tysabri questions and answers

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If you need to switch from Copaxone and you are uncomfortable with the low risks of Gilenya and Tysabri, the others have a good safety profile and side effects that usually can be mitigated.

Rita, you are the leader here when it comes to Tysabri and the risks. Thanks for staying on top of this and sharing what you find out. I know there is a washout period for the CRABS before starting tysabri, but I'll have to look at my papers to see about the washout period afterwards. In the meantime I'll take your word for it - you are a very informed consumer.

t do a lengthy washout period after stopping tysabri and I understand that patient had also been on tysabri for a longer period of time. How will they ever untangle is it was the Gilenya, the Tysabri or both that opened the door for PML to enter? Argh! Why aren't answers these days just clearly marked? I hate having all these unanswered questions about therapy that is so critical.

You would not be on two DMDs at the same time, especially not with Tysabri. Previous DMD use has to be stopped and there is a washout period of at least 30 days before you can begin Tysabri. If the neurologist doesn't require a washout period, get out of there and go to someone who knows what they are doing. If you choose to go off of Tysabri, there is going to be another washout period. The recommended length for Tysabri to gilenya, is about 4 months.

-) Following my DX 2 1/2 years ago I went right on Tysabri. I had 20 infusions before I converted to JCV + and the Tysabri stopped working. While I was on it I had no ill effects of any kind. @CheyTag - Was there ever any reason to dismiss the hemiplegic migraine dx? From what little I know it could account for your symptoms.

Hi burbanchick, Lbradley (Lori) and Cosmobirdie (Rita) both are on tysabri. Rita has written about her experiences and conerns and would be helpful to you. the drug is controversial in that there are a very few recorded deaths as a side effect, and you and dude should be aware of the risks. BUT the people here getting the IV infusions all are happy with their choice.

Have you been on any drugs for your MS before? There are the interferons (rebif, betaseron, avonex), copaxone, tysabri and now Gilenya ( a pill). There are many new drugs coming up soon, as well. Good for you to move on to another neuro - this is your decision to make and the doctor should be objective and available to answer your questions but not force you into something you feel uncomfortable with. I hope you'll stick around and share more of your story.

s while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!

Guess what chemo worked in my case. He is thinking Tysabri to be more aggressive. I have PPMS and I would do Tysabri if I did not have Cancer.

I was on Copaxone and rebif prior and had flares. 2 years on Tysabri And no real side effects, just the wearing out a few days before next infusion. My neuro loves the "juice" so I imagine he will keep me on. I used to be a NP now on disability and I can't totally understand my MRI results. Just frustrating. I am only getting tested once a year for JCV. I have been taking my health a lot more seriously and just lost 50 pounds.

of prednisone being ordered at the time of tysabri due to the action by way tysabri works, and the steriod combo. But, I have not read it. This is one of those things where a doctors orders are called for. Are you scheduled to start infusions?

If you put your questions into the search box above, or into the search archives box which is above all the latest posts, you will find the technical information on this drug and many many of the forum posts on the topic. Just type "what is Tysabri" or what ever you want to know and if its already been talked about it will come up :-) Cheers.....

Hiya, Just figured I'd give you guys an update - I had my 2nd infusion on Nov. 4th. (and remember, if you all are getting tired of this, just let me know - I don't want to be boring everyone with my Tysabri stuff, lol.) This time, they ran the infusion in alot faster - it must have only been 30 or 40 minutes. I wasn't really paying attention, cause I didn't expect it.

Morning MsLeigh, Guitar girl is active on the forum here and is on Tysabri - my brain is not working too quick this a.m. She comes 1st to mind... May I ask how long you were on the copax? All the best to you with the switch, Leigh. Many MSers do well with tysabri I've read.

side effects for each other medicine and now this with tysabri. Has anyone else been on tysabri and developed c. Diff from it? If so, what did they do to help it? Stop tysabri? Any information would be greatly appreciated.

My sister has been using tysabri for 10 months and is doing extremely well! I can ask her any questions you want.

She was not good at questions and answers but in her defense she was a last minute fill-in. If they have a prepared neuro in your presentation then perhaps you can glean more information Will be looking to see if you can relate any good information from your meeting!

I almost completely missed this thread. I'm glad I decided to go further down screen . . . My sister first saw a dermatologist and I have no idea what tests he ran on her. My neurologist took the diagnosis from the dermatologist and looked at her skin and came to the conclusion that she has to come off Rebif. She also is progressing in her disease and is on the verge of being "upgraded" (or "downgraded"???) to secondary progressive.

I spoke to my neuro when I was thinking of getting one, because I had already been on Tysabri for 2 yrs at that point, and Tysabri is an immunosuppressant. My neuro could see no reason why I couldn't get one - just stressed how important it was keep it clean while it was healing, and be sure I had it done at a reputable place. I've had no problems with it at all. It has never been an issue with MRIs, either.

this family....to share ideas and information and questions and laughs and support. You all help me in so many ways, and I just want you to know I appreciate each and every one of you!

Im 30 years old and been taking oxycodone 30mg since sept 07 after a motorcycle accsident and am trying to stop taking them I take between 18 and 24 a day and have nodesire to take these any more have buprenorphine 8 mg that i got from a friend and just looking for the best way 2 take them with being the least uncomfortable. i tried today by not taking any when i got up but by 12:30 I had no choice.

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