tysabri updates 2010

( I am not thrilled w Tysabri at this point. Was doing really well on it, from Jan 2010 until the summer when I lost my voice for 3 months. Tysabri was D/C then per Neuro. In case that was a side effect. I went back on Tysabri in Dec. My voice is still an issue. Neuro doesn't know still if side effect, and is leaving it up to me if I want to stay on. She would like me to stay on it, as there is no other alternative for me at the moment.

I have read on here by several members, that they have not considered Tysabri or Gilenya because their MS is not that aggressive. What does that mean? I was dx Jan 2010, MRI showed approximately 10 lesions, I had a real hard time accepting my dx....I really wasn't sure I had MS, so I refused a DMD. Then in Oct 2010, I had a new MRI that showed an additional 5 lesions. My Neuro said that we needed to get aggressive and he suggested Tysabri and/or Gilenya.

I started with 2000 IUs a day but my D levels only went up to 27 in early July 2010 and then down to 24 in late July 2010. So, I then upped my dose to 3400 IUs taken 3 times daily to maintain a steady state and by October 15 by levels had reached 30.6 and I was starting to feel a bit better. I then upped my dose to 4400 IUs and the improvement in my symptoms (after an initial problem of bone/joint/nerve dysfunction/pain) continued. By December my D levels hit 41.

Hey, so I joined December 2010 babies and mine was born on November 30th lol! Anyway, I still consider myself part of this group anyway! Olivia is doing very well, she has 8 teeth through and a few more already trying to "poke" through, she gave up the pacifier about 2 weeks ago and has recently gave up her noise machine also!! Only issue we're really having is getting her to eat ppl food!!

Hey guys, I'm a couple of days late - sorry... :) Got two extra kids home right now, and it's chaos and mayhem at my house, lol. But I know some of you wanted updates, so here we go... Not a whole lot going on, really. I seem to have a bit more energy in the mornings (only partly dead, instead of zombie dead, lol), but by the afternoon I'm usually just as dead tired as before.

Hi, Yes I have MS, I was diagnosed in Dec. 2010, I have being with a lot of symtoms, especialy that invisible symtoms, like ms hung, electricity and more. I was in Copaxone for about one year, then my neuro decided to move me to tysabri, I started tysabri two months a go. But I don't feel good.

Hi, I am Barb. I was diagnosed with MS in late February/March this year. My first symptoms started in May 2010 but I really got "sick" in the fall of 2010. That is when I really felt the stress on my body. That stress really took a toll on me. I felt sick for about a year and half. I still do feel sick (fatigue, neurological symptoms and overall weakness) but there has been some improvement between flares it seems. For the last year and half, though, I was sick.

Could you give us a little background on what meds you've tried and for how long? I'm sure you've mentioned it before but I have a hard time keeping track of so much.

I would love to hear updates on how its going--Tysabri is the next step for a lot of us. I want to hear the good, bad, and the ugly. My sister is having a tough times of things (as I mentioned to you) and would love to help sort out if its the medicine or not. She sees her neuro tomorrow and will be getting an MRI also. How are you feeling today? Do you have any remnants from that headache you had? Did you have any flu-like symptoms? You have a wonderful weekend, too!

I have been on Rebif for 8 years but my most recent MRI shoes several new lesions since 2010 and dr wants me to change therapies. I have ruled out going to another type of injection and don't think I should do Tysabri yet. Does any one have experience with switching over to Tecfidera, Aubagio , or Gilenya ? The new lesions are in the cerebellum and have caused walking and balance issues. Thank you in advance for any advice or info.

My neurologist says that the symptom flareups I've had since 2010 are only pseudo-exacerbations because the MRI I had in 2010 showed no enhancing lesions so the MS isn't active. Thoughts?

he has been on betaseron for 2 years, ivig for 2 years and tysabri for 2 years. he has not ben on any meds since aug 2010. he is now on steroids and has to decide what med to go on. he had to stop the tysabri because he was building up antibodies against the medicine. he former doctor suggested he go off it and consider the oral medince. since then his doctors prtice closed and now we are seeing a new doctor. we are very confused. does any one have any advice?

HCVadvocate also has updates on the conference

2007, 2010, and 2011: small benign cyst on liver, no change Start date on triple therapy with Incivek: 9/30/11 VL tests and results: Wk 4=78, Wk 8 = UND, Wk 12 = UND Anemia: No, lab tests do not say anemia, but he has symptoms of anemia. Last hgb was 10.7, last hematocrit was 31 (12/23/11).

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

Tysabri updates 2010

Common Questions and Answers about Tysabri updates 2010

tysabri