azithromycin in cf

Sorry for the last post, my computer is having hiccups and sent it off before I was finished. It includes two links to two large online discussion groups run by persons with CF and/or their families, there are many more smaller groups on groups.yahoo. I'm the mom of a 14 year old with CF but I have a number of online friends with CF who are in their 40s, 50s, 60's and even two in their 70s. So yes there are a few older PWCF (persons with CF) out there.

Was your son screened for CF as a newborn? It's done in the US, but I'm not sure about other countries. There are other conditions that are associated with this, and all can only be diagnosed by a doctor - lupus, diabetes, thyroid disorder - https://www.healthline.com/health/pruney-fingers If you are concerned, he needs to see his doctor. Wishing you the best.

My husband has cf and has lots of stomach problems in a yr we have been in the hospital for a bowl obstructing 4 times one stay was a month long and every time he has had something wrong with his lungs phonemia 3 times and this time its a staph infection in his lungs Wat would be the best meds for him to get rid of it and we have kids 8 and 6 can they get it and Wat do I do to make sure they don't.

Should your physician not have a strong interest in CF or, for that matter, interest and expertise in chronic respiratory disease, you and he/she would do well to refer you to the nearest Cystic Fibrosis Clinic for thorough evaluation.

If I had tested positive, my husband would have been tested to see if he was a carrier. In order for the baby to have CF, both parents would have to carry the gene. No history of CF in my family...so no surprise the test showed I am not a carrier. It is good info to know tho...just one less thing to worry about (or one more if test positive). The other testing (screening) I don't find helpful for older women because of the high rate of false positives.

m a carrier. This is supposedly a rare condition that can occur in CF carriers (you would know by now if you had CF). If you have been ttc a while and your OB knows you are ttc, chances are s/he has screened you for CF. If not, it's a simple blood test. When we found out I was a carrier, they tested DH. Since he is not a carrier, they had no concerns about the babies.

You have cystic fibrosis and digestive problems are very common in CF patients. The antibiotic use for CF in your childhood is very common and is what kept you alive until how. Have you been checked for C Diff? Have you talked to your CF doctor about your problems?

Based on my symptoms and understanding of the conditions, I definitely have sleep apnea, may have CCI and do not have ES. I am located in northeastern Florida so would like to see a specialist in this area. I have been referred to a NS at St. Vincent's Spine & Brain. I do not know how knowledgeable he is about CF though.

oh yeah, neither one of us have a history of CF in our families and we have a 2 year old that is just perfect.

Have you actually been diagnosed with cf or are you just actually carrier. I think there is a one in 4 chance of baby having cf if baby daddy has the gene. But your best talking to a genetic councillor about it.

during intercourse, is this cf? Or, is this just from being aroused? Would this count in place of the milly egg white cf before ovulation or does it have to be that consistency to conceive?

My son has cf but remains healthy at 11 months.statistically if mother and father are carrier's theres a 1 in 4 chance of baby havjng cf, a 2 in 4 chance of it being a carrier and a 1 in 4 chance of having no cf gene at all, which means its 75% likely the baby wont have cf.geneticslly for you to be a carrier one of ur parents needed to have been a carrier.

We have tried several different formulas, been to three different pediatric doctors all say they dont know try someone else. The next doc to visit in two weeks is an infant GI doctor in st louis. Some are thinking maybe CF but not enough symptoms. He is a normal healthy on track 8 month old baby, just cant keep food from going through the body without absorbing the nutrients.

I have an aunt who lost one eye in a car accident and is legally blind in the other (she is CF in the remaining eye from a retina detachment and cornea damage in the same car crash). She has done wonderfully with training from a group called Lighthouse for the Blind (this is in the US but there are similar organizations in other countries).

He may also develop diabetes later in life. Based on the genetic test he does not have CF but is CRMS. We are going to monitor him carefully as he could still have an other mutation that has not yet been discovered or that was missed by the test - he tends to often be congested and has asthma as well. Your daughter seems to have constipation, my son as well: he now drinks Benefiber all day (powder fruit package). Do you give her the Creon with meals and snacks?

i called him and his nurse said he wasnt in but i should be fine just not to take a lot ...have any of you taken cf ? If so is it still ok? Im FREAKING OUT!!

He has already been seen by a rheumatologist who saw no sign of arthitis and suggested he be seen by a gastroenterologist. We took him to the GI in July. He ordered two fecal fat labs. Both came back abnormal. He is now testing for cystic fibrosis and celiac disease. I am a carrier of the cystic fibrosis mutation delta F508. My husband's carrier screen came back negative five years ago. My son is on a GFCF diet except for once in awhile when we go out to eat.

my sister has been told here 5 week old has cf but looking at all the symptoms and what not we are hoping for a glimmer of hope here is is a bit of history I the aunty are a cf carrier only found out due to having test done before fertility treatment so thinking my sister is too and not sure about her husband anyway.. so her newborn screening has come back positive but she doesn't taste salty or have any cough or wheezing nothing of the sort..

Anyone ever notice that whenever they take Zithromax (azithromycin) that their asthma seems better? I did...I am on Zithromax chronically for my infections and for anti inflammatory reasons (atypical CF). Prior to being put on this over a year ago, I was wheezing every day it seemed and I had more coughing. It also seemed that my asthma component took more to control. After a few weeks on the stuff, I noticed that my symptoms actually improved.

I work as a nurse and used to work on a floor that specialized in adult CFers. CF patients almost always get diabetes but from my experience it happens more in late teens early adult not that it can't happen to a five year old. I believe te reason they get has to do with the thick secretions and the fact that the pancreas almost gets jammed. ( don't quote me on that) but I think it has to do with the same reason men are often sterile because their vas deferens get clogged.

he also has salty skin but the genetic team say my son only has a carrier gene of cf will he haveany symptons throughout his life similar to a full cf carrier?

Can i just say that it is not true that most people with CF do not live past 20!Back in the 80s children with CF did not live necessarily that lonv but now medicine has changed my friend has CF and she is 27 and juat had a baby!she has to take medicine but aoart from that she is fine.Medicine has changed so much these day!If you are worried about it like the previous comment you can have medical testing in the future.

I am also a carrier - I actually knew there was a good chance of it though as I had a cousin with CF (he passed in 1987 at age 21). My DH was tested and is not a carrier - so that put our odds at 1 in 900 or something like that, which I'll take over 1 in 4!! The reason that they put it at 900 is because they only test for the most common 21 strains (or something like that) so they cannot be completely 100% positive that DH isn't a carrier of another strain. But DD is fine!

I had my 17 week scan on July 1st and everything looked great, baby measured exactly 17 weeks, which was were I was. The only thing that had my DR. and the sono tech concerned was the fact that the baby's bowels looked too bright in the u/s which could be a soft marker for CF. I have to go in for a level 2 sono on July 23...THEY ARE MAKING ME WAIT 3 WEEKS!!! I'm really concerned and I hope everything is okay. Has anyone experienced this before? Please share!

Azithromycin in cf

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