Cellcept for uveitis
Common Questions and Answers about Cellcept for uveitis
cellcept
They are going to wein me off of the Prednisone once I am up to the highest dosage of Cellcept which is 2000mg a day. I am starting at 500mg for 5 days, then 1000mg for 5 days, blood work, and then 2000mg.
Most websites don't speak specifically about vasculitis of the eyes. All autoimmune disease tests came up negative. I want to know more about this disease. I also have several other issues with my eyes including Chronic Uveitis and Pars planitis, and a few more.
m still suffering from the toxcity and the allergic reaction I had to it. I asked him why I was kept on it for so long and he said Cellcept was too expensive, however my medication was fully covered.
the thing that I'm very curious about is my eye itched really bad from the time inflammation started until it stopped any clues on that?
The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.
Having started the TB medication for a week we now wish to continue her treatment for UVEITIS . As I came to know that Steroid is the only option for treating Uveitis I am afraid of both (TB and Uveitis) the medicines that will add extra weights in her body. Any solution to that? Or any expert comment to help me.
I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease.
Let me know if I can answer any questions.
Like heart disease, uveitis ranges from a single episode that is easily controled and never comes back to relentless progression to blindness. And everything in between. The treatment of uveitis has improved dramatically in the last 2 decades. All the patient's with uveitis that I've managed have done well with IOL surgery.
Anyone having cataract surgery should not expect perfect vision because other parts of the eye are usually affected by disease or age.
Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down.
I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.
don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.
(all specialist doctors were and are at medical school centers) The new EP (also a sarcoid expert) believed it was sarcoid and placed recorder for heart. After reviewing results for several months, recommended placing on sotolol and implantation of defibrillator/pacemaker to reduce risk of cardiac arrest because of nonsustained VT. This was done in Feb 2019. Complications occurred - (wire perforation causing pericardial effusion and cardiac tamponade).
actually be experienced by pwMS, if it is caused specifically by MS is difficult to pin down, the uveitis stats are quite small when they are looking at a possible connection for uveitis as a sx of MS.
To explain what i'm trying to say, one example of the disparity would be the larger number of dx uveitis patients in a study and the MSers are commonly in the minoriety eg 1267 uveitis patents and only 41 dx MSers. Which is just over a 3% sample base and means the other 96.
when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
Thank you so much for your response. I was told that both uveitis and shingles can be brought on by stress in the body. I was hoping that if there were diseases that could cause both I might be able to narrow the list as I don't seem to be getting a lot of assistance on this end. I will definitely look for a uveitis specialist - thank you!!
I've had uveitis for three years, treated with cortisone drops, pred forte drops, dilating drops and a cortisone shot in left eye. Lost most of vision in that eye because optic nerve was mostly destroyed.
I did research on websites, and saw that uveitis is an auto immune disease and saw a rheumatologist who prescribed Methotrexate. Uveitis went into remission immediately, and I haven't had a recurrence in 2 years!
Based on retrospective studies with cohorts of n ≥ 1,000 patients, we estimate that the prevalence of MS among patients with uveitis is ∼1%, and the prevalence of uveitis among patients with MS is ∼1%, which in both cases is considerably higher than in the general population according to studies on prevalence in western countries.
Results from larger studies are to be assumed as the closest to a true estimate.
She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
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