Tysabri warning

Common Questions and Answers about Tysabri warning

tysabri

1638868 tn?1309542428 Could you give us a little background on what meds you've tried and for how long? I'm sure you've mentioned it before but I have a hard time keeping track of so much.
Avatar f tn There are numerous other very serious risks and side effects with Tysabri, (it does carry a Black Box warning from the FDA), but there is also the potential for some very significant benefits. Each person needs to just be aware, and then make the best decision for their own situation - there is no right or wrong choice... :) If you go to the Tysabri website, it can give you the willies.....but once you start to do more reading and research, you can put it into perspective a little easier.
Avatar f tn My first DMD drug was Tysabri and I have been on it almost 2 yrs, and was JC+ from the start. Tysabri is very good at lowering relapses, but of course, does not correct anything already there. You may continue to have relapses or attacks, it is not 100%, but does a good job. It is not usually a first drug, as you have been told, but your doctor had a good reason or he would not have put you on it As Kyle said, let your doctor know…….
Avatar f tn Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.
1896537 tn?1381900009 s clear though said its harder to see spinal lesions) The neuro said that even though my lesion load is modest she feels I should now consider a 2nd line defence drug such as Tysabri. Or, I should think about treating my ms symptom-by-symptom. O[inions please!
Avatar f tn Janine, Wishing you well with the new oral med. Like Daisy girl, I was given the options for Tysabri and Gilenya. I will be doing Tysabri, for 1 year. If not doing what it "should" be doing, I will then most likely start Gilenya.
198419 tn?1360242356 Data from the PLEX study suggest that plasma exchange may be an effective procedure for accelerating the removal of Tysabri from the blood if PML infection is suspected. A new warning has been added to Tysabri's label about possible liver injury, and two cases of melanoma (skin cancer) have also been reported in women taking Tysabri, but a connection has not yet been confirmed.
Avatar f tn I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.
Avatar f tn Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.
Avatar m tn I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.
572651 tn?1530999357 I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.
1827617 tn?1317703371 My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?
1760800 tn?1406753451 He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!
1088527 tn?1425313375 I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?
Avatar f tn So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!
1831849 tn?1383228392 The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.
Avatar f tn side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.
4848471 tn?1372238752 There is an alogirthm for the chances of contracting PML while on tysabri. I believe it is on the tysabri website among other places. I will see if I can find it for you and report back.