Zonegran infantile spasms
Common Questions and Answers about Zonegran infantile spasms
zonegran
I have seen infantile spasms while working on a pediatric unit. It is a serious seizure disorder that often causes cognitive/developmental delays. Doctors often down-play the severity of this disease, but the majority of the children that I have seen with this end up needing some for of long-term care. I am really sorry that you are going through this. Here is a website with some more info for you: http://www.aboutkidshealth.ca/Epilepsy/Infantile-Spasms.aspx?
Hello,
Several antiepileptic drugs and a hormonal therapy can be used to treat infantile spasms and valproate is tried as first line drug. Sometimes doctors start withv igabatrin (Sabril) which is often used as the initial therapy because it is relatively safe (especially for short-term use) and effective. If vigabatrin does not control the seizures in 3 or 4 days, adrenocorticotropic hormone (ACTH) is usually used next. ACTH stops seizures in more than half of children with infantile spasms.
s movements are manifestations of a seizure disorder known as infantile spasms (AKA hypsarrhythmia). The classical description of these spells are similar to what you describe: brief, jerking of the child, oftentimes with the hands flipping back and frequently occurring multiple times in clusters. Infantile spasms are generally divided into 2 broad categories: symptomatic and idiopathic/cryptogenic, the latter category a wastebasket for all of the cases that have no attributable etiology.
Hi, my son had infantile spasms which started at approx 3 months old, his eyes would squint and roll up, not fully but as if he was straining, both arms would raise up at the same time, this typically happened on waking or before sleep, I was told for weeks it wasnt anything serious or it was colic.. I video taped him doing theses movements and pushed and pushed to see a neurologist, when they saw it they did say it looked like a fit, prescribed him phenobarbitone* and sent us home...
Since October I have tried Lortab (3 strengths), gabapentin, Lyrica, Ultram, Relafen, Zonegran, and Trileptal. I am also on Cymbalta and Ambien. Any ideas/help would be greatly appreciated.
Greetings. My daughter Emma was diagnosed at 4 months with Infantile spasms and resolved after two days on Acthar Gel. She continued treatment for 3 weeks 40 ml injections, tolerated acthar well and until recently was asymptomatic. Her diagnosis was cryptogenic IS.
Recently she started doing a new movement. She just spent 4 days at all children's and her Veeg was normal, her Contrast MRI including the basil ganglia was normal, her reflux test was negative.
Hello, I very much need an answer because my doctor will not give me a straight answer. I'm currently on Lamictal (800mg a day) and Zonegran (200mg a day) and I'm a college student so I tend to drink. I've never had a seizure while consuming alcohol but I'm terrified when doing so. So heres my question...
When I drink (beer) with my meds, will it bring on a seizure? or just enhance the side effects?
Please I very much need to know asap! Maybe even stories would helpl too.
t think of them at this time)
I am now being treated with Zonegran, Depakote. The Zonegran was working for a little while but I have seemed to reach a plateau. I have not been migraine free at all since November, but there have been times where my migraines have been less painful. I work for a health insurance company and I am on the computer for 8 hours a day. I have been unalbe to work a full time scheule for the past 3 months due to my migraines.
I saw a response about what was referred to as benign infantile seizures. My neice has seizures that started at about 2 months old. My sister was told that she would probably grow out of it by the age of 6 months. She is now 2 and a half years old. The description below that I saw on this site sounds like what she is going through:
"It is reassuring that thus far all the tests are normal. What you describe is what we would also call infantile seizures.
There is a strong history of atopy in the family. At this point infantile eczema is still a likely differential. The family history of dermatitis and the way you described the skin condition may still suggest that this is so. In infants the cheek seems to be the most common area involved. Infantile eczema may have variable appearances .They do not have a definite characteristic. So ,this is still a likely differential here.
I suggest you seek second opinion with another dermatologist .
Infantile...
as we call them were occurring. The neurologist that our pediatrician sent us to ruled out infantile spasms, which is what our home video looked like. Since no one had any idea what it was and she was meeting milestones, we took a wait and see attitude. Now she is 10, and this still occurs occasionally while she sleeps. When she first wakes up in continues for an hour or so. She says it hurts; she says it is like her breathing is stuck.
MY son is 5 and half year old with infantile easotropia(accomoditive convergent squint).He has gone through dialted fundus test and some eye specialists say child is amblyopic in both eyes and some says he doesnt have ambloypia.
So apart from dialted fudus test , is there any other test to know amblyopic.
My 4 and a half month old daughter also has what look like breathing spasms that only occur after she has been crying. To date these episodes happened at two months after crying for some time while I was bathing, and at 4 months old after her scheduled immunization shots and once again after she had woken up frightened and found she was alone. Each time it happens she has been very upset and has been crying for a long time.
The EEG results were good and the neurologist said it was definitely not seizures or Infantile Spasms. They said it is just myoclonus which is probably being caused by a immature nervous system which he should outgrow and is nothing to worry about. They were very grateful that we brought in the video and they requested a copy. If I can get it up on youtube I will post a link.
He is now able to start learning, and he came off of all medication except for 75 mg of zonegran. He was on 1400mg a day. It has made a huge difference. Hope this helps.
I do not know who to go see about the aura, I had my eyes checked when the doctors were thought I had MS and I have 20-20 vision and no floaters. I presently see a neurologist who has me on zonegran 2oo mg and flexoril 3 times a day and Diflucan as needed and Maxalt. When the headaches get out of control she puts me on prednisone. I also see a physical therapist at her office weekly for the headaches. I have had trigger point injections ( did not help).
Recommended
