Tysabri side effects

Common Questions and Answers about Tysabri side effects

tysabri

Avatar f tn Worth nothing is that the flu-like side effects of Avonex often are less troubling after the first few weeks or months, but I've never seen anyone suggest that the mood-related side effects dissipate.
Avatar f tn Sorry to hear that you are having Tysabri side effects. I've had 4 infusions and no ill effects at all.
Avatar f tn Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse. Is this a relapse? Side effects? Something I'm stuck with now? Any thoughts would be helpful! Looking forward to reading more!
Avatar f tn Hi AG - Welcome to the group. I received 20 Tysabri infusions. I didn't have any side effects at all. Unfortunately it stopped working so I switched to RItuxan.
Avatar f tn I'm on my 5th year of Tysabri, and have no side effects. Like Kyle mentioned, I do kind of "crash" about 4 days before my next infusion. I was diagnosed RRMS, but I wouldn't be surprised if I were SPMS in this stage of the game. Tysabri is approved for use with patients with SPMS.
Avatar f tn m about to start Tysabri. I know there are some risks, side effects etc, but I trust my new Guru.
1896537 tn?1381900009 s a side effect of the Tysabri could be possible, there are other MSers talking about hives as well as other side effects, below are some i found on a google search... http://multiplesclerosis.net/?s=Tysabri+&submit=Go www.tysabri.com/about/side-effects http://www.nationalmssociety.org/Treating-MS/Medications/Tysabri-%C2%AE Hopefully someone who's on Tysabri will chine in... Cheers.....
1831849 tn?1383228392 Glad to hear that things are going so well for you with the Tysabri, and that you are even noticing improvements! It hasn't always been an easy ride for me, but overall, Tysabri has definitely been a good thing. It certainly slowed down the parade of symptoms I was having before I started it. I go for #45 in a couple of weeks. I can't remember - were you negative for the JC virus?
Avatar f tn If you have been on tysabri, please share your experience with me. Did you have similar side effects? Did they go away over time? How much time? I have MRIs scheduled on Friday to check for changes and I'm hoping that will help me make some decisions. Thanks in advance for your experienced!
Avatar f tn If you would forget to take pills, for example, you need to be on an injectible. Consider the common side effects and which ones you can most readily live with. You may not even suffer the side effects, but you need to be prepared for them. I’m sorry you hadn’t had a response for 20 hours … ask questions anytime!
1168718 tn?1464983535 Hi Candy! I've been on Tysabri for almost 2 years now and I am really happy with it. I was afraid of the possible side effects too, but so far I haven't had any. I make sure I get tested for JCV regularly and feel like it really helps me. I haven't had a serious relapse since I've been on it and I've been through enough stressful situations that it could have easily brought one on.
Avatar f tn Sarah what is going on with the tysabri side effects? I forgot if you mentioned how many infusions you have had already I go for my 2nd in 2 weeks and I hope it goes like the first one with no problems . I hope you feel better soon and i wonder what the neuro will say and what treatment he will try if he doesnt want you on tysabri anymore.
Avatar f tn No two people have the same experience. Our bodies are all different. All you can do is give it a try. Have the side effects in mind but know that you will probably not get most of them. By law they have to list them. Some people do not like infusions. I like infusions. I had a situation for cancer when I could take pills instead of infusions. I had to take 16 large pills a day. I was so glad to get back on infusions.
Avatar m tn It is taken, not because of my MS, but because of my reaction to the Tysabri. I have side effects and the Decadron takes care of that nicely. So, that said, the steroid is not treating the MS, it is treating the side effects. Hope that helps explain what I originally said......sometimes cog fog gets in the way.
Avatar f tn I had my first Tysabri infusion this morning and I experienced no side effects so far at all. Over the last 2 months I have had some improvment. I still have all my symptoms but they're less intense. So here's hoping for the best. Hoping this medication works at seriously slowing this beast way down. How are things with everyone? I truly hope everyone has been well or well as can be expected. I'm learning now about the ups and downs and the good days and bad days.
Avatar f tn I am glad to hear that other people are researching Tysabri and not just shying away from the drug due to the possible side effects. All medications have terrible side effects and if we read about every medication we took....then we probably would not take anything. I believe the Tysabri has started to give me my life back and I pray that the longer I take it - the better things will get. Someone had asked about UTI's.
Avatar f tn the new drug is called Lemtrada but it does have serious "possible" side effects involving the thyroid, skin and breast cancer. There are some hot debates on it, my neuro says you take it for 5 days the first year (in a row) and then the 2nd year you take 3 infusions and then you don't have to take any more. The possible side effects are bothering me, but then PML was quite the threat also! I'd read up on it before you consider it.
Avatar n tn How are you feeling on it better? I know it has helped me.
Avatar f tn side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.
1337734 tn?1336234591 When I considered going off of Ty, I made a chart and put all of the DMD drugs side by side and blacked out the side effects I was unwilling to put up with, including the cost of the other drugs being Tier 4 with a 33% co-pay, and looked at what was left. I know where you are coming from! It was a scary thought to make the decision but there are risks to everything, particularly DMD drugs. Hang in there, we're all here to support you regardless of your decision!