fibromyalgia forum message board

Hi to everyone, I've been reading this message board for months now, but unable to post because my Apple computer won't let me, don't understand why and we've tried everything.so i'm in my adult community's clubhouse using their pc. Let me first say you are an amazing, compassionate group of ladies and I'm glad to be able to read the information you post to help each other. I'm stage 3C, BRCA 2 positive, OVCA which has metastasized to the lymph nodes.

thinking of starting a hepc message board with vbulletin software, especially if i start treatment in the near future...think i'm going to be in the house mostly...

There is a support group and message board on inspire.com with many people with scleroderma who will be able to tell you what kinds of pain they've had. I get a lot of support there (I have sine scleroderma).... the website is: http://www.inspire.

Someone posted on another board that they had antiviral chemotherapy and after, their fibromyalgia was gone. Has anyone heard of this before? I don't even know what this is...a pill type chemo?

did you see my answer to your other post?

t bother me. There are facts and the fact is that some fibromyalgia patients are in wheelchairs. The truth never hurts... only our reaction to it does.

I had been researching it and was about 90% sure, and then I found this message board and a few members were describing pain I had not been able to find out anything about anywhere else, and it was like "BINGO". Thats it! Even though i suspected Fibromyalgia, the realization that is really is, has hit me hard. I was hoping this pain would go away and to find out now it won't is hard to accept. I still want to go be tested for Lyme disease just to make sure it is not that.

It must not be easy managing a free message board this large and diverse. Imagine the staff and costs to run their servers, build and maintain the web framework, control spam as well as monitoring the discussion forums. Good to acknowledge that. What seems like a good discussion to some may be offensive to others. Many people that come on here may never post but just read some of the discussions and be turned off by what may seem like cat fighting.

m sending you a link (via private message) to an article about high blood pressure and fibromyalgia medications.

Hi. I have a series of questions about this disorder, but I am noticing that there isn't a lot of participation on this forum. Are there any community leaders I can leave a message with?

Fibromyalgia can last forever. There are treatments and even possible cures out there (research protocols). Fatigue, dizziness and so many other symptoms are common in fibro patients and in fact, 29% of fibro patients have a positive ANA titer. I hope that you will consider joining us on MedHelp's fibro/CFS board. I'm the Community Leader there.

I too have CFIDS/ME and on this forum, the majority of the subject matters deal with fibromyalgia. I too wish there was a separate forum which focused primarily on CFIDS/ME.

with the recent XMRV findings, I wonder if it would be possible to separate fibromyalgia and ME/CFS (the recommended term for chronic fatigue) into 2 different forums. There are different issues between the 2 disorders.

I think I"m already helping you with this on another forum - either webmd or asha's message board would be my guess sinceyou didn't have any other posts here under this name.

I have many issues and asked rheumatologist if I could have fibromyalgia, she said I don't fit criteria what do you think? Joint issues, muscles pains, sleepless nights, depression, cognitive issues, brain fog, always tired, IBS, Gerd, cramps in hands, hips and feet, temperature varies from boiling hot to cold, weakness in muscles and twitching, difficulty walking I'm unsteady on my feet and that's just a few of my symptoms.

A was a regular on our MS forum, and starting the limboland forum was so needed - while some on that forum are still a part of us, I can totally see why it's important to not focus on one disease. I wonder if they will pop in and say hello too! I hope so :) To our limbolanders, I hope you take Mrs. A up on visiting that forum because we all need each other, and I'm sure some of you get sick of the MS focus now and again. Some new perspectives may be helpful too.

I have chronic paindue to fibromyalgia and severe degenerative disc and joint disease. I was a R.N. for 15 yrs and because of my pain I had to leave the field. I have already had a total right knee replacement and my left knee is already bone on bone and needs replaced. My back is real messed up also. I have severe disc degeneration and my L4-L5 is bone on bone. I have been going to a pain specialist for about a year and he put me on Morphine extended release.

I have been trying for weeks to post a question on the EXPERT FORUM and I continually get a message saying that it has exceeded its daily postings. When is the best time to post? I have been trying all hours of the day.

s daughter was just diagnosed with mito I will get in touch with her and get some info for you.

Since there is a forum for stage 3 and 4 breast cancer, several of us would like to know if it would be possible for a stage 3 and four ovarian cancer board. We need a board to discuss our chemos, side effects, and things without all the other confusion on the one board. Many of these women are leaving out of fustration, and we are having to find other means of contact.

But remember there are time differences for all of us here, so often the person may not see your message for hours or even the next day. As for AR, I promise you he will answer your message if he has received it, if you're not sure, send another one.

can I? post a new message to the other Heart Rhythm medical questions board. Do I need to create a whole new profile? Use another email and password? Seems that way but hoping I am wrong and someone can give me a clue here:-) Thanks!

Well I have been on this forum for almost a year now and I think I have overstayed my welcome. It no longer serves the purpose for me that it once did and I no longer find it helpful, in fact some member's comments have been hurtful, but APPARENTLY I am not allowed to say that. So it's been a good run and I thank those who were supportive of me during the diagnosis period and my last major flare. Thank you also to those who gave me helpful advice about living with this disease.

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