Fibromyalgia and your family

Common Questions and Answers about Fibromyalgia and your family

fibromyalgia

543791 tn?1216381777 I've seen a few posts about how to help your family understand Fibromyalgia. I decided to write a little letter in my journal if anyone would like to read it. I think it was some what therapeutic for me to write, and I hope it may be something that could help those struggling for validation and acceptance. God Bless you all, I love being part of this community, you're support has been more than helpful!
1245842 tn?1287830051 You came to the right place to vent. Are you seeing a doctor who can help you? Do you have friends and family to reach out to? Please feel free to make friends with us here. We can relate with you I am sure. Take care of yourself.
Avatar f tn You guys with fibro and autoimmune have real pain and its prob from both. Its got to be hard when your family wont try understand. My son suffers with raynauds and when a person who doesnt known fibro autoimmune they get an eyefull and see its real seeing his hands turn completely blue. Looks like a dead person.
1184051 tn?1264435308 s taken me awhile to comment on your post and I am sorry to hear of your pain. I am glad that the group has been able to chime in and offer support to you. Welcome to the forum! I have have a couple of questions for you. First, what type of doctors have you seen at this point? Have you been to a Rheumatologist who is "Fibro Friendly"? If you haven't found one yet, a good place to seek one out is by going to the National Fibromyalgia Association website.
543346 tn?1214457488 My name is Sarah, and I was diagnosed at Mayo Clinic on Friday with Chronic Fatigue Syndrome and Fibromyalgia. I have been sick for 4 years, and had seen 22 doctors before going to Mayo. I have been working half time and have spent progressively less time doing social things with friends. I am now back in Texas and am faced with telling my friends and family about my diagnoses, while trying to let this sink in myself!
Avatar m tn But finnaly my family docter has reffered me to somebody in Lexington and she is actually listening to me and trying to figure it. Hopefully soon I will get a Diagnosis!
Avatar f tn Rheumatologist are actually the doctors who created the criteria for diagnosing Fibromyalgia and without seeing a Rheumatologist, your diagnosis may be weak if you ever were to require a medical leave or disability assistance. They are also able to detect early stages of other conditions that can mimic fibro, which some PCPs are not as well trained in identifying.
Avatar f tn LOL Just know your own personal limits. And stick to your guns when it comes to them wanting you to do things beyond your limit. They'll try. That's up to you. Learn to say "No!" It's the best Fibro word there is. Take care! Hope I gave you some good pointers.
Avatar n tn thanks for your reply. i searched 12steps fibromyalgia and got alot of different 12steps, all interesting but none specific to fibromyalgia that i could see. i have worked a 12 step program before and i believe it is the reason why i am ready now to go all the way off of pain meds and see if i am sufficiently well enough to deal with the fibromyalgia with non narcotic meds when the need arises. i don't know if i have daily pain issues anymore.
Avatar f tn You know it is bad enough to be looked at like your nuts or like you are a hypocondriac,but to have your friends, boss or family not believe or understand what your problem is, just breaks our hearts.
Avatar m tn and then i did research and found this doctor here who has fibromyalgia and then i had to call my family doctor 5 days straight 4-5 times a day just to get him to send over a referel.... which is just making a phone call! it took them 5 days to call and talk to them?!?!?! i feel like i've fought everyone and i am praying to god this doctor will really, reallly help me... i am sorry that the tylenol#3 upsets your stomache...
Monster I have multiple illnesses to deal with and am disabled... My life consists of my family... helping others... and keeping me on track... Or as close to track as I can be... I am human after all lol... I hope you can get a Dr to check you out... One that believes in FM... Sometimes you have to ask before going to see them... I don't see a new Dr without asking now... No matter what type I am seeing... After all... You are a total picture and must be treated as such... Right...
Avatar f tn I have Fibromyalgia and can only work three days a week with days in between and have to sleep 12 hours and two short naps during the days off. This year if I do too much during one day, my upper back spasms into a neck/shoulder pain spasm and causes migraine, and I am bedridden. The only thing that provides relief is a hot bath and codeine and 2 muscle relaxants and one gravol. It has only been that bad for one year.
Avatar n tn HE PUTS LOUD MUSIC AND MAKES LOUD SOUNDS OF A SHIP HORN AND PUTS THOSE SOUNDS THROUGH A MICROPHONE, WAKES ME UP AND MY HEAD IS POUNDING WITH PAIN. CAN HIS NOISE AFFECT MY FM? CAUSE I GET WORST WHEN HE STRESSES ME OUT WITH THAT AWFUL SOUNDS HE MAKES.
531852 tn?1226026411 Up until that points, probably 3 months after having regular visits with her, I finally asked her what was my diagnose and she said I probably had some form of Fibromyalgia. It’s the “some sort of Fibromyalgia” that had me worried. All she said is to keep on taking the medication and continue to exercise. That’s what I have been doing and things were pretty good until now. I have 2 questions I’m hoping some of you can shed some light on.
975514 tn?1324997938 ) I have almost everything up there except Lyme in my family. I suffer from DDD and Osteoarthritis of the spine and nerve damage as well as Fibro. My Thyroid numbers are also slightly off myself.
585414 tn?1288941302 I was asked to cut and paste this question to this forum so here it is.Wondering when people disclose their disabilities and to whom? Before recovery I disclosed about my schizoaffective disorder to family and friends but obviously not to people I didn't know (except at consumer presentations). Now I have a Medicalert pendant stating "tardive dyskinesia" and I don't tell everyone upfront but if someone saw it and had concerns I'd be happy to explain it.
Avatar f tn Aching in your muscles and joints and fatigue. It hurts you to get out of the chair, also fatigued.You wake up tired and go to bed tired. Your head always feels tired. Complaints of fatigue and joint pains are,unfortunately, very common. fibromyalgia, a condition characterized by muscular aches and pains, fatigue, and difficulty sleeping. It is much more common in women, and it can be debilitating. Many conventional medical doctors do not think that fibromyalgia exists.
Avatar m tn It is a Rheumatologist who you must see for a fibromyalgia diagnosis and if positive,consequent treatment follows, prescribed normally by the Rheumatologist. There is no effective standard medical treatment for fibromyalgia other than symptom management, by the way. The suspected side-effects of the acupuncture cannot be attributed to the treatment itself, as it cannot be verified. Those " strange" side effects could be easily caused by stress alone.
Avatar m tn Sharma, Thank you for the reply. I certainly will take your suggestions and talk to my family doctor. Thanks so much. I appreciate your taking your time to respond. Gran.
Avatar n tn I am only 25 and have all the symptoms of fibromyalgia, CFS and MCS. I am unable to get out of bed some days but because of my young age my doctor is not seeming to take me seriously. He tests my thyroid and iron levels and many other things, but has not sent me to a fibromyalgia specialists. Also I have not been able to get disability cheques, so I am on government assistance:(. Does anybody more experienced have any advice for me? This can be quite stressful.
Avatar n tn My Brother has been diagnosed with MS and my mother with fibromyalgia. Unsure if there is a connection.