tysabri side effects treatment

It can take a few months to separate disease activity from treatment side-effects unless its something obvious like Copaxone welts. Be sure to mention this to your team when you go for the second infusion so this gets put in your notes and you get feedback from the pros. In the mean time, I'm so sorry you're feeling this wiped out.

Has anyone taking tysabri having any side effects such as jerking of the hands and legs? And extreme weakness of he legs?

I too have young children, and I do worry about the side effects of Tysabri. However, I decided I am more worried about my mobility worsening day by day, and I am hopeful the Tysabri helps. Good luck to you, and I would really ask your neuro why he wants to start with Tysabri being your 1st med, besides research. I would really expect a better answer than research.

Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse. Is this a relapse? Side effects? Something I'm stuck with now? Any thoughts would be helpful! Looking forward to reading more!

Worth nothing is that the flu-like side effects of Avonex often are less troubling after the first few weeks or months, but I've never seen anyone suggest that the mood-related side effects dissipate.

m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.

I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected. I'm learning now about the ups and downs and the good days and bad days.

Glad to hear that things are going so well for you with the Tysabri, and that you are even noticing improvements! It hasn't always been an easy ride for me, but overall, Tysabri has definitely been a good thing. It certainly slowed down the parade of symptoms I was having before I started it. I go for #45 in a couple of weeks. I can't remember - were you negative for the JC virus?

Sarah what is going on with the tysabri side effects? I forgot if you mentioned how many infusions you have had already I go for my 2nd in 2 weeks and I hope it goes like the first one with no problems . I hope you feel better soon and i wonder what the neuro will say and what treatment he will try if he doesnt want you on tysabri anymore.

If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!

Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.

While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them. Rituximab is a type of drug called a monoclonal antibody: it targets specific proteins found on one type of immune system cell called a B cell. It was originally used as chemotherapy for certain types of cancer, but was then found to be effective in diseases such as rheumatoid arthritis.

have you had to discontinue treatment due to side effects and if so, please describe. If currently on one of these meds are you having any troublesome side effects that are so bad they cause you to consider stopping treatment?

It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.

The latest date I've seen for an FDA ruling is March 28. Of course this could change. The pricing info I've seen is "in line with other treatments", somewhere around $50,000/year. It may be a new MS drug, but they have been using it in Germany to treat psoriasis for about 10 years. Its safety record is well documented. The risk/side effect profile is substantially better than Tysabri's. I've just tested JCV+ and may have to come off Tysabri.

I am glad to hear that other people are researching Tysabri and not just shying away from the drug due to the possible side effects. All medications have terrible side effects and if we read about every medication we took....then we probably would not take anything. I believe the Tysabri has started to give me my life back and I pray that the longer I take it - the better things will get. Someone had asked about UTI's.

I just finished my first go at IV solu-medrol two weekend ago. I had similar, what the home nurse called "side effects" immediately beginning treatment similar to your sisters (joint pain, mainly). This, and many more "tolerable" side effects are normal. So I wouldn't be alarmed. I was found to have a few more severe, negative side effects throughout the dosing such as steroid induced psychosis and trouble breathing.

the new drug is called Lemtrada but it does have serious "possible" side effects involving the thyroid, skin and breast cancer. There are some hot debates on it, my neuro says you take it for 5 days the first year (in a row) and then the 2nd year you take 3 infusions and then you don't have to take any more. The possible side effects are bothering me, but then PML was quite the threat also! I'd read up on it before you consider it.

Hi AG - Welcome to the group. I received 20 Tysabri infusions. I didn't have any side effects at all. Unfortunately it stopped working so I switched to RItuxan.

Tysabri side effects treatment

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