tysabri results

Friday I called my neuro to find out if they want me to do a washout period on Tysabri, as they are considering me for the new drug out in March. I've ben on Tysabri almost a year and JC+ from the start The nurse told me my test showed 1.03. which means nothing to me. Anyone know anything about this test?

I will have the results either this Sunday, my next Tysabri infusion, or shortly there after. Assuming a positive result, I would still make it through my March, if not my April, infusions. By then I'm hoping we have a favorable BG-12 ruling from the FDA.

I went to the neurologist today and I am definitely having a flare. I have three new, active lesions on my brain and although they didn't do my spine, she thinks I have a new one on the left between C2-C3 because I'm having issues on my right side now too. I've only had three Tysabri infusions so there's a good possibility I wasn't "fully protected" yet. She said I have very active MS so this is still my best option right now.

I got the official JC virus results, and I am JC positive. We are still staying with the Tysabri at this point, since we feel it is helping me.

Thanks to all of you! You all hit it on the nail. I think he mentioned Tysabri just because it has the best results so far and that is what he would take. It's tempting because of that alone. It is a difficult decision. I have a mild case of MS (little sensory issues) and not far along in to it. There is so much info. out and it is overwhelming. UGH! It is hard to wrap my mind around it all.

This was another big Tysabri news story at ECTRIMS - researchers in Germany presented results on a blood test that identifies patients who will be safe on Tysabri, even if they are JC positive. http://bit.

I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?

I was offered Gilenya when I had problems with Tysabri (which turned out to be something other than Tysabri that caused it) and after reading the cardiac warnings and other side effects, chose not to take it. Tysabri has a wonderful financial support program. They fully donated my first 4 months of Tysabri until I could get an insurance program in place. Tysabri is considered an "outpatient" procedure and under my insurance, is paid for now at 100%.

I am one of the older posters, and I am still on Tysabri. I just had #32. I had the JC virus test but still haven't gotten my results. Overall, my neuro and I both feel that Tysabri has helped slow down the parade of symptoms I was having, and that I'd be alot worse off right now if I wasn't on it. Feel free to PM me if you have any questions. ....

Anyone know anything about Fetuin-A, Osteopontin & Total Cell Count #'s? I just got a copy of last month's LP results. These 3 were the only results, other than the JCV results. The CSF JCV was negative, but all of the others were significantly out of range.... Bueller? Bueller?

Good luck with Tysabri! I'm taking my 11th infusion on Wednesday. The good news, I haven't had any new flairs since I've been on it. I'm taking a "holiday" from Tysabri after this infusion. My neuro says a periodic holiday keeps the incidence of PML lower. I haven't had my JC virus antibody tested. Is this a blood test, or a urine test?

There is an alogirthm for the chances of contracting PML while on tysabri. I believe it is on the tysabri website among other places. I will see if I can find it for you and report back.

I know the infusion center I go to, the nurses have nothing but good things to say about the results of those using Tysabri. I am still in the middle of the road on a decision to begin it or not. I wish you the best.

I'm not having results on this web site, either.

I'm sorry you were hit with this, so out of the blue today. I think maybe I know how you feel. My neuro did the same thing at my appt in April, when I was also having trouble with Rebif and he said I should start thinking about Novantrone. I kind of felt like I had been punched in the stomach, and like you, thinking that I had been doing OK all things considered, meanwhile he is concerned about how active my disease course is and talking about aggressive therapy.

My mom has battled MS for over 20 years now and is now wheelchair bound. She has been on every medication available with little results, and has now been on tysabri for almost two years. Last week when she went to the doctor, she was informed that patients who has been on the tysabri infustion for over two years have a greater chance of developing the brain infection PML. I believe she was told the odds went up to 1 in 800.

So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!

Glad to hear you are having good results from the Tysabri!! Energy is always in short supply...enjoy it!!

My MS doc always gives a small dose of Solumedrol, which is much larger than a usual prednisone dose, to his new Tysabri patients. They get the IVSM in the first hour. Then they get the Tysabri in the next hour. His experience says that the mini-dose of IVSM helps the Tysabri get to work faster by cutting any inflammation in our system. He does that for the first three Tysabri doses when just beginning this therapy. I hope you are less itchy today and can reach your doctor in the morning.

I am not doing well on any DMD. After 2.5 years trying my neuro has decided to try Tysabri. I have to have a blood test first. I am looking forward to trying it after reading the results others have had. I personally know someone on it and she is doing so well now. I am tired of being sick!

Hello all, It just suddenly occurred to me that I hadn't logged in here for ages so I thought I'd see how everybody is getting on. Also, for those of you who knew I was not on a treatment for a long time, I have started Tysabri! My second infusion is on Thursday & I'm daring to feel very positive. I was very surprised by the first infusion.

Tysabri results

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tysabri