Chronic refractory migraine, POTS, severe orthostatic
hypotension, central pain syndrome, Ehlers-Danlos Syndrome, non-specific dysautonomia, cyclic vomiting. Now daughter has a jtube for enteral feeding and a port for fluids because she cannot take anything by mouth without vomiting. She has been on every medication everyone else has tried for this. Cardiac doc took her off florinef because of the side effects, but that sent her right to the ER.