Cellcept for scleroderma

Common Questions and Answers about Cellcept for scleroderma

cellcept

778275 tn?1326913623 I really appreciate your opinion. Do you think there is more risk for Cellcept for a man at 70 YO that say at 50? I also have several Herpes antibodies including Zoster, CMV and Epstein Barr (mononucleosis at 15). Would that pose another risk? I believe the` Herpes antobodies are the cause of my Myasthenia There is a model for that pathogenesis. If you lower my resistence to Herpes with Cellcept, the MG could worsen - doesn't that make sense? Fandangoman, M.S.,Ed.D.
Avatar f tn The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.
Avatar n tn I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
Avatar n tn I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.
Avatar f tn Anyone on cellcept having back pain? I've been having back pain for a couple of weeks now, wake up earlier and earlier in the morning with my back aching and when I move it I get these stabbing pains. It all goes away when I get up, and I've managed to sleep a bit in the morning in a half-seated position, so it's really related to lying down. I just read someplace that cellcept can cause back pain, but I haven't been able to find any info on what kind of pain. Could this be it?
1618577 tn?1388799444 My bloodwork says my ANA is positive, my SED rate is 25 which I know is borderline abnormal, negative for celiac, cbc is ok, iron is a tiny bit low along with B12 but its still in normal range. Waiting for results back for lupus, scleroderma, RA, etc, but I am frustrated because I know I feel sick and my doctors keep jerking me around.
Avatar n tn My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.
1135761 tn?1260557094 my doctors have reduced my cellcept in half. 1000 mg 2x day to 500 mg 2x day. they said my symptoms are common and reducing the cellcept should help. any comment?
Avatar f tn don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.
1087481 tn?1391442376 There are several blood tests that are relatively, but not 100%, specific for scleroderma. I, for example, have a high ANA and a titer pattern that often goes with scleroderma. However, I have no scleroderma symptoms, and in fact, have many more symptoms of sjogren's syndrome. So I have not been diagnosed with anything definitely.
Avatar n tn when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
Avatar f tn I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?
1549643 tn?1495759353 What does scleroderma look like? Picture attached but I also have thick and whitened discoloration on bottom of my feet. (ANA/RNP positive). This discussion is related to Concerned about ANA 1:640. This discussion is related to <a href="/posts/Autoimmune-Disorders/Concerned-about-ANA-1640/show/1854450">Concerned about ANA 1:640</a>.
1611319 tn?1378618399 I am just now starting to get on my feet. Thank You for the article. We are still treating with Cellcept after finally being weaned off of high doses of prednisone. horrible side effects...
645390 tn?1338555377 I have been on CellCept for about 2 years now with no problems. I am classed as Progressive and it seems to be slowing down the progression of my symptoms. How much your immune system is suppressed depends on the dosage you are taking. I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better.
Avatar f tn She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
Avatar m tn 5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?
645800 tn?1466860955 t high due to my taking of the CellCept as it suppress my immune system. She finally gave me an RX for Zithromax to see if that will clear things up. I also talked to her about getting hearing aids since I finally got service connection for my hearing. She put in a consult request for that. Hopefully I will get an appointment for that before the new year. I was first told I needed hearing aids about 10 years ago but could never afford to get them. There was some good new...
960462 tn?1284991345 I just started cellcept yesterday, so having fears and questions, but my sarcoid has progressed into the heart and liver so hopefully yes it will slow it down, but ask your sarcoid doc tons of questions cause after reading all the what ifs I'm rather worried about this drug
Avatar f tn I have raynaud and dealt with ulcerations for most of 30 years. I have low thyroid now also and have had reflux for some time now and on meds. I now have barretts and the next egd showed dysplasia stage 1. Is there a relationship between cancer and scleroderma? I am involved with a small scleroderma group and we have had about 11 deaths to cancer with scleroderma. My sister also had scleroderma and ended up with lung cancer. The doctor is talking about treatment if i get any closer to cancer.
Avatar f tn s Hospital yesterday and was told by the doctor that I have Primary Progressive MS. She gave me 3 prescriptions - one for Cellcept to slow the progress, one for PT and the third for a scooter. That last one got me teary. I thought I was years away from that but now see that it is for the best. It will give me what I need to go out more. Also had to get the H1N1 vaccine and the pneumonia vaccine because she said Cellcept suppresses the immune system. Not sure there's much more to say.
645800 tn?1466860955 After the usual banter about how I have been doing were I told him about the severe right ankle sprain 3 weeks earlier that required Morphine for the pain and 1 week on crutches he started looking through the images from the MRI. After a little while he asked me if the MRI was done on a open or closed MRI machine. Gives you some idea of the quality of the MRI done at the VA. It was done on 1.5T closed MRI.
Avatar n tn //www.mayoclinic.org/diseases-conditions/scleroderma/symptoms-causes/syc-20351952 Scleroderma is group of rare diseases that involve the hardening and tightening of the skin and connective tissues and can involve the esophagus. I would recommend calling your doctor about the difficulty swallowing. Let us know how you are doing.