tysabri update

My MS doc always gives a small dose of Solumedrol, which is much larger than a usual prednisone dose, to his new Tysabri patients. They get the IVSM in the first hour. Then they get the Tysabri in the next hour. His experience says that the mini-dose of IVSM helps the Tysabri get to work faster by cutting any inflammation in our system. He does that for the first three Tysabri doses when just beginning this therapy. I hope you are less itchy today and can reach your doctor in the morning.

Hope everyone is well. I just wanted to give an update. I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected.

Thanks for the update! Good to know the only side effect was a one nighter. Looking forward to hearing more as your journey continues.

Talked with Tysabri caseworker this morning and gleamed some more info as follows; You call them or Tysabri in my case and tell them you are interested, they then send a referral notice to your doctor and in about 2 weeks someone calks you from undetermined #, I asked to be notified or gave them leave a msg as u don't answer for numbers I don't know, and they will discuss your insurance info then, etc.

s financial asistance program to update my status and make sure that the Tysabri AND the administration fee (probably your $350) are covered by Biogen. Please call them back and see if you qualify for this generous offer.

• Although the absolute risk for PML in patients treated with Tysabri cannot be precisely determined, the U.S. FDA and the company have released data suggesting that the risk increases with increasing time on therapy. • The company changed the label of Tysabri to indicate that the risk of PML is increased in patients who have been treated with an immunosuppressant (such as mitoxantrone, and less commonly, azathioprine and methotrexate) prior to receiving Tysabri.

I am conducting my own, personal study on the benefits of Tysabri in conjunction with SPMS.

I have failed rebif and my liver didnt tolerate tysabri after 10 infusions. I really didnt like the side effect profile from tecfidera and was hoping this was gonna get approved.

As of March 2008, more than 26,000 patients were on Tysabri® worldwide. Since the re-launch of Tysabri in July 2006, no new cases of progressive multifocal leukoencephalopathy (PML) have been reported. PML is an often-fatal viral infection of the brain. Data from the PLEX study suggest that plasma exchange may be an effective procedure for accelerating the removal of Tysabri from the blood if PML infection is suspected.

09 and I have since switched to Tysabri. With tysabri, all of my symptoms, (tingling, numbness, and pain) are all but gone. For me, Tysabri was more effective then Copaxone, but if you have MS and are thinking of switching, Tysabri is a very dangerous drug, inform yourself before making the decision.

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

In fact, my latest blood test turned up positive for JCV and my doc and I may need to start talking about switching away from Tysabri. That would suck! I love my Tysabri :-) What makes you want to avoid it?

Anyway, went on to have EEG then Tysabri after 3 hours of off and on searching for a site. Finally asked for some pain med, even Advil for my worn out body. At least my left knee was protected by by brace from the ER. It's always something......

I sure hope that works for you. Are you JC positive and want to move off of tysabri because of the increased risk? Just because you are at 24 months, doesn't mean you have to stop. I wonder if there is a washout period from tysabri to rituximab? I know the relapse numbers jump when leaving tysabri for something else. I'm sure the neurologist has a plan for you. You can still visit your infusion nurses - just bring them cookies.

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