Enbrel and crohn's disease

Common Questions and Answers about Enbrel and crohn's disease

enbrel

Avatar f tn I am a 46 year old desperate to save my j- pouch!16 years age I was diagonsed with ulcerative colitis. My entire colon was removed . I had a temporary iliostomy then 3 months later experienced a successful reversal. Today I am recovering from a ruptured bowel, I once again have an iliostomy, and have been diagonsed with Crohn's disease. The first line of treatment was 4 weeks on Pentasa and Rowasa.
Avatar n tn I would also recommend you see a rheumatologist to get a proper diagnosis. Pain in the sacrum is one of the key indicators of Ankylosing Spondylitis so you may have that. Plus it seems that AS and IBS often go hand in hand. I have ankylosing spondylitis and irritable bowel syndrome. I've been following a low starch diet (Carol Sinclair's IBS Low Starch Diet) and it has really helped.
Avatar n tn The TNF Blockers work really well for the reactive arthritis related to my Crohn's Disease [Crohn's Colitis]. However, I have found that to varying degrees Remicade and Humira give me the following side effects. I am trying to find out if these are normal side effects and if anyone has found a way to manage them. Physical therapy is not giving me enough relief at this point.
Avatar f tn For the past 3 years, I have been getting recurrent canker sores. They would apprear twice a month. They disappeared only when I was in my secong and third trimester of pregnancy. I did various tests and a colonoscopy to rule out Crohn's disease. I also did the ASCA and ANCA blood tests. My colonsocopy was normal. ANCA was negative but ASCA was positive. I dont have the classic symptoms of Crohn's (diarrhea). is a positive ASCA an indicator of Crohn's?
Avatar n tn I was in between jobs and had no insurance and had to stop the Enbrel for 3 weeks, within 2 weeks the pain and stiffness was back worse than ever. The price of Enbrel is $1500.00 monthly so it doesn't surprise me that the insurance company won't give you the 2 a week you need. Talk to your doc about the other 2 drugs and see if they will better help control your pain and stiffness. Keep me posted!
Avatar m tn Hello, I'm a 31 year old male with Crohn's disease. I have a question regarding the appearance of my anus, and whether this is caused by Crohn's disease. For a while (probably years) I've noticed while cleaning that my anus felt as though it had flaps, or almost lips for a lack of a better term. Recently i decided to take a picture, and this was confirmed. And to my horror, was fairly unattractive. Almost as if my anus is loose or has developed hanging tags.
48668 tn?1201543083 This is the response from the Crohn's and Colitis Foundation of America on whether there is a connection between Crohn's Disease and Type 1 Diabetes: We don't know of any research that has indicated a connection between diabetes and Crohn's.
Avatar f tn I have had two shots of Humira, I constantly have sinus issues, pain pressure, teeth hurt and hedaches. I got them on enbrel and after 9 years it quit working, so tired remicade but after 4 infusions I had such a bad insus probelm I quit it also raised my blood pressrue a lot. I don't seem to be able to handle hard core antibidoics so I can take zpack, and it helps, but I always seem to be back on it alteast every two months.
Avatar n tn I was not familiar with "Perianal Abscesses" so I checked out a couple of sights. On one sight it did say that some people are more susceptible to perianal abscesses such as those that have: Diabetes, Aids or HIV, Crohn's or persons on medications that suppress the body's immune system, such as steroids (prednisone, methylprednisolone), or those undergoing chemotherapy for cancer ..........so I do not think that it is indictive of having Crohn's.
Avatar n tn is it possible to have crohn's disease while having none of the symptoms and being on no medications for almost 10 years.
Avatar f tn got my sides mixed up under left breast
Avatar n tn I have been a type 1 diabetic since age 10--53 years now. Approximately 30 yrs. ago I started having a lot of bloody diarrhea, etc. It took 2 yrs.+ to clear it up and I went for approximately 20 yrs. without any symptoms. When it started up again I was diagnosed with Crohn's and have been on various treatments since then. I have been taking Asacol for years. I have also used enemas--sometimes daily and sometimes twice a day.
Avatar f tn Hi, welcome to the Crohn's Community Forum. I have had Crohn's for 40 yrs, dx when I was 24 yrs old. Cortisone IS used to treat Crohn's, but now only for short periods, say 3-4 months, because of the side effects of long term use. If the Crohn's is in the terminal ileum area and/or first part of the colon, a newer steroid, Entocort can be used, which does not have the debilitating, and embarrassing, side effects that prednisolone and prednisone do.
Avatar f tn You have had a pretty comprehensive workup, and likely would have excluded Crohn's disease if present. I cannot give surgical advice without evaluation, but there are a few antibody tests that you may want to consider to pin down the diagnosis. This can include the anti-OmpC antibody, ASCA, and pANCA tests. Some of them are investigational, but can be considered if the diagnosis is elusive. If the tests are negative, then I would pursue diagnoses other than Crohn's.
Avatar n tn I had Crohn's Disease for 41/2 years and 2 years ago i was also thought to have bilary dyskinesia and at that time I was having a really hard time with my Crohn's and the doctor suggested I have my gallbladded removed to rule out a Crohn's flare since it is an accessory organ and not neccesarily needed....
Avatar n tn Friends and relatives have no conception as to what the disease is, and when you say it is an auto-immune disease, one could thought of speaking in a foreign language. I just don't bother explaning any more, mainly because uneducated people fid the details embarrassing - I don't now. Having Crohn's disease does not define me as a person and I try hard not to let it take over my life.
Avatar n tn I'm in the same vote. On enbrel and have developed hpv. Very tiny bumps if even noticeable at all, but its been spreading. Aldara only made my psoriasis and psa flare up. I guess the next thing is to stop enbrel till my hpv clears up? I am 29, male, non smoker. Enbrel is the only med I take.
Avatar n tn However, he also still has many symptoms that are unrelated to the Crohn’s Disease and they are now testing him for other diseases which may be Lupus, MS and or Rheumatoid Arthritis. We are wondering if there are any recommended treatment for Crohn’s other than Prednisone and Align and if there is any other disease that it may be and how to get tested for it. We have tried so many things and nothing seems to be working at this point. We would appreciate any advice.
3242115 tn?1447004766 I was told I may have Crohn's Disease due to my symptoms and am waiting to hear back from a specialist as to when I can have a scope done. I also have suffered with Bulimia and know of a few cases where the eating disorder has in fact caused the disease due to the unhealthy ways of eating and then regurgitating the food back up.
Avatar f tn Hey, I've got Crohn's and understand the weight gain issue. Try any kind of cream based sauces (I became a huge fan of Olive Garden this way...Chicken Carbonara...yum yum). Anything tomato based tended to irritate my stomach since it was too acidy, so if you're cooking a tomato based sauce at home, add sugar since that will cut down on the acid.
Avatar f tn What are the symptoms for an Crohn's disease? Can it lead to any kinda complication like Arthritis? Anyone can explain it precisely?
422104 tn?1209763904 Doctor, I would like information related to Enbrel and MS. I used Enbrel for less than one year. I now have demylination of the cervical spinal cord, both optic nerves, plaques in my brain, numbness in leg and balance problems. I am now fifty eight. Symtoms started at age fifty six with numbness in leg and balance problems. I have been told it looks "MSish." Questions: now that the new symptom of, the optic nerves being demlinated, is it MS?
Avatar m tn Hello, I have been taking melatonin supplements for a couple weeks now. The past couple days I had abnormal looking stools, and I started looking around on the internet and found that melatonin can cause abnormal looking stools, and even sometimes trigger symptoms of Crohn's disease. But what I was wondering is this: when it says that it can trigger symptoms of Crohn's disease does it mean it just "mimics" Crohn's disease?
Avatar m tn All the reading i do about it suggests that the cure is worse then the disease and it seems that the risk of getting cancer, lupus or the like is extreamly high (higher then the other injectables). I am no stranger to biologics, my doctor had me on Raptiva (before they pulled it) and i loved it. Completly cleared me with no side effects and even kept me clear for 2 years after i stopped using it. But Enbrel scares me.
Avatar m tn On doctor suspects that because I have not taken Humira injection for about a month that it might have played a role in this mystery, Has anyone had anything similar to this or have insight on success and failures from Humira and Remicade, I really appreciate any and all responses and insight
1544019 tn?1318504526 So just an update about this. Just when we finally got cleared for me to take the Enbrel while pregnant, we find out it's not going to be into the pharmacy until Friday AND it's going to cost $900!!! BUT it turns out it will actually probably be safer for me TO take the Enbrel. I have to control my arthritis because if I don't control it, (according to the lady at the pregnancy risk hotline we talked to today) Rheumatoid ARthritis puts me at risk for still birth and preterm labor.