tysabri uti

I celebrated the new year with a UTI, and a flare! Grrrr! I had just finished a round of antibiotics for a bad tooth, when the UTI reared it's ugly head. Different bug, so, a new and different abx to treat it. Too late. My symptoms all magnified, and getting through a day of work was monumental. I guess it was all a matter of time before I flared. My last Tysabri infusion was on 11/2/13, and it took my new neuro and new infusion site two months to get their stuff together.

As you progress with treatment your risk for UTI and sepsis could increase. Hopefully retention issues would disappear on Tysabri eventually and take UTI potential along.

Count me as one... :) Just the one infusion so far, 2 wks ago. No major change in symptoms. The bugs are crawling up and down my back again, and the buzzing in my pelvis is back again....they seemed to back off after the first infusion. Still having pain in my hip joint off and on. Now just found out I have a UTI - haven't had one in 20 or 25 yrs. Is it related to the Tysabri or just dumb luck?? I guess we will find out as time goes by...

My MS doc always gives a small dose of Solumedrol, which is much larger than a usual prednisone dose, to his new Tysabri patients. They get the IVSM in the first hour. Then they get the Tysabri in the next hour. His experience says that the mini-dose of IVSM helps the Tysabri get to work faster by cutting any inflammation in our system. He does that for the first three Tysabri doses when just beginning this therapy. I hope you are less itchy today and can reach your doctor in the morning.

had my Tysabri last week, after being off 2 months and have done nothing but sleep all day since. They drew blood (going to Oncology Clinic) and my WBC was high as was 2 other values but no one said anything about it. Considered a UTI but leukocytes high but nitrates? normal and no s/s. Feeling a bit better today, but sure hoping next dose in June will make me feel better. Figure extreme fatigue but this much this long is new for me.

Now, based on the last MRI, he has officially diagnosed me and is recommending that I go on Tysabri infusions. From what I can tell on this forum, it seems like he's hitting an ant with a sledgehammer. It seems very unusual for people to be prescribed Tysabri right off the bat. I am very confused as to what drug to go on, if any. His first choice for me is Tysabri, followed by Gilenya, followed by Copoxone.

Sorry to hear about the UTI, but do enjoy your Tysabri cocktail :-) Kyle

I went to UCSF Fri to be checked out before I can continue my Tysabri treatments. I had one treatment and because of a worsening of old sx's the specialists had to "check me out" before approving going forward with treatment. I saw an assistant and not the main Dr (pretty sure that is how it always works at the medical centers) and she feels that a UTI is causing me to be in a pseudo flare.

Well I saw my neuro today and after a lengthy discussion with both him and the nurse, the subject of UTI did not come up! There was so much else to cover, I completely forgot to ask and they apparently did too. Argh. Why didn't I write it down? No 12 year old resident this time lol so it was nice to get to know my neuro better. We had a long discussion about changing treatment.

And it can be a viscous cycle, as MS patients can have neurogenic bladder issues, such as inability to completely void...that residual "pool" of urine in the bladder becomes a chronic source of UTI. So, if your doc thinks UTI, he/she should probably refer you for other testing, such as bladder ultrasound, to ensure inefficient emptying isn't an issue for you.

It's 99% official - they are taking me of Tysabri - my allergic reaction (GI difficulties) was getting worse. My neuro drew blood for an antibodies test - he thinks my body has developed antibodies to fight Tysabri, and if that be the case, I am 100% off of it. So am taking a "holiday", knowing the rebound I am facing, to recover. We will make a final decision when the blood test come back.

Hey Guys, Just wanted to give you all a heads up, in the interest of us all being informed patients... :) I saw this article this morning, and here's the crux of it: "New Case of PML Confirmed in U.S. A new case of PML, or progressive multifocal leukoencephalopathy, has been confirmed in the U.S., in a patient receiving Tysabri for the treatment of MS. After 14 treatments, the patient reported a change in health status, and the patient’s physician began testing for PML.

I had a UTI for four months once. I know it is no fun.

I was off on Tuesday to make the Tysabri run to Columbus. Unlike poor Sarah, the Tysabri seems to be good for me with none of the dreaded side effects. Here's to a good week for everyone!

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.

I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.

My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?

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