rehab for a few months. I didn't really want to go, but I did and I'm so grateful now. When you are around people fighting the same issues you are, it's amazing the sort of bonds you form. After a couple of weeks, these people were like family to me and I looked forward to each session.
736040 tn?1257440057 The pain radiates through my whole hand and up my arm. This is the second time this has happened. I also have Hashimotos, Hypothryroidism and Fibromyalgia.
509215 tn?1363539423 On top of everything, I have fibromyalgia myself, and am in moderte to severe pain almost all of the time. I don't even know too much about this disease. All I know is how much it really hurts! Maybe I'm complaining to much, or maybe I'm not, I don't know. All I know is that I really don't know where to turn next. Does anyone have any insight to any of this? It'd be much appreciated. Thanks.
Avatar f tn Your specific symptom is also called 'tactile allodynia', and you will find everything from info to support groups if you search using the term on the internet. There are several medications that can help; the sodium channel blockers, e.g. mexilitene or local anesthetics e.g. lidocaine in particular.
Avatar n tn The national FM orgs can help with those support groups. If you get stuck, the head of the CFS NJ support group moved to Texas, so I'm sure the NJ group can give you the contact for a Texas support group. (NJ is a particularly large and active group, due to her work, and she travels up to help them regularly.) Let us know how it's going... Good luck.
Avatar f tn hp_id=523N Also organizations such as NAMI have informational literature that can be helpful for people who don't understand what a psychiatric disability is and they have friend and family support groups that can be of help in this regard as well. Some outpatient clinics have specific mood disorders support groups that can also be of help as for coping skills and support. I used to go to one myself in the past.
Avatar f tn This is tough, because all of your tests can come back negative and you can STILL have RA. The nodule on your palm sounds very typical RA. I was diagnosed with RA in Feb. learned all I could about it, made a lot of great friends online through facebook support groups, have a few friends in FL that have started support groups. Try "Rheumatoid Arthritis Warrior". Kelly Young, the creator is a good friend, and was there to help with any confusion.
Avatar f tn the other issues I dont know could be something additional to this. im looking for some support groups i can talk too in my area anywhere in chicago land area. i live in naperville. i was just curious. yes im seeing a neurosurgeon . a doctor Gail L Rosseau from Norht Shore that i found from this list here. Does anyone know if she is any good. Im not looking for possible brain surgery i have a MRI picture on my head take n 4 weeks ago. I do have issues with my spine to but no mri.
Avatar n tn There are a number of support groups out on the internet - poke around until you find one you like. There's a particularly good one on Facebook called RA Chicks, if you're on FB. :) Good luck! Keep us posted.
Avatar n tn The doctor told me that fibromyalgia is a weeding out process. I would greatly appreciate the prayers. Do you know of any online support groups for this?
910419 tn?1289487327 Neurologists also provide comparable care for patients with other major and costly diseases such as Alzheimer’s, Parkinson’s, stroke, ALS, epilepsy, MS, peripheral neuropathy, fibromyalgia, and traumatic brain injury (TBI). The recent health care reform act, the Patient Protection and Affordable Care Act (ACA), provides incentives to encourage primary care but failed to include neurologists among the eligible health care providers.
288187 tn?1191084318 317-745-3553, and they are also listed on the hospital website under support groups. I've learned a lot from the other women and we always gain strength just from the support of being together. New friends are always welcome.