copaxone research

I know Sherry is doing her research and has to make a DMD decision, so here is a little more if you've not seen the results of these studies (from MSAA site) *************************** Spring 2008 Research Update May 19, 2008 A one-year study in Germany found that 1157 patients with relapsing-remitting multiple sclerosis (RRMS) who began and continued on Avonex® for one year, benefited from nursing support.

If copaxone has been around for so long, why hasn't the price come down? Just curious.

Hi Ali. I can tell you my experience with Copaxone. I was just diagnosed in Dec of 07. I haven't been on any other MS med. I was put on Copaxone. In those 3 months I struggled with depression, sleeplessness, gained 10 lbs and had terrible dark circles under my eyes. It completely changed my personality. I took myself off it and finally after 2 weeks am starting to feel like myself again and have dropped the weight and the circles under my eyes are gone.

Is anyone here familiar with the somewhat recent studies that demonstrate copaxone significantly reduces brain atrophy and tissue loss, not to mention a reduction in theconversion of inflammatory lesions into black holes(possibly better repair)? What does/would this mean for cognitive dysfunction (concentration, learning, recall, memory)? Would this influence your choice of DMD?

Hello all. I was just diagnosed with RRMS last week and my doc is recommending Copaxone. I've been trying to do my research to the best of my abilities through Google scholar and the various websites out there, but there is so much information it's a little overwhelming. I know many of you have been through this and may even have experience with Copaxone itself.

Our nurse at one of our MS support groups brings to our attention that the article skims over the Copaxone side effects and makes no mention of the Copaxone site reactions, but focuses on the liver concerns with all the others. That is the concern. Taking into context the fiscal crisis in the state of NV there are program cuts continuing across the board for many services.

I suggest you do more research on specific outcomes from Copaxone. Also find out in what circumstances lesions are more often shown, because 'more lesions' is kind of vague and not scientfic. I don't think any med can target specific sites, as in A being better than B for brain lesions, and so on. At least you are able to tolerate Copaxone, so that's one unknown cleared away.

I was just watching a video by Dr. Kantor, he Copaxone was talking about how the copaxone dosage could be minimized. Has anyone else heard this before? Below is the video... http://conferencecenter.msworld.

because this study, like many others, was supported by the drug co. that developed, produces, markets and distributes Copaxone. So I guess we take the info with a grain of salt, and hope that the study was designed appropriately and objectively, and that results are reported accurately and ethically. If so, and the encouraging results are repeated in future studies, then it really would be great news for Copaxone users.

t want to be negative, but the only thing research showed me was how well-funded the research was for Copaxone as opposed to other medications available for MS. My original MS doctor had no idea which one would be better for me, and just told me to pick one. There's nothing wrong with collecting anecdotes - it'll help you sort out what works best for everybody. I was on Copaxone for three years, and I can't tell if it did anything.

Hi! I’ve had ms for 5 years. Copaxone 5 years ago- doing fine. Recently I have not been able to inject as I’m loosing available areas. My Nero is suggesting a drug called Ocrevus. Fairly new/ but seems to think in terms of efficacy and safety, it is a better choice. I was wondering if anyone has been using it. I worry about pml, I worry about cancer, I worry about everything! It’s why I had such a love affair with copaxone. Most natural. Latest mri had shown 4 new lesions/ mild progression.

8) To top it off I called my MS neuro today since the last 5 injections of Copaxone have caused 3 inch x 3 inch hematomas. He told me to stop the Copaxone for a month and then restart. If symptoms continue , I'll have to change meds. BP doc and I went through all my meds and the other possibilities are my diuretic (Bumex) or my Trileptal. My pharmacist thought it was the Trileptal. Any one else have any experience similar to this?

usually you are going to make that decision in concert with your neuro, who may make a recommendation as to which DMD is best suited for your MS. I did lots of research before I got to that point and knew which drug I preferred, based on the side effects. An excellent resource about all the available DMDs is this one through the UK - http://www.msrc.co.uk/index.cfm?

The reason I went on Rebif rather than Copaxone when I was given a choice of meds was my fear of the IPR reaction with Copaxone. But now after some research, I think Rebif maybe a worse choice for someone with heart concerns. I read where Rebif can affect the heart but that the Copaxone reaction does not affect the heart. So now I am thinking about switching to Copaxone.

Did they tell you that you had optic neuritis? That was my first flair as far as we know. I've had it 3 or 4 times. I don't remember. I went on prednisone a few times and it worked every times. Lately, for the past few months off and on, I've been having jumpy vision. It gives me pretty bad migraines. I get migraines very easily so I'm on daily meds for that as well. It seems to work well but it doesn't stop the things that trigger my migraines.

From what I know, Copaxone is the Mildest of all of the drugs. The downside is its a shot everyday. The list of side effects of Copaxone seem way more managable than the interferon 1a and 1b meds. I hope everything goes well with your scan.

I am SO glad that you posted this...I have noticed (just started Copaxone about 5-6 weeks ago) that I do have changes in my tastes. In fact, not long after I give myself an injection, I notice a strange taste in my mouth, almost like thiere is increased saliva production. This is probably TOTALLY my imagination... Yes, there are injection site reactions. I was getting BIG welts when I injectied with the auto-injector. I decided to try an experiment and go back to self-injecting.

I sought your advice on Novantrone, as my neuro had stated that this would be the next course of action, if Rebif is unsuccessful for me after a further period of labs and re-introduction to the med. I had asked him if I could try Copaxone after Rebif, and he was very specific about expressing concern about my active MS course and not wanting to take more time to wait and see if Copaxone would work for me, meanwhile more neurological damage may be occuring.

Hello! I've just been diagnosed with MS and am wondering which drug is better. I've read the material for Copaxone, Rebif, Avonex, and Betaseron. I've narrowed it down to two -- Rebif or Copaxone based mainly on side effects. Which drug is the best?

Okay, first of all, both of these drugs are interferons. That means that it modulates the immune system response to reduce the number of relapses. Both drugs are sub-cutaneous injectables, which means an injection every other day with a very small needle. (This may sound terrible, but it's not so bad. The injection is painless.) I've recently become disenchanted with interferons in general, especially Betaseron.

Anyone here one with a diagnosis of MS and is having trouble getting disease modifying drugs, such as Copaxone or Rebif, due to lack of insurance, insurance company unwilling to pay or trouble with pharmaceutical company please tell your story as to why.

Copaxone research

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