tysabri oral

He asked me whether I was interested in being in the Tysabri study. I am only 37 and have only had one relapse. I know I will be deciding on a treatment and not sure what direction to go. This neuro is big in research and he spent a lot of time talking with me about MS. He mentioned a JC Virus and took my blood to look for it. If I don't, I would be a good candidate for Tysabri. It has 67% reduction in relapses but also risks getting PML.

I saw my neuro on Friday and in the course of a fairly long appointment and discussion, I asked a lot of questions. One in particular had to do with oral meds, which we've been told for years are right around the corner. He says yes, they'll definitely be available very soon, but prescribing them will be difficult because of their side effects. Only select patients will get them. I asked if this included those who couldn't tolerate or just didn't do the injections.

I have been on Rebif for 8 years but my most recent MRI shoes several new lesions since 2010 and dr wants me to change therapies. I have ruled out going to another type of injection and don't think I should do Tysabri yet. Does any one have experience with switching over to Tecfidera, Aubagio , or Gilenya ? The new lesions are in the cerebellum and have caused walking and balance issues. Thank you in advance for any advice or info.

My symptoms all magnified, and getting through a day of work was monumental. I guess it was all a matter of time before I flared. My last Tysabri infusion was on 11/2/13, and it took my new neuro and new infusion site two months to get their stuff together. The day before yesterday (1/8), I finally got a Tysabri infusion - Halleluiah!!! Hopefully, this flare will subside soon. I'm not one to go for IVSM unless I absolutely have to.

Hard to answer your question without more information. Why do you have only those four choices? Avonex (which I’ve used for 11 years) and others are notably absent from your list. Avonex, Rebif, and Betaseron have been around longest and have the strongest safety profiles. If your MS is more aggressive, then you may be more inclined to consider Gilenya, Tecfidera, Aubagio, or Tysabri. All of the DMDs are discussed from a neutral perspective at the link below: http://www.nationalmssociety.

Janine, Wishing you well with the new oral med. Like Daisy girl, I was given the options for Tysabri and Gilenya. I will be doing Tysabri, for 1 year. If not doing what it "should" be doing, I will then most likely start Gilenya.

My Dr really would like me to continue on Tysabri as oppposed to switching to an oral treatment since apparently Tysabri is working and my risk of danger is very low. You are welcome to send me a message and we can talk more. I can tell u that I too am afraid that my MS is progressing to far and that is why the Drs have moved on to Tysabri, but the Drs won't discuss it and insist I am still labeled RRMS, and just am not having luck with the other meds. Everyone is different.

Over the last 12 years he has been on all the ABC drugs. Now he is completing the 2 year mark of using Tysabri. Dr Appointment in 2 weeks assume he will stop infusions. I wonder what is next???? How are others doing after all these treatment and now what do they take???

BG-12: Detailed results from CONFIRM (Comparator and an Oral Fumarate in RRMS), the second pivotal Phase 3 study evaluating the investigational oral compound in people with relapsing-remitting MS (RRMS), will be presented for the first time.

Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.

I went to the neurologist today and I am definitely having a flare. I have three new, active lesions on my brain and although they didn't do my spine, she thinks I have a new one on the left between C2-C3 because I'm having issues on my right side now too. I've only had three Tysabri infusions so there's a good possibility I wasn't "fully protected" yet. She said I have very active MS so this is still my best option right now.

call the companies, I found that many offer financial assistance. Biogen and Copaxone do for Tysabri and I think the new oral pill does. Don't know which medications you refer to or if they are MS meds, but do contact the companies. It's worth a try, my first 2 years of Tysabri were free if I needed them.

I've been on Avonex for the past two months. The side effects have been minimal for me. My problem is now my liver enzymes are elevated. Dr. said I may have to try something else if my elevated liver enzymes continue. I don't like the idea of a daily shot with Copaxone, but I'm also concerned about the side effects of the oral medications. I won't consider Tysabri at this point because my MS diagnosis is fairly new and I want to try other treatments first.

Well, after long bouts of coughing and not breathing well and knee pain (the 2 are not related, just having a couple things at once.) The breathing issue is very bad asthma. Thank goodness no pneumonia, but I do have bronchitis which brought on the nasty asthma. So, new antibiotic, inhaler, nebulizer med, and STEROIDS. I am thinking about passing on the steroids, as it for make the Tysabri infusion another month out. We will see, although I couldn't have the Tysabri being sick either.

he has been on betaseron for 2 years, ivig for 2 years and tysabri for 2 years. he has not ben on any meds since aug 2010. he is now on steroids and has to decide what med to go on. he had to stop the tysabri because he was building up antibodies against the medicine. he former doctor suggested he go off it and consider the oral medince. since then his doctors prtice closed and now we are seeing a new doctor. we are very confused. does any one have any advice?

Not to mention, that I will soon run out of good sites. I am a bit afraid of the Tysabri. Though she says there have 6 or so episodes of PML, some were Europe where they don't have the Touch program and pt are not followed as closely. She says 83% of users have no flairs in a 2 year study. She will see me monthly or sooner of course if necessary.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

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tysabri