Dilantin for nerve pain
Common Questions and Answers about Dilantin for nerve pain
dilantin
To make matterss worse, Went to MS clinic last week for a nerve conduction study. The problem with my leg and back pain is not MS related. The determined that there is compression of the L3 and S1 nerve. IBesides MS I have neurofibromatosis and degenerative disk disease. Neuros suspect that a neurofibroma is growing between the disk and nerve.
I suffer from constant pain - pain specialists here have tried injections - burning the nerve, botox and every possible drug - Lyrica, indomethacin, neurontin, dilantin, elavil - opiates make it worse (trileptal was the only one that helped but lowered my sodium to 118 within 48 hours at just 300 mgs a day) 3 neurologists have suggested just living life out on klonopin but i refuse (high gaba covers the pain - ironic - depakote and tomomax make it worse.
Sorry to hear about your accident. I was in a car accident 28 years ago (hit by a drunk driver) and went through the windshield severing my right ulnar nerve and shredding my arm. I had a great neurosurgeon and he reattached the nerve. I also was told that I would not get the use or feeling back in my hand. He was wrong, I got most of it back, but had terrible pain while it was regrowing and my hand would frequently cramp up into a fist that I couldn't open.
When first diagnosed she was entered into a UCSF pain management study and the pain killer cocktail that worked for her combined Methadone, Notriptyline, and Dilantin. After some warm water pool therapy she was able to walk again and has been doing well for the past 18 years.
This past June, she started getting dizzy. Her doctor gave her some anti-dizzy medicine and said she probably had an inner-ear infection.
She told me that there was nothing she could do for me. I have been in the Emergency room many many times hoping for relief. I thought at one time Allegra had been my life saver, however it wasnt. I get medical help through my indian tribe, but what they dont carry in their pharmacy you cant get without paying out of pocket. I cannot afford an allergy test. they cost anywhere from $400-1500.I have ruled out everything I can even going without coffee.
Had siezures once per week at night and was semi aware of seizure as it started, then unconcious and would wake up breathing rapidly and confused. Have been on dilantin since then and it has controlled seizures for over 30 years.
Over the yaers I would have problems with severe muscle contortions and spasms of my right leg. Nearly 100% of the time it would bother me at night only, last for about a week as it tapered off.This would happen at most once a year.
I started having seizures when I was 12 yrs. and they put me on dilantin and other meds. they never got under control so good until I went to a new doctor (because I moved) and at that time I was about 38, and the doctor did a MRI and other test. He then said to me the first thing we have to do is get you off of dilantin. He showed me that that pill was eating up half of my brain (it is called cerebellar atrophy). He slowly put me on different levels of Keppra and I haven't been better.
I have no idea if you can. I really think this is a question for your doctor.
I had a craniotomy in March due to an acute subdural hematoma (slip & fall). All the stars were aligned and I was able to receive medical care pretty quickly. Apparently, I am quite lucky to be here, and my neurosurgeon has my undying love! That being said, there are a few questions I had that I didn't think to ask him during my last visit, and my next one isn't for weeks. He has me weaning off the Dilantin (hooray-that's nasty stuff!).
Dilantin Withdrawal Symptoms
The most significant Dilantin withdrawal symptom is a seizure. Suddenly stopping Dilantin can increase your risk of seizures These seizures can be especially severe and very difficult to control.
Anxiety, sleeplessness, feeling cold, anger, seeing dead people in sleep, nausea, little appetite, shakineness are usually not due to the withdrawl of dilantin.Reduce your dose gradually to avoid seizures.
Limiting Dilantin Withdrawal
Refer http://epilepsy.emedtv.
i have been on dilantin for over 25 years . i to have very bad mood swings and i just cant take any stress at all . my neuro is taking me off dilantin slowly. i take 400mg daily . my neuro told me dilantin will cause mood swings and cause me to be irritable and was hard on your body after being on them so long. i have started keppra and dropping 1 dilantin a month . i was told my moods will improve and i will start to think more clearly.
I have Trigeminal Neuralgia. I have had MVD surgery on both sides yet it returned on one side. I have been told by several dr's that there is no pain management for it and that surgery to sever the nerve is all that can be done. I am currently highly medicated and struggling to work. Please let me know if any meds anyone has found succesful. I have tried, amitriptylene, neurontin, toradol, dilaudid, dilantin, oxcarbazapine, and more!
I was on Dilantin for many of my childhood years and it really wrecked my teeth!! Made the gums grow so huge, pushing my teeth so far out of line that some got removed. When I stopped taking Dilantin, my gums dropped down to the proper size, but it left my teeth sticking up, exposing the roots!
Too often, doctors don't tell you about the side effects that you'll have to live with! They're only there to find something to control the seizures.
3 and they gave him a loading dose of 500mg. PO of dilantin, and 500mg. IV Dilantin. He is very regimented taking his Dilantin and does not miss doses.
And told him to take 400mgs. today.
I have a call in to our family Dr. and waiting for a return.
We were being seen by a Neurologist, but she abruptly cancelled my husbands January appt. and said she was leaving town for a month, and did not refer us to any other Dr. so we saw the family Dr. who is prescribing.
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