tysabri uk

Hi all, I haven't logged in for ages but hope one of you will be able to answer a question for me. I've had eight infusion's so far of Tysabri and am doing really well on it. I'm coming up for a whole year with no relapses and I don't feel bad after my infusion. However, I have started to notice a couple of issues. The first is that around a week after infusion I develop big hives if I sit in the sun (not such a problem in the UK since it's rarely sunny!

He decided it was time to try Tysabri. So last June he sent me to UCSF to check if I could go in the program and I got in right away. I saw my regular neuro again in July and his attitude was like...well they have control of your meds now so what do you want me to do for you?? HHHMMMM you scheduled a follow up appt, so I came. So he did reschedule me for 6 months out anyway. I went to UCSF to get a brain MRI and check up on Jan 5th. Brain MRI looks like no changes...

Many people who come off of Tysabri have been put on Gilenya pills. You would have to get checked first for heart issues, immunity to chicken pox and maybe one or two other things, and have an eye exam to rule out macular edema (swelling). Then of course you have to get approval from insurance or proof that you could afford the pill. Once that happens, you get scheduled for a 6 hour appointment for your first pill. They keep you on an EKG to watch for lowered heart rate.

Hello, all! I was originally diagnosed with primary progressive multiple sclerosis in May 2007, when I was 26 years old. That diagnosis was changed to progressive relapsing multiple sclerosis in October 2007, when I had an exacerbation. My neurologist has never been completely comfortable with my diagnosis, because I don't display "typical" MS in many ways. My first MRI showed more lesions along my cervical spine than in my brain, but my spinal tap displayed (?

This is another IMPORTANT survey for Canadians with MS. Make your voice is heard, to ensure those conducting this survey understand how critical our DMDs are to maintaining our health and functioning. Every provincial and territorial government in Canada has programs in place to provide Canadians with MS access to DMDs, in keeping with the spirit and intent of the Canada Health Act. Please provide your input to help ensure we retain funding for access to these important medications.

s rather like a postcode lottery in the UK, that said whilst I am fortunate enough to be having Tysabri infusions under one of the top 5 in the UK I am dissatisfied with my doctor big time.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.

I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.

My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?

So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!

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tysabri