Fibromyalgia support

Common Questions and Answers about Fibromyalgia support


Avatar f tn what is fibromyalgia? i am curious. My mother n law suffers from it and i am just curious what it is.
Monster Many patients with fibromyalgia feel that their joints are swollen, although there is no visible inflammation of the joints (arthritis). ### FIBROMYALGIA TESTS — There are no specific laboratory or imaging tests used to diagnose fibromyalgia. Thus, the diagnosis is typically based upon a thorough patient history, a complete physical examination, and blood tests, which are used to exclude conditions with similar symptoms.
4861077 tn?1360159739 I have now seen the rheumatologist and have been diagnosed with fibromyalgia can any advise me as to what help I can get as some days these pains can be life limiting am finding it hard to even peel potatoes need advice thanks
Avatar f tn They have this computerized footmap analyzer that evaluates your foot length,arch type and pressure points, so you can get the best inserts for support & comfort. And the price is reasonable, but you have to keep in mind that you probably need shoes about half size larger. As far as what could be medically wrong, one area to look into is spinal issues that would affect the feet,like spinal stenosis at L5,S1.
Avatar f tn i have fibromyalgia amongst other complaints.fro about 2 years i have had a swollen abdomen-lumpy and tender which progressed to sore and protruding ribs.have had ct and mri scans which gave no clues.doctors seem to ignore symptons,now i have a feeling of tightness around my ribs and am sore all around feels like ribs are digging in me.
Avatar m tn I have been told for 3 years I have Fibromyalgia along with osteoarthritis in many areas; osteoporosis (I have lost 2 and l/2 inches in 3 years; fracture mode; every medicine I had been put on has been problems and I have been taken off all for Fibromyalgia, osteoporosis, and arthritis. Now, my right eye is getting fuzzy, not every day, but more days all the time. My doctor has said although I need back surgery, be careful doing that because it will possibly make your fibromyalgia worse.
1184051 tn?1264438908 Hi I am new to this site, but my doctor said in I probably have fibromyalgia about a year ago. I had an MRI done today and it came back negative. My dr. had me have the MRI because of increasing fatigue, tingling body parts, headaches, major memory problems! Now I have to go to a neurologist. I just feel that I will have a bunch of tests and they will say they don't know or label me with fibromyalgia, but do they take it as a serious condition?
Avatar f tn I'm new here and I haven't had a fibromyalgia diagnosis, but I have had muscle twitching all over (mostly in my legs) and that has died down quite a bit, but I've have tired muscles and I have been so tired. I get tender spots that hurt for no reason to the touch. This past Saturday I went dancing and almost didn't make it through the first song, my legs started to hurt so bad. I woke up the next morning and it felt like someone had beat my legs with a baseball bat.
Avatar f tn Iam a mother with 2 young children and I was diagnosed with fibromyalgia 4 years ago. Since then I have been suffering with extreme pain that never lets up. I am curious if anyone else has ideas on which medicines work better for pain. I also suffer from depression and anxiety issues. I also have difficulty sleeping, I feel so alone, because neither my family or friends understand my problems. They think I do not really have medical problems. I appreciate if anyone replies!
Avatar m tn I'm 42, bipolar and have fibromyalgia with it. plus many other stressors i wont go into listing...... I have no motivation, either..... at least now we know we are not alone....... prayers of love & light.....
6063300 tn?1430434171 I wish there was a way to get the word out about educated places like this site and to those ppl looking for real support and not a hook up. I have started to form a support team from forum questions, to pvt messages, and then by texting with people I met all on here. This is the greatest place and we are here for you. Sorry I can't answer your question, I don't know the answer.
1550149 tn?1340004330 Of the three groups, the fibromyalgia patients were least tolerant of and most attentive to such stimuli. A 2001 analysis of studies on fibromyalgia, however, found no strong support for the hypervigilance theory. Immune Abnormalities Fibromyalgia has some symptoms that resemble a number of rheumatic illnesses, including rheumatoid arthritis and lupus (systemic lupus erythematosus).
Avatar f tn I was diagnosed with fibromyalgia 7 years ago after a heart attack- which was caused by a spontaneous dissection of my left coronary artery. I never seemed to get well. I stayed tired, pain everywhere, sensitive to chemicals- especially in stores like Lowe's or Home Depot- got sick, dizzy and had to leave the store. I am also sensitive to sounds- loud sounds, sensitive to light- can't stand being hot or cold. I am still so tired, there are days I don't get out of my chair.
Avatar n tn Honey, i feel for ya , i too have been through the same things for years and my own husband has turned against me. Nobody believes you or has no clue how much pain you are in daily!!!!!!!!!!! I too get so mad at the world. One time my new nuro doctor said so your primary doctors wrote down you were depressed, i said yesyou would be too if you wasin pain all the time!!!!
Avatar f tn Hello everybody , im fighting fibromyalgia, im not completly cured ,but I fell MUCH MUCH better, and the best part im not taking any kind of medicines.
1105540 tn?1279190717 Common pain syndromes in MS include a band-like sensation around the thorax, shooting pain down the back with neck flexion, and pain in the limbs due to spasticity or spasms when the spinal cord is involved. Fibromyalgia and MS can certainly occur together, so that sometimes, it would not be possible to determine if your symptoms in your teenage years were due to the MS or due to fibromyalgia.
Avatar f tn Ischemia: Cause of Fibromyalgia Pain? Saturday April 18, 2009 Did you know that some fibromyalgia (FMS) pain may be caused by low blood flow to our muscles? The medical name for that is ischemia (ih-SKEE-mee-ah). We've had some limited evidence of ischemia in FMS for a few years, and it's an area that researchers are pursuing.
554442 tn?1221238825 I hope all who suffer from pain find peace within and can get to a place where you feel tolerable to live within your own body,,,fibromyalgia and pain for that matter is a tough one to live with but support can help dramatically,,I as well as others who have good intentions and dont just want to critisize are here for you and will walk with you down this pain journey we share together,,,, only those who live the pain can find empathy with others who feel and think the same
975514 tn?1325001538 I think I have been misdiagnosed with Fibromyalgia. And I feel as though I am getting weaker and weaker lately. I need some opinions from the group because my doctor doesn't seem to want to help me. First, I have a strong family history of autoimmune disease including RA, Reactive Arthritis (my father), thyroid and diabetes. I have been diagnosed with DDD, degenerative facet disease, and facet osteoarthritis.
Avatar f tn well just got back from lawyer apt and it didn't go well. It seemed as if he didn't believe in fibromyalgia even though he didn't say that. Said that all my test came back ok that it didn't appear that i have anything wrong with me besides my one seizure on my eeg. And that even if i did win since i don't have enough credits and i have to file for ssi and my husband works that i probably won't recieve much as far as a monthly benefit.
209591 tn?1267418314 Hi, I am a 25 year old female that was diagnosed with Fibromyalgia in August along with many other things...I have been staying so tired, some days sleeping more than 15 hours....Just getting out of bed sometimes is almost impossible...For you all what has been the most helpful treatment (exercise, therapy or medication) for your fatigue? All of my medicines cause fatigue and so do all 8 to 10 diagnoses I currently have...Thanks so much for your help.
Avatar n tn lupus, CREST, Sjogrens) as well as some pretty serious secondary disorders (neuropathy, heart problems) and was wondering if anyone out there has multiple autoimmune as well and if a support group would be beneficial? I have shied away from going to support groups for various reasons but am beginning to think now maybe one would be helpful. Thoughts? I feel like I am losing ground daily not only physically but also emotionally.
672839 tn?1305796547 To me, there are two types of groups, 1) Support and 2) Self Help. Support Groups are places to go and feel safe. Lead by others with medical conditions like ours, opinions are shared by all, and comfort is widely given while tears flow. The discussions are personal and individualized making this the place to be when your chin is on the ground. Self-Help groups relieve a different pain. In this setting professionals teach you the steps necessary to better yourself and your position.
Avatar n tn Hi, How are you? Were you able to find a specialist already? Other options to consider are asking a referral from your attending physician or support group in your area. You can also check with local hospitals if they have specialists available. Hope this helps. Take care and best regards.
1568087 tn?1296363786 Stressed out and then it went badly! Fibromyalgia and sinus headache-awful today!
Avatar n tn a lumbar support (a curve that fits into the lower back region) a high back (as this will ensure that your neck and shoulders are properly aligned) an adjustable back (which will allow you to place it properly in any chair) Back pain exercises – Exercises that specifically target your back can help to alleviate pain. This is because exercises help to strengthen your back muscles, pulling your spine back into alignment. Be careful not to overdo it with these exercises, however.
Avatar f tn My son has Mctd fibromyalgia amd raynauds. He is only 21 and he doesnt talk much about his disease i tried to get him into a support group so maybe he can meet others his age that understand him. He really wants a girfriend.
Avatar f tn Going to a rheumatologist is a good thing as they are the best to treat you. There is the odd one who doesn't support fibromyalgia and if that is the case then try another. It doesn't sound like you are yet on any of the approved drugs for fibro which you may find help you. I have had good luck with Lyric and in having my depression treated with Remeron. I didn't realize how depressed I'd gotten dealing with my diagnosis until after the depression lifted.
558118 tn?1216815716 // All of these websites are basically the same but have different symptoms and the reasons for the disease is similar. Arm your brains w/ info about fibromyalgia w/ the first as being more informative.
Avatar f tn He sent me to a rheumatologist because he believes it is fibromyalgia. The rheumatologist is adamantly against diagnosing pts w/fibro. Went back to neur. because the headaches are so intense I am now on a medical leave. He ordered a spinal tap to rule out ms and lymes. I am now awaiting the results. Can people with MS have lesions in the frontal lobe.? Oh, I have also learned that I have a herniated disc in my neck/does that go with MS? If spinal tap comes back normal, what do I pursue??