tysabri reactions

Not to mention, that I will soon run out of good sites. I am a bit afraid of the Tysabri. Though she says there have 6 or so episodes of PML, some were Europe where they don't have the Touch program and pt are not followed as closely. She says 83% of users have no flairs in a 2 year study. She will see me monthly or sooner of course if necessary.

I was changed to Tysabri and had my first infusion yesterday and everything went great, no reactions or side effects. However, I could swear I have more energy today. I have not been shopping for months and today I was able to go shopping. Is this my imagination? Just a rare good day? Or could the med already be having an effect on my fatigue? FYI, all other symptoms are pretty much the same.

I have been taking Tysabri for about 10 years now. After my treatment yesterday, we stopped at a house we own and worked in the yard about 10-15 minutes. After taking my shirt off when we got home, my husband told me to go look in the mirror at my back. They looked like bug bites, yet we've worked in that yard for about a week and I have not been bothered. I then began to wonder...did this happen because of my treatment....or are they just bug bites of some sort?

I am allergic to cipro, topamax, zonegran, lamictal, keppra, tysabri and gilenya................ I asked my Neuro if it makes sense that MS patients would have a higher rate of allergic reactions due to our over active immune systems.....His response was that in theory that was completely correct, it only stands to reason if our body attack our own myelin, it would really attack an outside substance, like a foreign medication. I wonder how many MS patients have allergic reactions to medicines?

Well, it looks like I can't take copaxone. I get injections site reactions the size of soft balls. Fire engine red and itchy for an entire week. What do you do when there is no DMD that you can take? That's the boat I'm in now. Copaxone was really my only hope as far as a dmd goes. I can't do the interferons because I also have lupus. (in lupus, your body makes interferon) I'm open to suggestions.

of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?

Hi DV - I was on Tysabri for 20 months. I had no reactions of any kind. I would still be on it except A) I converted to JCV + and B) it stopped working. I had about a three month hiatus before starting Rituxan, I think that had as much to do with waiting for insurance approval than clearing the Tysabri ou.

I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?

I don't know what to think. I started on Rebif when I was Dx'd and the site reactions were so bad I switched to Betaseron. The Beta worked well for a while then I started getting reactions from that too. My Dr thought about switching to copaxone but if every other day injections were bad enough then every day injections are probably not a good idea.

I was on copaxone from November 09 till this past July. I was lucky I guess since I didn't have any allergy problems with it. The reason I stopped taking it was the medicine wasn't doing any good for me. Then I started Tysabri, not sure if it's going to do any better, but it's supposed to be the best medicine available. I sure as heck don't miss having the welps or knots on my thights from the Copaxone shots.

I'm signed up to start Tysabri in the next couple weeks. My doctor really recommended it as he thinks it would be a good option for me. It's just kind of difficult for me to wrap my mind around because it seems like it's used more as a last resort rather than a first line of defense. This will be my first DMD, and I'm a little nervous. Is anyone else using this as a first DMD? What kind of side effects can I expect?

I will be having my fourth Tysabri infusion on Monday. I have been keeping a journal ...It is called "Hoping for a Miracle"...lol...At any rate, I had my first infusion a bit too late and landed in the hospital for thirty days. The day I was released I had my second. Now infusion two and three seemed to give me three weeks of great hope.

This person was previously on Tysabri for 3 years, and was JC positive. There is no information yet as to how long of a wash out period they had before starting Gilenya, how long they were on Gilenya before getting PML, what kind of symptoms they were experiencing, or any info yet about the condition of the patient.

d this past year but see you are on Tysabri. Was ty the firstDMD you were put on? Sorry for my confusion. Hopefuly the insurance won't pull the plug on your PT. Mine did the deep tissue/muscle work yesterday and it immediately made a difference I can see how it would be very beneficial to have done regularly. Good luck with the SSDI appeal - from what I know having the attorney is the best way to come at this.

Gilenya with my heart attack history, and now the copaxone with the reactions. That didn’t leave me many options and he sent me away for a month to contemplate switching to Tysabri. I had a really good discussion with him about why in MS don’t we treat the disease as aggressively as possible with the strongest drugs we can get. I definitely don’t want to just wait around and see if I can be lucky or not and avoid further disability.

My sister, who has MS, is having the Tysabri infusions. I believe she said that her medicine and infusions costs are $7,000 a month. This medicine is quite expensive, and is usually not the first drug of treatment when diagnosed with MS. Typically, the other disease modifying drugs have not worked before this one is prescribed. As far as taking shots for the rest of my life, I really doubt it. What I understand is that a new oral medicine, Fingolimod, will be available next year.

I almost completely missed this thread. I'm glad I decided to go further down screen . . . My sister first saw a dermatologist and I have no idea what tests he ran on her. My neurologist took the diagnosis from the dermatologist and looked at her skin and came to the conclusion that she has to come off Rebif. She also is progressing in her disease and is on the verge of being "upgraded" (or "downgraded"???) to secondary progressive.

s neuro appt as I am sure he is either a) going to try to talk me into staying on Tysabri (noooooo as I hide under the covers) or asking me what my 2nd choice is (???) but am clueless. I KNOW I don't want anything with the word NAUSEA associated to it in any way. Anyone want to give me their experience. I'm not shot shy, have given too many of those, just being whimy and wanting as few side effects as possible.

Hi Candy, I was on Copaxone for several months,but I had to come off it because of adverser reactions. I didn't have any reactions to coming off it though. I didn't have a dmd for about six weeks afterward, then I went on Avonex. I don't have any personal experience with the newer drugs.

Tysabri reactions

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