Copaxone and side effects

Common Questions and Answers about Copaxone and side effects

copaxone

1469703 tn?1372041476 I'm wondering if anyone else here has had any issues with Copaxone concerning side effects other then the injection site reactions? I've been on Copaxone for 3 months now, I am agitated, frustrated, quick to anger. I've also been experiencing paranoia and mild visual hallucinations. I'm getting sick at least every 2 weeks, and have a general feeling of "un-well" or "ill".
2288403 tn?1339564728 m going thru my second round of IV steroids. I am supposed to start Copaxone tomorrow and am nervous about the side effects and if I should start it while going thru Steroid treatments. Any advice would be much appreciated!
1637739 tn?1371688706 I started Copaxone two months ago and I am still having the lumps and itching for days after injections. My PA told me the lumps will most likely not go away. She asked me if I could tolerate it. Is this true for you MSers that have used Copaxone. Debating whether or not to continue these injections. It's not horrible but annoying. Kinda embarassing to itch my sites all the time! Im just scared to switch and then have to deal with flu-like symptoms with the other injectibles.
1983221 tn?1333506185 My question is - last night I woke up feeling like I had the flu, I was sweating, ached all over and had a massive headache. I know these are side effects of the interferons but has anyone had this while on Copaxone? I had no reaction like this the first few weeks I took Copaxone.
Avatar f tn Does anyone know how long the 3x a week version has been out, and if it has different side effects than the daily? I liked the fact that Copaxone had been out for so long, which has given the most information on long term effects.
Avatar n tn I am new to the website, and new to Capaxone. My question is what side effects does any one have to this stuff. Injection site is to be expected but the general body feeling. It is driving me nuts. I appreciate any remarks and comments.
462771 tn?1358355843 If at that time I see a real change in my MRI despite being on Copaxone, I will swallow hard and ask to be put back on Avonex. The side-effects were worth me being stable in my course of MS for three years. I'll put up with that. Effectiveness is what I am looking for after all. I did NOT notice and "sadness" while on Avonex, although I am prone to depression. I was on an anti-depressant at the time I was on Avonex, so that may have prevented any depression or sadness.
4907540 tn?1361976855 Side effects can vary greatly from one person to another, and you may not feel any side effects regardless of the DMD. If you find side effects intolerable, you can switch drugs. Aside from the injectibles, you may want to consider the three oral DMDs, although they also can have side effects (Gilenya works well for many, for example, but I had to stop after 19 days).
1028689 tn?1254441334 d rather inject daily then deal with the Rebif side effects and increase in depression! I have been on Copaxone for a week already and the ONLY side effect I have had is injection site stinging. No fever, No sweats, No fatigue, No muscle pain, and No other flu like symptoms. I hope things get better for you soon! Take Care!
Avatar f tn I work on a computer all day so it was very annoying and I broke down and went. And after a few MRIs and other tests this is where I am. I just had my first infusion last month and I am about to go for round two. And I feel worse than I did before.
Avatar f tn in addition to a few flu side effects, my lip has started twitching and was wondering if this too could be a side effect?
9264354 tn?1408743148 The effectiveness of both is very similar. It comes down to whether one can tolerate their respective side effects, and how they would fit into your lifestyle ie 3x week injection vs daily. I had a brief trial run on Rebif but had to discontinue as it elevated my liver enzymes too much. I never made it up to the full dose which may explain why I never experienced flu like symptoms. The shot itself was painless with no site reaction. I switched to Copaxone and was on it for six years.
12504580 tn?1485510437 Hi Loryna and welcome, It's possible your experiencing sensory side effects from the Copaxone but with MS it's just as possible for you to be experiencing another relapse. The general rule of thumb with potential relapses is to contact your neuro IF you experience something new 'and or' your previously remitted symptoms return 'and or' your everyday symptoms worsen for a period no less than 24-48 hours, and when your last relapse ended at least a month or more ago.
Avatar f tn hi Marizzy, and welcome to the forum. I can say that since this is your first post! I'm glad you have decided to join in the conversation. I am also a heart patient - I had a heart attack last year at the age of 53. I am fine but do remain aware of all things cardio. Have you called the Rebif hotline and talked to them about side effects? I am on copaxone and very know little about the other DMD's and their side effects, but I will look and see if I can find some answers.
704043 tn?1298056844 If you look back a page or two you will find several discussions on Copaxone and that specific side affect. Worth reading. I am sure you will find many, many answers on that particular thread. In the meantime, I would certainly give your Neuro a call to let them know what is going on. Perhaps a referrral to a cardiologist would help to rule in or out anything that is actually Cardio in nature versus side affect from the Copaxone.
667078 tn?1316000935 I ended up with one of the few side effects of Copaxone. Just in case this ever happens to you. My saliva duct under my tongue swelled and got *****. I did not have money nor did I know whether to go to my PCP or dentist. I looked it up on line and found a home remedy of gargling with salt and hydrogen peroxide. I also packed it with salt with a q tip. It was better the next day. Today I was researching something else and found an independent list of adverse effects of Copaxone.
505094 tn?1240317431 re confused and fearful. Have you looked up the side effects of progesterone? I was on that years ago and couldn't tolerate it, but for the life of me I can't remember what happpened. Like you, I too have been on loads of meds. In your place I would ask as much as you can during your biopsy, and would also bombard your PCP with questions. He or she should be guiding you through all of this. The stress factor makes things incredibly worse.
1936411 tn?1333831849 I checked on drugs.com - on the expanded side effects page. It looks like 20-25% of Copaxone users reported nausea. I don't think all these are necessarily related to Copaxone use, just reported while using it. Have you tested to see if it makes any difference to have "a little something" (as Pooh says) in your stomach before the nausea hits? Bear's of Very Little Brain undoubtedly suggest honey.
1707517 tn?1313247961 ve been using Rebif for just over 10 months now. The side effects slowly got less and less, and now as long as I take a couple Tytenol extra stength before injecting, I usually don't notice any side effects. I had an MRI a couple months ago that showed no changes from the one done a year previously. No matter which DMD you choose, the important thing is you're ARE choosing one. It's great you're taking a proactive approach to managing your MS.
Avatar m tn I've been on Copaxone for 3-4 months now. I don't really have anything to add that db hasn't already said about the site reactions and effectiveness of it. I will say that from my own experience with it, I'm happy with it. My sister was on Rebif, and had flu side-effects. That's why I'm taking Copaxone. Other than the site reactions, and a very very mild post-injection reaction (face became hot and flushed), I've not had any problems with it.
Avatar n tn I started out on Avonex and gave up on it after 9 months. The side effects were too debilitating for me (flu-like symptoms). I then switched to Copaxone and stayed on that for about three years. I then quit that because I didn’t like the indentations in my skin. Next on the list was Betaseron. I withstood the side effects for two years before I finally decided that the headaches and fatigue were too much to bear.
Avatar f tn I was leaning more towards copaxone, as well as my doctor.Has anyone been on this medication? What are the side effects like (if you had any) and did you notice a difference being on it? Any thoughts or comments would be much appreciated!!
Avatar n tn I just started taking Copaxone, last Friday. The injection site reactions are the biggest side effects with Copaxone. I've had no other side effects other than a little bit of anxiety after a shot was given and a feeling of something being different--which has gone away. The injection site reactions looked pretty impressionable, at first. The first five days they were about the size of a baseball of red area with about a half-dollar sized fluid-filled middle area.
1678656 tn?1369233818 I've been on coaxone now for about 2 months and have had no real side effects other than a little burning or mild swelling. Saturday after my shot in my stomach I started getting light headed and hot and my heart started racing. I sat there trying to take deep breaths and looked up at myself in the mirror and my face was bright red! I felt like my heart was about to explode out of my chest! I gathered my composure enough to get to my bed and I went to sleep.
420827 tn?1203354546 Yes, low blood components are potential side effects of all the CRAB drugs, including Copaxone. It is called Thrombocytopenia. But, lowered levels of al the blood lines, red cells, white cells and platelets (called pancytopenia) was observed rarely before Copaxone was released. As to how long the reaction of bone marrow suppression could last, I don't know. Other things, like viruses can also lower the cell counts. What are your doctors saying?