tysabri walking

Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.

I too am JCV positive, I have had 3 infusions of Tysabri . Before I started it my walking was really bad with foot drag and it has not improved, I just wonder if it ever will. Do you have walking problems?

Are you getting any exercise at all? Even walking around the house just to be walking? I finally had to start walking the dog, not far, but enough and that is helping me. Have you just started Tysabri? Read the side effects on the pamphlet that they gave you? If not, go to Tysabri's web side and look for the pfd file that describes side effects. I'll look on mine tonight, can't do it this morning, no time. I had my Tysabri on Wednesday and its like a magic infusion for me…….

m still OK Tysabri wise speaking. My neuro likes to reevaluate Tysabri use at 24 months. I had infusion # 18 last week. He thinks I would be an excellent candidate for Tecfidera. He said that if DMD'd were ranked from 1-100, in terms of 'power' Tysabri would be 100 and Tecfidera would be 75/80. As my MS seems to be pretty well under control. I may have needed Tysabri to get it under control. but Tecfidera should be able to keep it under control.

I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?

//www.medhelp.org/posts/Multiple-Sclerosis/Gilenya-Users-Past-and-Present/show/1469412 http://www.medhelp.org/posts/Multiple-Sclerosis/Copaxone-users---past-and-present/show/643683 http://www.medhelp.org/posts/Multiple-Sclerosis/Tysabri-Users---Past-and-Present/show/1569374 http://www.medhelp.org/posts/Multiple-Sclerosis/Aubagio-Users-Past-and-Present/show/1946899 http://www.medhelp.org/posts/Multiple-Sclerosis/Our-Tysabri-Users---Past-and-Present/show/658918 http://www.medhelp.

This is not a question but a statement for anyone to comment. I was diagnosed with relapsing a remitting ms 1 yr ago. I had a very aggressive doctor that put me on Tysabri infusions even though I had never tried anything else. After research and being so terrified of the brain infection which causes severe disability or death I changed doctors! I have been on Aubagio, the new pill, for 1 month and have not had any problems.

It's so amazing - I still get grinding, overwhelming spells of fatigue, but over the last week or so, I've had some renewal of energy! I think the Tysabri, is finally starting to work! I have gotten amazing fatigue these past two months about a week and a half before my infusion. In May, after the infusion, the fatigue seemed to lighten up slightly, and this month, after June's infusion, I feel better than I have in months in the energy department.

Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.

Hi Miche - Welcome to our group. This is a pretty old thread. It was last updated over a year ago and many of the posters no longer visit. I haven't seen cosmobirdy in quite a while. I just didn't want you to think she was ignoring you :-) As to Tysabri and JCV, there are some folks here whou are JCV + and on Tysabri. Perhaps they will be able to provide some insight. Personally, I had 20 Tysabri infusions before converting to JCV +.

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

I guess it takes 4 to 6 weeks. Then a follow up and go from there. He recommends Tysabri if sI want to switch right now. However, depending on what he sees on the MRI it may not be a choice but the only recourse. So, any input on Tysabri would be appreciated. I have mostly good days, but too much activity on Sunday made me a slug yesterday! I woke up refreshed this morning and took a short walk. Felt SO good!

Hi Calliesue - Welcome to our group. I had 20 infusions worth of Tysabri. I swited to Rituxan because it stopped working for me. While I was getting Tysabri I had no ill effects what so ever. I loved the 'convenience' of monthly infusions v. daily or weekly injections. There are many folks here who have been gatting Tysabri for years with good results.

Hi Kat - I will get my 11th infusion in about 10 days. I have had no issues of any kind in conjunction with Tysabri. From the follow up MRI's I've had Tysabri seems to be doing the trick. No new lesions or relapses since I started. You will be tested for the JC virus prior to starting.

Hi, Yes I have MS, I was diagnosed in Dec. 2010, I have being with a lot of symtoms, especialy that invisible symtoms, like ms hung, electricity and more. I was in Copaxone for about one year, then my neuro decided to move me to tysabri, I started tysabri two months a go. But I don't feel good.

I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.

data highlighting FAMPYRA, the first oral formulation indicated for the improvement of walking in adult MS patients with walking disability; and full data from the DAC HYP Phase 2b SELECT trial. Notable data from Biogen Idec at AAN 2012: BG-12 Clinical Efficacy of BG-12 in Relapsing-Remitting Multiple Sclerosis (RRMS): Data From the Phase 3 CONFIRM Study – Platform S01.

To be honest right now my doctor is being a butt and rude for the first time ever. He can not even give me this Tysabri. So I would not even see him if I did take it.

-) Following my DX 2 1/2 years ago I went right on Tysabri. I had 20 infusions before I converted to JCV + and the Tysabri stopped working. While I was on it I had no ill effects of any kind. @CheyTag - Was there ever any reason to dismiss the hemiplegic migraine dx? From what little I know it could account for your symptoms.

Hi guys, I am not feeling to chipper these days. My UTI is back, and waiting for the full culture to come to decide what kind of anti-biotics we use this time. I am getting so worn out by all of this. The pain level in my body has doubled and I don't know if it is the e-coli or MS just kicking up it's heals. Got a call yesterday, and the nurses want me to go to the clinic to begin my Avonex injections next week.

I have been on Rebif for 8 years but my most recent MRI shoes several new lesions since 2010 and dr wants me to change therapies. I have ruled out going to another type of injection and don't think I should do Tysabri yet. Does any one have experience with switching over to Tecfidera, Aubagio , or Gilenya ? The new lesions are in the cerebellum and have caused walking and balance issues. Thank you in advance for any advice or info.

ve been on Tysabri for 4 years, and yes, it has turned my life around. In a matter of months, I went from walking & working as a computer/network technician to feeling useless in a wheelchair, then I started Tysabri. It healed the lesion on my spine, and though I have to walk with a staff if I want to walk for very long, I can walk as much as a mile. I couldn't even walk one block before I started. Recently I tested positive for the JC virus. It is terrifying news.

Tysabri walking

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