Zonegran for seizures

Common Questions and Answers about Zonegran for seizures

zonegran

I am on 100mg zonegran 4 at bedtime. I am getting married in April and we are going to be trying for children not to long after the wedding. I am nervous because of the medicine that I am on should I change it to something else or just stay on this one?
gp) (m-migraines, s-seizures, p-psych, h-heart, gp-general/other pain, a-anxiety, n-nausea) I keep a journal for these very reasons. I couldn't recall these things if I didn't. I have been doing a lot of research about all of the medicines that could help, including off label uses. Some of them I took for other causes but noted that there were no changes in my migraines while I was on them. I have tried all of them for atleast 2 weeks each, if not more.
Each patient is different. Usually, the seizures are well controlled with valproate but some are not. Zonegran is a good second choice, as well as lamictal, Keppra, or topiramide. The seizures are usually life long, and most of our patients do not have dementia, but are high functioning or normal. Although a chromosomal defect has been found on chromosome 6, the actual gene has not been fully elucidated and there is no family history of epilepsy in approximately 50% of patients.
All his test came back normal except for the EEG which was abnormal. The doctor said alot of kids have seizures for unknow reasons and they usally outgrow it as they get older. Now that we have a new doctor he says my son has complex partial seizures that start in his frontal lobe. He said its hard to say he will outgrow it becuase when you have seizures that usually start in one area you usually have them through your life. Is that true??! Or does he not just want to give me false hope?
I suggested to my doctor to go back to Tegretol (being a great mood stabilizer for me) so I may experience some of my good old days, but he is not recommending that and still prefers the Zonegran for its minimal side-effects, specially that I'm on very low dosage. Any feedback is very welcomed and appreciated.
What your daughter is suffering from is intractable seizures, for which treatment of choice is surgery; hence it has to be re-planned as early as possible. Secondly, regarding medication, it is a protocol, to add on anti-epileptics if the one which is started is not working. What I would like to do is see the level of anti-epileptics (ones which have been started) in blood. For this you need to send blood for investigations, just before next dose of anti-epileptics.
old son was diagnosed with a non-germinomas, teratoma with immature cells, tumor on his pineal gland on 6-5-2000. This was discovered after he had several grand-mal seizures. The tumor was removed, he then received stereotactic radiation for 7 weeks. His vision in his left eye had been severely compromised and it does not track correctly. This had been slowly improving. Other than symptoms that one would expect after all this, his general health was OK.
She also suffers from ADHD, which I have to say which is the worse of 2 evils! She is taking 300mg of Zonegran for the seizures and Vyvanse and intuniv for the ADHD. I was also told to give her B6 for her very very very bad mood swings which also comes with these 2 diseases. It does help! I was also told by a friend about a vitamin called 5-HTP. Does anyone know anything about this? This is a very hard thing to deal with, I wish like most parents I can take it from her.
All his test came back normal except for the EEG which was abnormal. The doctor said alot of kids have seizures for unknow reasons and they usally outgrow it as they get older. Now that we have a new doctor he says my son has complex partial seizures that start in his frontal lobe. He said its hard to say he will outgrow it becuase when you have seizures that usually start in one area you usually have them through your life. Is that true??! Or does he not just want to give me false hope?
Hi. I was diagnosed with seizures 2 years ago and am being treated with Zonegran 300mg/day which we are finally glad we found something that works and has minimal side effects. My daughter who is 16 was diagnosed a year ago and is being treated with Lamictal 200mg/day with Folic Acid because of her age. This medication has worked out well for her. About 1 1/2 months ago, my dog had a seizure. Because I've never seen an animal seize before, I rushed him to our family vet. Dr.
I am just trying to figure out what is going on if anyone can help, please read on. I have what I call backwards seizures, because i have dazed and confused states that sometimes end in a tonic-clonic (grand-mal) seizure. Sometimes, they don't and the symptoms just disappear after good rest or time passing. This seems oposite of the normal grand mal, and then confused state that most people have.
My daughter was a thin child, who took Tegretol for seizures, and gained a large amount of weight in a short time. We stopped the medication, but the weight did not reduce.
Every moment my head isn't killing me I've spent sleeping. (Headache/Seizure hangover)... I'm not sure how many seizures I've had, but not too many I don't think. It's really gone down with the medication. The headaches started Thursday night without warning. I was watching television, then suddenly screaming at the top of my lungs. I'm not sure if it was the pain level, or my screaming but I lost consciousness a couple of times after that.
He went from 75-100 seizures a day, including drop seizures. He has been seizure free for 1.5 years. That was the best team of doctors I have ever met. We went to 8 before someone could find out what was wrong with him. So, its scary but the surgery is the best thing we ever could have done. He is now able to start learning, and he came off of all medication except for 75 mg of zonegran. He was on 1400mg a day. It has made a huge difference. Hope this helps.
On November 9, 2010 I started taking Zonegran for L-temperal lobe seizures. I'm on 200 mg. I was having partial complex seizures for over a year before a Neurologist captured epileptic discharges on EEG. My seizures are "mostly" under control, But I continue to have a lot of problems with my ears. Pressure, fullness, dizziness and pain. I feel a lot of pressure on the inside of my mouth as well. It feels like my teeth and roof of mouth is being pushed up.
Please schedule an appointment with your neurologist and ask him for an EEG. Usually absence seizures last for a few seconds. But they definitely do not last for 10 minutes.
Sorry to hear about everything! I know how you feel...have been on a number of different anti-seizure meds for 14 years now, and totally understand how you feel. If it helps, things usually improve somewhat after you've been on the meds for 5 or 6 months....kind of get used to the dosage, although it isn't easy to deal with all the side effects.
I'm REALLY lucky, because even on this low a dose I haven't had any seizures. I'm in the process of raising Zonegran, but don't want to go too quickly. I'll probably leave it where it's at for a couple days. Today I added B Complex (50mg of basically everything), and restarted Acetyl-L-Carnitine at a lower dose, (250mg instead of 500mg). I'll start taking Alpha Lipoic Acid later this week, (100mg). Next week I will hopefully be starting the Mestinon...
Reglan 10mg 4x. Symbicort 2 4x. Tegretol 400mg 2x. Theo-dur 300mg 2x. Zofran 4mg 4x. Zonegran 100mg night. Zyrtec 10mg night.
It can increase some of the side effects of Zonegran. As you can see alcohol use is not recommended for use with Zonegran in particular. but is usually not recommended for use with most medications. That is because it can increase or decrease the effectiveness of the medication or cause unwanted side effects.
But my dad has been having seizures for about a year, he is taking Lyrica but it still isn't stopping the seizures. Anyway, a couple weeks ago he had one beer while on vacation. Later that day he ended up having four grand mal seizures, the most he's had in one day. I don't know if it would bother you or not but I thought you might like to hear his story. I'm a college student too, so I kinda understand what you might be going through.
with medication for seizures it is just trial and error because each person responds to medication differently. i'm on my 4th round which is working to a certain extent. you should definately push for more tests, maybe they can find the cause and reverse that. if not you should keep in mind that alot of children actually grow out of epilepsy as they get older. maybe you should ask the doctors if surgery is an option.
You were just very fortunate! For some patients,it could mean endless seizures and death! Since you didn't have any seizures after quitting the med,it is just possible that you're not epileptic.It could be there was some kind of brain injury that has healed.But your Dr needs to be the one to investigate this matter;you should never diagnose it for yourself! I take Zonegran.My neuro told me that it doesn't build up in the body,so I don't see how your levels could be normal.
I lost my vision three times about 8 years ago and just beginning in 08 I begin having cognitive issues, balance issues, unable to use my arms, tingling in feet, dropping things, swallowing issues, worse headaches, and then comes the horrific episodes that turned out to be complex seizures. I had some dandy seizures that the ER did not recognize that were not going away for up to 2 or more hours and kept coming back. Left untreated and waiting, trapped inside my own body. Horrible feeling.
) Doctors tend to use other medications for primary generalized seizures, so my guess is that you have partial seizures, although of course I don’t know for sure. The list of meds I’ll give you later on in my mail is for partial seizures. Just so you know, though, lamictal is not really a new drug. It’s about 20 years old at least. I don’t mean to sound stuck up, but I totally recommend seeing an epileptologist, or a neurologist who specializes in epilepsy.
Which meds are best for which seizures? What does everybody else taking? Is it working? Does it make you sleepy? Side effects? How much do you take? Do you like it? Was it the first one you tried? Did you have to try many to find one that you liked?
I was put on Keppra and controlled for two years on 750 mgs a day, and now I am not controlled. Since November I have averaged one-two TCs a month that start as a partial but generalize, and they usually happen at night when I am falling asleep. I am on 3000 mg of Keppra and 400 mg of zonegran, these seem to have stopped the tonics, but I still get the visuals, although they only last for a few seconds.
I had my sleep deprived EEG. The older I get the harder it is to stay awake! I didn't care for the strobe lights, and for a sleep lab, the people working in the lab sure were noisy.... especially since they expected me to fall asleep. I'm sure the test was abnormal, because it felt like I had a stroke, but I'm sure it was some sort of seizure activity. The right side of my face felt tight, twitchy and numb and my body started to tingle and it spread from my brain.
I am currently taking 400mg/day of lamictal, and 600mg/day of Zonegran iin order to control my temporal lobe, partial-complex, seizures. I am not, nor do I believe I ever will be 100% completely seizure free, but my side effects of the medication are bothersome to me. Mainly, difficulty in concentration. So I've been taking ginko biloba lately and it seems to clear my head somewhat. Will this lower my threshold level?
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