Fibromyalgia forum message board

Common Questions and Answers about Fibromyalgia forum message board


209591 tn?1267418314 Hi, I am a 25 year old female that was diagnosed with Fibromyalgia in August along with many other things...I have been staying so tired, some days sleeping more than 15 hours....Just getting out of bed sometimes is almost impossible...For you all what has been the most helpful treatment (exercise, therapy or medication) for your fatigue? All of my medicines cause fatigue and so do all 8 to 10 diagnoses I currently have...Thanks so much for your help.
975514 tn?1325001538 section_id=27670#sec_27670 I urge you to introduce yourself below and tell us a little about what brought you to the Fibromyalgia/CFS Forum. Again, welcome to MedHelp and the Fibromyalgia/CFS forum!
Avatar n tn Anyone that has been diagnosed with fibromyalgia/CFS, MS, and many other diseases and conditions should be tested for Lyme disease, no mattter where you live in the country. There are tons of myths on this disease, first you don't have to have a bull's eye rash and second, the test your doctor will most likely give you is very unreliable. Please do some research on lyme disease and co-infections. youtube (under our skin) has some informative information as well as other sites.
10947 tn?1281407852 I have since developed tissue damage and fibromyalgia. I do think the tissue damage is due to tx, but not so sure about the fibromyalgia! But please go to you doctor and always ASK for a print out of all your test! That's a bad mistake I made. And if you develope PAIN during tx. be referred to a pain specialist. That's what they are there for, and they do treat many hep patients! I will keep you in my prayers...and as for exercise....mine was..."batting my eye lids".
Avatar f tn Also if you need a natural pain remedy-better than most meds- please message me directly (forum rules) or post at the alternative therapies. Blessings to all.
Avatar n tn You asked for forgiveness. I even responded back to you with an I forgive you message both email and a post on the forum if you don't recall. It was deleted the following morning because of other negative stuff on the same thread. So please don't jump to conclusions, I am just telling another poster what happened to my email when she mentioned what happened to hers. I never mentioned your name Chezz2 or accused you of being the imposter.
Avatar f tn My email address is ***@**** Thank you for your commitment to this message board. I would also like to ask everyone on this message board what type of meds you are taking to help your MSK pain? Your answer would be appreciated. Thank you!
Avatar f tn bump --- this is tomorrow !
Avatar n tn I had been researching it and was about 90% sure, and then I found this message board and a few members were describing pain I had not been able to find out anything about anywhere else, and it was like "BINGO". Thats it! Even though i suspected Fibromyalgia, the realization that is really is, has hit me hard. I was hoping this pain would go away and to find out now it won't is hard to accept. I still want to go be tested for Lyme disease just to make sure it is not that.
217229 tn?1192766004 Thanks Ada --- I really appreciate that input - I'm going to post this post on the Fibromyalgia board... Sigh--- I'll figure out where I'm supposed to be eventually - LOL! But yeah - I do know what your brother means... It's weird - docs will give me something for this or that --- and it does the exact opposite for me. Strange thing... My friends all go do coffee runs and then clean their houses - Me -- I crawl into bed with a fast beating heart - LOL! Have a great day!
773166 tn?1235303830 It has been a long time since i was on a FMS message board. I added some info on my profile, and some pictures of my family. I currently believe I am on the right mix of meds, because i have more good days than bad. (although the aches and pains are always with me,just degrees of severity...) I was diag. in 1982..when it was called fibrositis and there was only a paragraph or so, i could find on it, at the local library. I am glad i found this board..
Avatar f tn Many on there go thru a lot of what people are dealing with on here. I remember when the Dr first said MS to me....I wen't on Webmds message board for MS, and found people after people who were first DX'd with Fibro and later DX with MS. I didn't think much of my Dr saying lets rule out MS, then find others like me who had Fibro be told umm no you have MS. I think that is why I came over to this board. Everyone over there said I sounded exactly like them.
Avatar f tn I am a 60yr old, overweight, female. I have degenerative osteoarthritis, fibromyalgia, and type 2 diabetes. I recently had a C5-6 cervical fusion. I have bulging discs at T-8, and at L4-5. On my MRI at T-8 it also says I have superior endplate depression. I looked this up, and it says that is indicitave of auto-immune diseases. But it didn't list which ones. My eyes get blurry, and sometimes I seem in a "fog", which I attributed to the fibro.
690549 tn?1288886321 My heart goes out to so many of the people who read the boards here and contribute in this forum. I absolutely HATE the treatment some people get from holier than thou medical personnel who manipulate and abuse vulnerable, sick people with their rudeness and scathing attitudes. The fact is MS is often extremely hard to diagnose, and even harder to treat.
Avatar n tn It is a support group for victims of FQ ADR's. It has a message board with almost 14,000 messages from FQ victims and family members(click on the link to "Email Forum"). You will find that your symptoms are typical ADR's to FQ's. You can post a message with your history and I assure you that you will receive numerous, relevant responses. Also, click on the link to the article "Peripheral Neuropathy Associated with Flouroquinolones" by Dr. Jay S. Cohen, Assoc. Prof.
Avatar f tn I have never taken this very seriously until recently because I’ve been diagnosed with Fibromyalgia for pain in my back and arms. So, I started swimming as recommended by my Rheumatologist but now I’m scared to get into the pool. On a daily basis, I feel extremely fatigued, dizzy, dis-oriented, sometimes short of breath after even slight activity. Somedays I feel drugged and my eye-lids feel very heavy and I have trouble just staying awake.
Avatar f tn MedHelp just recently changed this forums name. I posted something like this in their suggestion forum, so now this is no longer the "fibromyalgia" forum only.
Avatar n tn Just posted a message on nicki33 post. Had no Idea there was a degenerative forum. It's good to know I'm not alone . I feel like nancy53 nobody can understand why I can't stand or sit for prologed periods of time. Sure glad I made it to retire. It was a really tough, painful journey. Good Luck to all.
Avatar f tn HI, I am new to this whole message board thing so please bare with me. I am a 30 year old female who was diagnosed with RA and fybromyalgia when i was 15. My Dr. started pumping me the pills immediately. I took different medications through out the next 8 years off and on and was only taking tramadol when I got pregnant. The Dr. took me off the tramadol and I took Tylonal 4 while pregnant.
4939681 tn?1361302899 I didn't have time to see what abx that includes, but interestingly the message board I was looking had some people saying they had scleroderma AND Lyme. Makes me wonder if there is a connection (as in, can a Lyme infection show itself as skin problems such as scleroderma), but that was all I got in 5 minutes!
149087 tn?1258457420 All I am saying is you should not come onto the message board and down the people on here who are looking for help. If it were you who need advice, they would have given it to you, but you basically came on here bragging about how you werent feeling the same withdrawl symptoms they were. They really dont need to hear that. Their pain is real, their withdrawl symptoms are real, as well as the guilt they carry around with them for keeping this a secrete from family and friends.
Avatar n tn Cheryl I have posted pretty much the same message on the fibromyalgia board. But, I'm wondering if anyone here has this sweating problem that has a thyroid problem. I will add this to this post. I have a goiter with a large nodule on my right lobe, also with a small cluster of nodules on my right side, with the larger side of my thyroid actually being the left side.
Avatar n tn Hi, Bounce-- Welcome to the board. There are lots of very knowledgeable people on this board who can give you information. You can also check out the health pages for more info. MS rarely, if ever, presents as an "all-over" pain syndrome or an all-over anything syndrome. Your entire CNS does not become inflamed in MS--you usually develop areas of inflammation or places where lesions have appeared, and these isolated areas then manifest as isolated areas of symptoms.
Avatar f tn I have been working at home on a current events message board for the last few months. We have a lot of fun. I just got a new job when I finished treatment. I start after Christmas. I am excited to get out of the house. If anybody ever needs or wants to chat with a fellow hepper, you can usually find me at I go by Indy there and it feels like I live there so you shouldn't have a problem getting a quick response.
620060 tn?1235519391 I am originally from the state of Wisconsin so of course, it's very similar to you. I also have Fibromyalgia and about 7 other related disorders. I completely agree with you that the cold weather, damp weather & high humidity are killers for us. I have been told it has a lot to do with the barometric pressure changes. If you live in an area where it changes frequently such as the midwest - unfortunately for you, it changes frequently.
Avatar n tn Hello ladies, this is my first time at this message board. I didn't even think that a board like this existed! My name is Jen, I'm 40 and trying to conceive a child. I belong to a ttc (trying to conceive) website and someone there posted a message about meds that are safe when ttc so I started searching & found this board!
469720 tn?1388149949 As you may have noticed by now, the focus of this forum is cardiovascular disease(CVD) prevention. The statistics speak for themselves. CVD is the leading cause of death in the US and worldwide. Although we have made substantial progress in the development of medications to combat the causes of CVD like high cholesterol, hypertension and diabetes; the rapid proliferation of these diseases virtually negates and medical benefit. In other words, we are treating the consequences, not the cause.
Avatar n tn That is correct. I can tell you from experience. However, I am able to treat many of my symptoms that I have now (after the thyroidectomy) herbally. Although, I am on synthroid, many of my "fibromyalgia-type" symptoms I can treat successfully with minerals and herbs. Some were even prescribed to me by an integrative (holistic-type) dr. at the Cleveland Clinic.
Avatar m tn Been clean for over 9 months. There is more info on Sub in the Health Pages to the right of the forum. Good info.