tysabri works

t usually give it although some docs will try. Perhaps he said RRMS ? Tysabri works well there. There are some of us that are JC+ and still take Tysabri........perhaps he thought it over after you left? They are expanding Tysabri for types other than RRMS but as Tysabri tells me, its all up to the doc.

I've been on tysabri for over a year and developed a bad itchy rash the past 3 months. Thanks so much for your input and I will check back with her posting. Good luck to you too!

I have MS and Neuropathy. I am currently on Tysabri. Previously I was on Betaseron and IVIG. When I went to Tysabri my doctor took me off IVIG and now my Neuropathy is worse, my feet and legs are on fire. Does any one know if it is safe to be on Tysabri and IVIG at the same time? My doctor said she would need to consult with other doctors before she would add IVIG to my treatment.

I have been hearing lots on this bored about this infusion thing w Tysabri. Since I am new at all this, I can't figure out exactly wat it is when I google it. Can someone please explain?? Very curious over here! Thanks!

What confuses me is that all the research I have done seems to insinuate that tysabri is a good choice when nothing else works. I am in great shape and live with little to no daily symptoms. My main Symptom is my left leg dragging after about 20 min of walking for exercise and I haven't been able to run for ten yrs now. Please give me your insight as to why you think I should or should not switch to Tysabri. Thank you!

There is an alogirthm for the chances of contracting PML while on tysabri. I believe it is on the tysabri website among other places. I will see if I can find it for you and report back.

of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?

I am on year three of Tysabri after almost three on Copaxone. It's hard to believe I have been doing this for several years.

@ Bob...I wondered what Pulse Therapy was. My doc had mentioned it...but I never gave it a second thought. It is true, you do learn something new every day. And yes...the old lesions have been doing what they do on and off for over a year. Stress brings them all back in a hurry! I'm just hopeful this ACTH works, the IVSM handed me my butt on a platter! I'm still recouping from them and they ended a week ago. @ Sumana, I really do hope the Tysabri works for you!

Glad your Tysabri went well. Not so glad on no sleep! Let's hope that is a one night stand! Good for you!

Took my first dose of gilenya today heart rate drop to 50 so had to stay an extra hour but home now. Hoping this works since I failed rebif, tysabri, tecfidera we shall see what happens.

) That was over a year ago, and my disability has progressed much since May 2007. My right leg hardly works at all anymore- and my right arm went, too. I still walk- barely- with those magical AFOs on both of my legs- although it seems that I need to get a TAFO for my right leg soon (TAFOs go up to the thigh, rather that stopping below the knee like an AFO).

HI Rita, My friend on Tysabri that you spoke to always got frequent UTI's while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!

I'm not sure how they are going to work that one out. They certainly won't admit it I am guessing. I know when I was searching for "gap" insurance, the big thing with them was kidney dialysis. However if you are on meds already, not sure how they can change it. As long as you have no coverage gaps, and I don't remember where, but for example, there are studies that Tysabri is now being used (along with another drug but can't rememer that name) for progressive MS.

I sure hope that works for you. Are you JC positive and want to move off of tysabri because of the increased risk? Just because you are at 24 months, doesn't mean you have to stop. I wonder if there is a washout period from tysabri to rituximab? I know the relapse numbers jump when leaving tysabri for something else. I'm sure the neurologist has a plan for you. You can still visit your infusion nurses - just bring them cookies.

So I went to another expert who agreed with the first doctor that treatment was called for and recommended Tysabri or Copaxone or Gilenia. I chose Tysabri because both doctors recommended it. I decided to stay with the second doctor because he was much more informative and helpful than the first although he works alone. The first doctors was a bit brusque. However , it has been almost 5 weeks since the paperwork for the Touch Program was started and i have heard nothing.

to make things look good etc) My neuro and I also did not consider novantrone. I will definitely keep you updated on how tysabri works for me and I am interested to know what your final decision on medication is.

I don't really have a solution to offer but thought I'd take a stab at the culprit. Do you still receive steroids with your Tysabri infusions? Methylprednisolone is a much more likely candidate to cause this type of severe nausea than Tysabri is.

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