cellcept and polymyositis

I am considering just staying on Prednizone for a little while longer and getting pregnant, and then going on cellcept. I have been on cellcept one week tomorrow, and think it would not be too late to discontinue (after talking to my doctor again) since I am also still on 40mg of prednizone every day. Do you have any opinions about cellcept and pregnancy?

I see ou wrote this a while back but I am hoping you are still here and will see my question. I am supposed to start taking Cellcept for Lupus and I can't find anyone who can tell me anything about how they did on it. Are you there? Did you have any side effects while on it?

I take Cellcept for 2 and a half year. How long will last taking of this medicine because my hair and stomack can't stand it any more?

bad taste in mouth, aches and pains with muscles and joints, diarrhea, and headache. No fever or nausea. Am I just complaining or should I take more seriously. I had blood drawn today. My next appointment with my transplant team is june 15.

I have polymyositis and searching for people with similar circumstances to share treatments and resources. I was in a coma for about four months, hospitalized for approximately 18 months and in a wheelchair. I am in physical therapy but the symptoms of my illness interrupt progress. Is there anyone out there with similar challenges?

Autoimmune disorders tend to run in families. My friend has polymyositis and she also thought it was a neurologic disorder for a long time. The diseases are very different but the symptoms can be similiar. In myositis the muscles are weak so the gait is off etc...In MS the nerves are damaged so the gait is off or there is a lesion in the brain causing balance problems etc....My friend has numbness, tingling etc from her muscle problems. MS causes these symptoms too.

I take Cellcept and only Cellcept. I've been on it now for over a month. My MS doctor prescribed it for my PPMS since there's really no treatment for PPMS. I haven't had any side effects from it. When I first started on it, I did get some headaches but nothing I couldn't handle. In my case, I take it to hopefully slow down the progression of my particular form of this disease. Let me know if I can answer any questions.

Till two weeks back she was on PanGraaf 4mg, Wysolone (steroid) 15mg and CellCept 1000 mg a day. At that time (i.e. two weeks back) her blood result showed that her TLC has slipped to below normal (which is minimum 4) and was showing as 2.8. Her Haemoglobin seems to have settled around 11.2. All other results including Blood, LFT, Creatine etc show normal. Doctor reduced her CellCept to 500 mg (from 1000mg) and increased PanGraaf to 5 mg (from 4mg) and Wysolone (steroid) to 12.5mg (from 15 mg).

that affected my legs so my Dr. just prescribed Cellcept. I filled the prescription yesterday and was scared to death after reading the literature on it. What is PPMS? I will be interested in seeing if anyone has used this medication too. Sunnyb.

After a upper respiratory infection last month I have been having someone more weaknesses and even a slight breathing problem at times, so he wants to put me on Cellcept. The problem is Cellcept can cause Lymphoma and other side effects and infection risk,. I want to get off Prednisone due to weight gain and creeping up hypertension and the Mestinin digestive problems are a real pain.

5mg and tenofovir 300mg) and prograf, cellcept wysolone etc. Two months back entacavir was withdrawn and I am now treated with tenofovir, prograf(6mg), cellcept(1000mg) and Magnesium suppliment. Almost at the same time( 2months back) I suffered from maleria also. Since then SGOT and SGPT are gradually rising from normal level, and they are now 69 and 46 level( normal range is 4) and rose to 3.2 almost one month back but it goes down to 2.3 now. What could be reason?

I have been diagnosed with CIDP, and have gone through the "normal" protocol.. prednisone, IvIG, plasmapheresis, with no real help. My neurologist now suggests therapy with cytoxan or cellcept. He is "saving" the stem cell/bone marrow transplant as a last resort. I have read all of the info on both drugs and the risk/benefit for each.

I have had a cat scan of my lumbar, and an MRI of my lumbar and C-Spine. Tonnes of blood work, all ok. And now i am being sent to a Neurolologist. 2 diseases have come up with my doctor - Myesthenia Gravis, and Polymyositis. But when i look the two up, i have no facial weakness, no rash, just severely weak and throbbing legs and arms, and extreme exhaustion. I could sleep more than i am awake if i allow myself.

I am being treated for Polymyositis at VA Hospital and put a claim in for Agent Orange in May 2011. The board has asked for more evidence in support of the exposure causing my disease. Does anyone have further evidence? All I can find on the Internet is a denial of claim from 2003.

I am on 5 mg of prednisone and cellcept as well. Can I ask why you stopped taking the cellcept? My Dr is trying to lower me off of the prednisone all together and just stay on the cellcept. I was on 10 mg of pred 4 weeks ago, down to 7.5 mg 2 weeks ago and just got reduced to 5 mg. My numbers are staying in great shape, but I am still holding steady on the cellcept. I have been battling AIH for a year and a half. Nothing has worked w/the prednisone accept for cellcept.

adding the cellcept would be to try and lower the prograf concurrently

These have all been coming and going every day along with a temp that just before taking my CellCept will be around 99.2 - 99.6. After taking my medication my temp drops to my normal 96.6 - 97.4 temp range. So I guess that means the CellCept is suppressing my immune system? LOL.

Right now my doc is tring Cellcept. The jury is still out. But I have been on steroids, Plaquenil, Arava, Methotrexate and now Cellcept.

I hate to ask my doctors the question of this taking my life and how soon. I am on prednisone that we are weaning off and Cellcept 3000 mg per day. It was considered in the mild to moderate stages, but the docs are not sure how this should be treated. no studies have been done on this and am kinda in limbo....

I have been on CellCept for about 2 years now with no problems. I am classed as Progressive and it seems to be slowing down the progression of my symptoms. How much your immune system is suppressed depends on the dosage you are taking. I am on 2000mg daily (which is considered a high dosage) and have only gotten mildly sick once in those 2 years. At that time my PC just had me stop the CellCept while taking an antibiotic for 2 weeks and I was all better.

i think the Dr wants to start, cellcept and eliminate diazapam nd steroids....after having such relief finally,after so long.. I am afraid.Also of the side effects of cellcept and having massive pain returned. But which side effects are going to be worse? Preds or cellcept. I will research and let you know,. There are other drugs, but with heart and clogged arteries, i am not a candidate... Hang in there. Advil helps. Tons of it, Percocet if you can find a Dr who will write it,.....

My mother had liver transplant two years back. She had chronic liver problem (liver scan showed rough surface) before transplant but had no HCV. For the last one year, her liver enzymes have been very high (GGT can touch 1800, for example). When that happens, the doctor increases PanGraf / Cellcept dosage and a particular steroid (wysolone). After that the enzymes go back to normal - except GGT which goes down but still remains well above normal (say, falls from 1800 to 300).

I just started cellcept yesterday, so having fears and questions, but my sarcoid has progressed into the heart and liver so hopefully yes it will slow it down, but ask your sarcoid doc tons of questions cause after reading all the what ifs I'm rather worried about this drug

Because of the dual DX the Vanderbilt Neuro prescribed the CellCept while the VA deals with filling the RX and any other issues that come up ( brace for foot, Gabapentin for tremors, etc. ). Since the Vanderbilt Neuro is fee-based I can only see him when the VA approves visits ( usually 6-7 months in between visits ) and he also has no privileges at the VA. As such I can't go to the Vanderbilt Neuro if I am having some kind of problem.

My Neuro has me on an immunosuppressant (CellCept 2000mg ) I have been on the CellCept a little over 6 months and it seems to be helping with both the SS and MS. I have noticed that my symptoms ( including fatigue ) have not been as bad...though I am still getting worse... just not as fast. But it could also just be a cycle of less decline and not due to the CellCept.

The procedure is used to treat a variety of disorders, including Guillain-Barré syndrome, lupus, and other autoimmune diseases. There were immunologic studies done in patients with polymyositis (PM) with plasmapheresis therapy combined with immunosuppressive medications. This has produced positive results in severe cases of Polymyositis unresponsive to drug therapy alone. Talk to your doctor about this. Take care and best regards.

This can be helped by monthly breast, testicular and skin self examination and routine medical check-ups. PAP smears, breast exams, testicular exams, and skin cancer screening should be done by your physician every year. Other general measures should also be taken.

Cellcept and polymyositis

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