Tysabri success stories

Common Questions and Answers about Tysabri success stories

tysabri

While at the infusion center I spoke with a few people who ere there for their monthly Tysabri infusion. They all are having amazing success with it. All told me how much better they feel. Non have had any flare ups or relapses and swore that they were actually improving. One woman used to always walk with a cane and doesn't need it anymore. Another said the same thing about her walker. I felt such hope! Are these stories too good to be true?
I can't believe we haven't gotten more responses on this. Nobody has any success stories on treatment of their MS or family and friends?
They are still processing my paperwork so not sure whether to proceed or stay on my Tysabri... haven't heard anyone chime in lately on how it is treating them and certainly trust this site!
Tysabri since February 2012, chosen by doctor
But it shouldn't matter to you what I use, or what any other particular person uses, or what the majority of patients use (except that you know who to look for if you have questions about a particular medication). All of the meds have success and failure stories, and there is little way of predicting what your outcome will be. One comparison site is linked below. I suggest you pick the med that you're least likely to skip or otherwise miss a dose, because that's money and time wasted.
On another positive note, I am happy that Biogen/MSActiveSource came through with my free Tec after my insurance denied it as a 1st line medication. After reading all of the stories about no financial assistance or other's taking several weeks to receive their various DMDs, I was skeptical they would arrive so easily. I am hoping this good luck continues as it always seems to skip me :) Wishing all of you a wonderful Sunday!
Has anyone else been offered chemotherapy??? Has anyone else seen any stories like that broadcast in their local areas? Ok thoughts on this are welcomed please... this story is all I have thought about this week!
No my friend hasn't so that's why i want to find out if it's actually the truth that so many people are getting good results. here are some of the videos of people who's symtoms were "reversed". http://startelegram.typepad.com/my_fight_with_ms/ - sergeant preston walker http://www.youtube.com/watch?v=0mZUwbwU3AU&feature=related http://www.youtube.com/watch?v=BTw_HXmtaFs&feature=related http://www.youtube.com/watch?v=QsPgBBY1g0Q&feature=related http://www.youtube.
Yes, you may choose a DMT that ultimately proves wrong for you, but there is usually no way of knowing that until you’ve used it for a while. So it’s still not a wrong choice. All of the DMTs have success stories. All have failure stories, and like all bad news, those get a disproportionate amount of the attention. It’s important to maintain your dosing regimen. If you have had a hard time remembering to take pills in the past, that’s a strike against an oral DMT.
I've just heard such horror stories about the meds which is why I'm contemplating not taking them. Then I think I should maybe try some in conjunction with complimentary therapies and see how it goes.
I'm glad to hear your Mom is doing alright and understandable that she is lonesome without her partner. I will pray that you will find success with the Tysabri.
The pharmacist who supplies us with the LDN did mention to me that LDN has had a poor rate of success in treating PPMS. I know there are different stories on the web but that was his experience with various patients which gave him that opinion. So since the LDN makes him feel better and improves his quality of life and outlook, he will stay on it. But we believe he also needs Copaxone.
That's good that he is being watched because I have to make the run for my Tysabri today - I am already a week late and shouldn't put it off any longer. Other than today, I will make no plans and just take each day as it comes. Now how about the rest of you? Anything you want to share about this new week? I sure hope it starts better than mine.
I have a suggestion. I also agree that the repeated postings about the same alternative treatment for MS and other disorders is confusing to many of the members. I also think people researching such things, and those who want to explore information that is currently considered "out of the mainsteam" should know that there are people who hold an ENTIRELY different view of the cause and the proper treatment of MS (and of other autoimmune disorders).
I just finished my first year. I was diagnosed in October 2011. I had Tysabri Infusion #12 last Sunday!
In July I'm going to explore the Canadian Rockies for 9 days. I did have to arrange my travel dates around monthly Tysabri infusions. There is also the possibility that I could have a relapse at the time of either trip. Neither of these considerations would prevent me from planning and getting on with my life. Even if it's not quite life as I used to know it :-) Welcome to our world!
I continue to deal with ongoing neuropathy in my left hand and some days I feel it will literally drive me clinically crazy. I tried several diff meds this year to try to improve it without success, and I'm back where I started with gabapentin and amitriptyline. Fatigue is manageable some days but many days it prevents me from doing much at all. I've recently had to apply for LTD as my TD runs out in Feb.
There are so many success stories to back up this approach. I think some of it,too, is getting to know our own bodies as well as our tolerance levels. We need to try and find a doctor who we're comfortable with, and then make decisions we're both comfortabke with together. MS is nothing to make light of, for sure! I have the utmost respect for it as a disease process, and I intend to be very careful.
What I meant by pills is methadone and suboxone. I think most of us agree after reading the horror stories of both of these drugs mostly methadone, these arent the alternative to our problem. I think most of us agree that comming of suboxone is very similar to comming off stronger forms of opiates. Yes, please go get help and see if you do have chemical imbalance. I personnally have a bit of a sore spot for some doctors. They know what they are doing. They know.
More cases than are reported I am sure. You only hear all the bad things about MS. You don't hear much of the success stories of living a good quality of life with MS. It CAN be painful. Excruiating pain at times. It can slow us down, it makes us seem more clumsy sometimes, but does it kill us? NO. So we move onward and forward, despite the obstacles it may present. We lean on our family and our friends for support. Advances in Multiple Slcerosis are being made all the time.
Avonex, Rebif, Betasteron, Copaxone, Tysabri, low dose nal-something or other, campath, Neurovax and at least half a dozen other drugs currently in the pipeline. And treatments for PPMS...none. What's really been getting to me lately are bladder issues. Not to get into too much detail, but I feel like I need to go all the time, and when I do, it takes quite a while to get going.
There has been some great success with these drugs so it would be something to look in to if she was interested. I agree stay away from googling MS. I would visit MS Society's & reputable centres across the world. I was only recently diagnosed myself & I was shocked to find that all I had believed about MS up until then was quite wrong & inaccurate.
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