copaxone and breastfeeding

Trying to get information, from fellow mommies, who have been on copaxone and if you breast fed and went on copaxone right after delivery...did you have any negative side effects. I have my opinions and done my reseearch, talked to all types of doctors, lactation, I don't need persuaded,just looking for personal experiences.

I'm a mother of a 5 month old boy. I have been having symptoms of a relapse (although I was hoping that it was just a pinched nerve or something) for a couple of months now. I went for an appointment with my neuro (who is not an MS "specialist", but is that really necessary?) a couple of weeks ago and explained to her what I have been feeling and she was very quick to tell me that it was, without a doubt, classic symptoms of a relapse.

I heard that some symptoms can almost disappear when pregnant. I am also on copaxone and my neuro said to stay on it until I find out that I am pregnant. I have read that you should stop using your meds when you start trying to get pregnant. It could take a few months to get pregnant, I need some info or personnal stories Thanks everyone!!

m going thru my second round of IV steroids. I am supposed to start Copaxone tomorrow and am nervous about the side effects and if I should start it while going thru Steroid treatments. Any advice would be much appreciated!

Hi and welcome, As far as i'm aware IV solumedrol and Copaxone are often being done together, i've never personally heard of specific interaction problems, usually the choices you get is to stay on Copaxone and do the IV Steroid (with or without oral taper) or stay on Copaxone and skip the Steroids if it's not a major relapse.

Hi, I to am on Copaxone and have been for 4 months as well, and I can't say that I have gained weight... sorry, but I too watch calories all the time so have not noticed to much difference. Hope you can get to the bottom of it ...

my husband is on copaxone and his back hurts severely. also his hands hurt and he is having asthma type reactions. also he is having dizziness and frequency in urinating. eye problems as well. please tell me if anyone else is having these disturbing things.

(Pill and other forms) I too, was loosing CLUMPS of hair and it has now stopped. I have been on Copaxone for 8 months now and had the same experiance at the 4-5 month mark. Best wishes!!!

I went off the copaxone when I went into the hospital and have been off of it for almost 2 months now. How long does the copaxone stay in your system after you stop taking it? Anyone have low platelet counts?

I'll start with the bad - I started back on Copaxone and it's been H*LL! When I first used Copaxone it was a breeze, not issues whatsoever. This time the pain from the injections is extreme and I have fist size bruises all over my thighs and tummy! I hate it! The good news is I went to see the Optic Neurologist this week and she is wonderful. I've never met a Doctor who takes such care to make sure I understand everything that is happening to me.

Ive been on Copaxone for 5 months now and 2 months in had a mild flair of symptoms then it went away. It was trigeminal neuralgia for 3 days then it went away for 3 days then I was hit with extreme fatigue for 3 days where I had to sleep. I developed jumpy jerky arms and legs but medication helped this.

I went off the copaxone when I went into the hospital and have been off of it for almost 2 months now. How long does the copaxone stay in your system after you stop taking it? Has anyone had problems with low platelet count with MS or medicines?

In Feb 08 I began taking Copaxone for MS. Shortly after I began using Copaxone, the right side of my tongue went numb. I initially stopped taking the Copaxone to see if it would resolve itself. It didn't and I continued with the Copaxone. The right side of my tongue is still numb, the numbness on the right side of my mouth has resolved mostly but now I have the most horribly dry mouth. I have tried everything--even so much as sucking on a mouth full of vinegar.

I'm curious how long it took for those on Copaxone for the welts and redness to lessen. I've been on Copaxone since June and it seems they are getting worse. The first two or so weeks I did not have much of a problem. Then I started to get large red patches/lumps on my arms. They can run the length of my back arm where I give my shots. Weeks later they started to get large on my legs (the size on my entire hand at times). Eventually they started to get large on my hips and abdomen.

I have MS treated with Copaxone. It has been suggested that I try a product called PROTEIN 7 SYNTHESIS...

Jenny, Count me as a yes! I think I am the post that Mand was talking about (the Avonex user). I am losing hair by the handfuls each day and the nurse that calls to check on me said that 4% of people in the trials reported hair loss as a problem, yuck. I am sticking with it for the time being as I have already been on copaxone and it failed to stop my progression ( I didn't lose my hair on that one).

You are so very smart Laura. Like my friend, Immesco (spelling), I enjoy your posts and agree with everything you say! You are very informative to us newbies, we need all the help we can get :) I spoke with Shared Solutions who reported the side affect to the FDA during my call and are going to follow up in a month. I really don't want to change drugs as this is the only side affect I'm having with the Copaxone and I don't feel physically bad.

Just want to share this with those who may be new to Copaxone and having trouble. Initially I found the sting and buring to be quite uncomfortable, so it's nice to see that my body appears to have adjusted well to this foreign invader.

I went for my 6 month followup on copaxone and post dx. The good news is that the copaxone seems to be "doing its job" cause no new lesions. Bad news is that I was dx'd pretty advanced with a bunch of lesions. They told me the damage I already have isn't going away. The rheumatologist wants to figure out a drug that will cover both the lupus and the ms. My neuro started talking about tysabri. It scares the **** out of me. I just looked it up.

Copaxone and breastfeeding

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