Tysabri treatment ms

Common Questions and Answers about Tysabri treatment ms

tysabri

Avatar f tn I'm not on Tysabri, but want to bump this up so that your message doesn't get lost. My sister is on Tysabri, which she's been on for two years now. Her MS is not behaving like someone that has RRMS, as her MS is more like a train that keeps barreling down the tracks and is unable to be stopped. She was on Rebif for a year and she experienced a sharp decline over the course of the year. She started Tysabri, and her disease has slowed, but it's by no means stable.
1637739 tn?1371688706 Hi Jeny, My MS Neuro put me on Copaxone when I was DX 2 years ago. I have never heard of Tysabri being a first choice treatment, although perhaps I am wrong? Someone might chime in here and have a similar experience. The Meds that are 1st choice in Treatment, I beleive, are Copaxone, Avonex, Rebif and Betaseron. There are less risks with those than Tysabri and Gilenya. I had my 1st Tysabri infusion yesterday, and it was not an easy decision for me.
1896537 tn?1381900009 Hello all, It just suddenly occurred to me that I hadn't logged in here for ages so I thought I'd see how everybody is getting on. Also, for those of you who knew I was not on a treatment for a long time, I have started Tysabri! My second infusion is on Thursday & I'm daring to feel very positive. I was very surprised by the first infusion.
Avatar m tn The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.
382218 tn?1341181487 Have MS but only on sx control - currently Gabapentin - but live in UK so nothing unusual.
10624661 tn?1414900629 I do know that my depression has gotten worse due to the fact that I am feeling no better and the Tysabri is approximately $10,000 per treatment. Thankfully we have good insurance and the drug company offers financial assistance since I can no longer work. I just wish the government was more understanding and give back what I have paid in all the years I was able to work without giving me the run around and putting us through unnecessary stress.
Avatar f tn I hope you will take the time when you feel up to it and post some details about your MS and treatment with Tysabri. It could be helpful to others. Again, welcome!
Avatar m tn Hi DH - Welcome to our group. I am currently getting Rituxan (rituxmab) and before this I was on Tysabri. They are the only two DMDs I've been on. I have had good experience with both meds. Tysabri lasted about 20 infusions before it stopped working. The Rituxan seems to be doing the job now. I started Rituxan in November of last year and finished my second round yesterday. I had no adverse reaction of any kind to either med.
572651 tn?1530999357 From the makers of avonex and tysabri ---- STAY INFORMED ABOUT MULTIPLE SCLEROSIS AND HEAR PERSONAL STORIES FROM OTHER PEOPLE WITH MS If you are looking to learn more about MS therapies, the TYSABRI Hope and Health Teleconference Series may help you make a more informed treatment decision. Many teleconference programs will be offered in 2011. Log on to hear a physician discuss treatment information and to hear a panel of TYSABRI patients share their personal experiences.
Avatar f tn I am currently on the MS treatment Tysabri. Is there anyone on this treatment that have experienced seizures, blackouts or memory loss?
1475492 tn?1332884167 Someone said that Jose who died from PML were taking more than one MS medication. Is that more than one DMD or treatment for symptoms?
1831849 tn?1383228392 The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.
572651 tn?1530999357 MS requires treatment tailored to individual people. To always start MS treatment with Tysabri would be about the same as always starting diabetes treatment by using an insulin pump. It’s dangerously aggressive. Anyone think we should go a step further and order up stem cell transplants for all (when/if they’re approved)? The way I see this Tysabri probably does need to be offered earlier in the disease and used more frequently.
4848471 tn?1372238752 My ms specialist wanted me to try Tysabri since my MS is so active.Is it worth the risk, is it out of the question? I didn't receive much feedback on how at risk I was, I've never been on MS meds before. I signed up for Tecfidera before I learned there was a PML risk for that drug as well. I really need some guidance here!
1950519 tn?1324518193 My neuro yesterday was just telling about a medicine that is being used though it is not FDA approved for MS treatment. I cannot for the life of me remember the name (it starts with a C I think) but it is an immuno-suppressant that is used for those who have had a kidney transplant. I guess there has been great success with MS patients on it, too, but there are higher side effect risks than the normal DMDs.
10624661 tn?1414900629 Has anyone been recently been diagnosed with MS and awaiting Tysabri treatment? And been suggested that they may have Bipolar disorder due to several mood swings?
Avatar f tn I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.
1702168 tn?1307910841 So I went to another expert who agreed with the first doctor that treatment was called for and recommended Tysabri or Copaxone or Gilenia. I chose Tysabri because both doctors recommended it. I decided to stay with the second doctor because he was much more informative and helpful than the first although he works alone. The first doctors was a bit brusque. However , it has been almost 5 weeks since the paperwork for the Touch Program was started and i have heard nothing.
Avatar f tn Hi. I'm new to MS and Tysabri. I was just diagnosed in July of this year. I basically had no symptoms. Maybe a little fatigue and dizziness but it was always "explainable". I wouldn't even have gone to the doctor then if it weren't for numbness/tingling in my hands. I work on a computer all day so it was very annoying and I broke down and went. And after a few MRIs and other tests this is where I am.
Avatar f tn So the UCSF trip was great and the specialist and I had a big talk about Tysabri and agreed it is the best treatment for me short term until the MS oral treatment comes out. We talked about the Touch program you have to be involved in with Tysabri and that I would have to come back at 3mo, and then every 6 mo. I thought "great, our friends have a nice house 1 mi from the hospital this will be wonderful" plus I would be able to be seen by the specialists again.
5993128 tn?1384747803 Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.