Cellcept for lupus
Common Questions and Answers about Cellcept for lupus
cellcept
I see ou wrote this a while back but I am hoping you are still here and will see my question. I am supposed to start taking Cellcept for Lupus and I can't find anyone who can tell me anything about how they did on it. Are you there? Did you have any side effects while on it?
My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept. Since then my numbers have been great. The ast and alt are 19. They were in the 1700's...Its been a long battle. As far as the aching I have had nothing. Have they looked in to you having lupus as well? I know a lot of people that have spoken on this forum have AIH and lupus.
The doctor - does he suspect virus infection, I am not sure - prescribed a blood test, result of which comes out after a week or so. Is this situation - TLC at 2.8 for two weeks now despite CellCept being reduced to Nil mg - is so serious a problem as to cause worry? I am not sure how serious is this is - I am not doctor.
I was diagnosed with Lupus Nephritus IV , my doctor had me do a 3 day IV treatment of 1g solu Medrol , each, that was a week ago. I was already on prednisone 60 mg a day and right before the treatment Cellcept was added. I am feeling like I got hit by bus ! I read elsewhere that most of my current issues are withdrawal from the Solu Medrol . I was wondering if anyone else has had this treatment and how long it took to feel" normal" ?
There are many medications out there that are not FDA approved for what they are being successfully used for. Cellcept is another one. I did not do well on Cellcept but a woman I met online that lives in North Carolina claims that is the medication that put her into remission a few years ago.
How have you done on Imuran so far? What dosage are you on? Has it caused your ANA to go down? Are your symptoms gone or at least under control?
I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?
I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease.
Let me know if I can answer any questions.
don't know exactly what AIH is, but have been on CellCept for about 4 years. just eat 6 small meals a day, exercise as regularly as you can, get as much rest as you need. worrying about the weight will actually make it worse. been fighting this battle almost 20 years myself. when I cannot get out or walk, moving my extremities in a chair burns calories, etc. something's better than nothing... keep up the good work.
when you say adding some cellcept might be a good idea,does that include trying to lower my prograf some?
in discussion with my friend , he told me that doctor wants to him on CELL CEPT (medicament for lupus and ...). I could not find the connection why to go to CELLCEPT ?!?
I am afraid that the government ( as we have some medicament on "positive list" means prescription and covering by the state health insurance) wants to downsize the expenses of the budget from the health insurance part.
Hi, Welcome to the MS Forum. You have mistakenly posted your question on the Patient-to-Patient Support MS Forum and not the Expert Forum where Dr. Kantor can see and answer your question.
Please click on this link and post your question to Dr. Kantor.
http://www.medhelp.org/posts/show/787897?post_id=post_4117801
He only takes one question for free a day, but if you want to and you can't seem to get your question in, then you can pay $25 for a certain answer.
She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).
I have been on Plaquenil since last April. It has done wonders for me. I am still waiting for a definitive diagnosis of RA and/or Lupus but is looking most like Lupus.
I am usually very sensitive to meds and easily react. I have tolerated this drug quite easily. In the first month or so I did have a bit of nausea and very vivid dreaming but once I was used to it that has disappeared. It will take 2 or 3 months before you start to see improvements.
5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also.
Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now.
What could be reason?
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