copaxone and ldn

You asked about taking LDN instead of copaxone. We have a many discussions on the forum about LDN and if you put LDN in the search box above, you will be able to pull up these discussion. I can only talk about copaxone since that is the treatment I chose. I have been on it over a year now and although you get site reaction, they mostly happen in the beginning of the treatment and get better over time, or they happen from time-to-time for no apparent reason.

Naltrexone is used for drug and alcohol rehab regimens and you absolutely cannot take any meds that have opoids in them while on LDN. LDN has been suggested for use in a whole lot of diseases, including Crohns, psoriasis, fibromyalgia, autism and cancer. It would be wonderful if we really do have one drug that can help so many disease, but the scientific proof is lacking. however, there are still a lot of people who swear that it works.

The best advice I can give you is to take your Copaxone religiously, and eat lots of raw fruits and vegetables. And fish. And nuts.

After I had a strange and awful reaction to Copaxone, I opted for LDN and at 3.0 mg per night its been great. I don't noticed any disease progression and I sure do sleep better. But one CANNOT be on narcotics, steroids or immune suppressant DMDs to take LDN. Its OK with Copaxone but not with the other DMDs for MS. Its inexpensive and with no serious side effects, why not try it?

I have read hundreds of drug reviews on various websites by unbiased individuals(not influenced by any medical establishment) and I have done research on Copaxone and found the following info about Copaxone on Wikipedia: (in quotations) "However, a 2004 Cochrane Medical review[8] pointed out that "Glatiramer acetate did not show any beneficial effect on the main outcome measures in MS, i.e. disease progression, and it does not substantially affect the risk of clinical relapses.

This could have been avoided if the doctor had only checked her list of meds and not started the LDN. Other than that LDN is very benign and has no known side effects. Personally, I believe that if someone can feel better with this disease (whether or not the LDN slows MS) then I am definitely all for it. Yay, for endorphins! Please pass the bowl! I have tried to be short, but accurate and fairly even handed in this. I do invite others to add their experiences.

ve tried LDN. Was on it for months, and it did nothing for me. I do however, know of several people that swear by it. I hope it works out for you!

I did bring up the medicine you all referenced (Rituximab) but he commented that it is not approved for Lupus/Sjogrens treatments and I would never get it covered ;-( I did get co-pay assistance for the Copaxone and I will only have to pay $35.00 per month and they will pick up the $12,800 balance.... unbeleiveable. I am still struggling a bit to understand if the reason why I have struggled to manage my Sjogrens is because it wasn't the Sjogrens, it was the MS... .

Rebif - so far, so good. Blood, LFTs and Thyroid are good.

After at least of 5 weeks of worsening effects from Copaxone and 8 weeks total, it's all over between us. I truly tried. Almost went to counseling. Arbitration was an option, and so on. The bottom line is that I had terrible allergic reactions that snowballed. I tried several kinds of antihistamines, plus Singulair, and a bunch of different creams. All I got were hives, bruises, welts, rashes and misery.

I have read about LDN and how it can improve autoimmune diseases, and autoimmune thyroid disease in particular.

Does anyone take LDN for their MS? and what do you think about it? Any info. would be appreciated.

Starting on a disease modifying drug (DMD) is not laying down to this disease - it is absolutely the best hope you have of keeping it in check and under control. LDN shows lots of promise and I believe is used much more in Europe than here in the US. Please learn more about copaxone and the other DMD's available - I am on copax and it really took little time to make it part of my daily routine. If I can do it, you certainly can as well.

org/posts/Multiple-Sclerosis/Anyone-here-still-in-Denial/show/1399303 At this time I have chosen no DMD, and I am taking an off-label drug called LDN (low dose naltrexone) Most medical persons and well as most people on this forum, do not recommend it, but after reading all the info on the DMD, and realized that they are at best 29% effective other then Tysabri, which is up to 68%, but comes with greater risks....My neuro agreed to allow me to try LDN.

Unfortunately, LDN has not been scientifically shown to either to halt the progression of MS or relieve the symptoms. Some people do find help with quality of life issues. If it is possible to take both LDN and a proven DMD (and I don't know whether it is), that might be a good idea for some. I myself would not take LDN rather than a DMD. But my main point here concerns Ren's neuro's comment that the interferons have ultimately that same success rated as Copaxone.

ok so Need some opinions here. I am currently on Copaxone and feel ok...BUT I have been a bit more tired lately and had some tingling that I have not had in a year or more. My herbalist suggested I check out LDN. I see my Nuro in June and am in the fact digging phase. I have read what I could on line but, much of what I have found so far, is a year or more old. Just curious if anyone here has been on it or is taking it and your experiance.

I tried Tecfedera for 6 months and it was wonderful but I developed an allergy. =( My doctor gave me information on Gilenya and Plegridy. Plegridy would probably do to me just like the other injections did, fluish all of the time. Gilenya just looks plain scary. Just not sure.....

Copaxone and ldn

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