tysabri october 2006

I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.

I just completed my 41st Tysabri infusion the day before Thanksgiving. For me, since restarting the medication in October 2006, I have not had one single relapse nor any new lesions on my recent MRIs.

The research side of my MS Practice has identified a CSF biomarker for disease activity. The research is featured on the cover of this month's Multiple Sclerosis Journal. http://tischms.org/news/tisch-ms-breakthrough-biomarker-research-featured-cover-article-october-2013-issue-multiple I'm a beneficiary of this discovery. I had been on Tysabri for 20 months. At 18 Months I converted to JCV +, and we discussed switching from Tysabri to Tecfidera.

they sit right there with you during your infusion and an hour afterwards and then you are done foe a month. I sat last month with a young man who has been on Tysabri since 2006 and he says its the best. Take care and keep us posted, regardless of what you decide on. Ultimately its your decision!

At the six month mark my neuro suggested Tysabri but I wanted to wait a full year. (By the way, she felt Rebif was the stronger of all the shots). My body managed to handle the steroids until about the tenth month when no could do anymore. I never relapsed but felt like it would happen any moment. That is when I would go in for steroids (every three or four weeks). So, long story short they put me on Actar Gel which was suppose to last about ninety days in my system.

I was offered Gilenya when I had problems with Tysabri (which turned out to be something other than Tysabri that caused it) and after reading the cardiac warnings and other side effects, chose not to take it. Tysabri has a wonderful financial support program. They fully donated my first 4 months of Tysabri until I could get an insurance program in place. Tysabri is considered an "outpatient" procedure and under my insurance, is paid for now at 100%.

the last day of my period was on october 5, 2006. i had sex on october 6, 2006 and october 20, 2006.. when did i become pregnant??

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

” The patient, who was admitted to the hospital on October 24, underwent plasmapheresis to remove Tysabri from their system and was released from the hospital on October 28. The patient is currently under the care of the treating physician." No update yet on how she is doing. I had heard about a case of possible PML here in the US, last week, so I am assuming it is the same woman. Her husband posted about it on a site I found with people on Tysabri.

Glad your Tysabri went well. Not so glad on no sleep! Let's hope that is a one night stand! Good for you!

I went to the neurologist today and I am definitely having a flare. I have three new, active lesions on my brain and although they didn't do my spine, she thinks I have a new one on the left between C2-C3 because I'm having issues on my right side now too. I've only had three Tysabri infusions so there's a good possibility I wasn't "fully protected" yet. She said I have very active MS so this is still my best option right now.

I normally get the pain about 6 months apart. First got it in August 2006, had my gallbladder out in October 2006, next pains in Jaunary 2007, August 2007, January 2008. The pain is Sever upper back pain, nausea, vomiting, hot and cold flushes and can last from 10 minutes to several hours. The longest was about 8 hours. If any one can help me out it would be much appreciated. I'm worried that theres something serious wrong with me, yet no one can find anything.

the last day of my period was october 5, 2006. i had sex on october 6, 2006 and october 20, 2006. when did i become pregnant?

My neuro monitors CD4 cell levels on all his Tysabri patients....because the risk of PML increases as the CD4 cells decrease. I had my base line completed and just received my results. My CD4 cells were over 2000 (the range is 490-1700) Anyone know why my CD4 cells would be so high?? I know they are lymphocytes....

In fact, my latest blood test turned up positive for JCV and my doc and I may need to start talking about switching away from Tysabri. That would suck! I love my Tysabri :-) What makes you want to avoid it?

As of March 2008, more than 26,000 patients were on Tysabri® worldwide. Since the re-launch of Tysabri in July 2006, no new cases of progressive multifocal leukoencephalopathy (PML) have been reported. PML is an often-fatal viral infection of the brain. Data from the PLEX study suggest that plasma exchange may be an effective procedure for accelerating the removal of Tysabri from the blood if PML infection is suspected.

Thanks for the update, Kyle! I know that my hospital is a site that ran both CONFIRM and DEFINE and there was a good bit of positive buzz around them alright. I hadn't even noticed ACTRIMS was just on. ECTRIMS is usually in September or October, I think. That's when the department is emptied out! They likely did have a few over in Florida though.

Continued with more of the same - flareups w/ exertion - never in full remission. 2006: March-May - Unidentified pain in left side of face and aching in left upper teeth - negative CT scan of sinuses - negative dental problems. 2006: June - Severe pain in upper abdomen - almost went to emergency room, but didn't - negative CT scan of gallbladder. 2006: August - diagnosed with several food allergies including Gluten and Cow's Milk.

I normally get the pain about 6 months apart. First got it in August 2006, had my gallbladder out in October 2006, next pains in Jaunary 2007, August 2007, January 2008. The pain is Sever upper back pain, nausea, vomiting, hot and cold flushes and can last from 10 minutes to several hours. The longest was about 8 hours. If any one can help me out it would be much appreciated. I'm worried that theres something serious wrong with me, yet no one can find anything.

I was having relaspes about every three months at which time I was prescribed IV Solu-Medrol. I was started on Tysabri in late 2007, and while on the medication had no relaspes, and felt better (physically) than I can ever remember feeling. My neurologist decided not to participate with my particular insurance, so I was forced to change physicians. The new physician at a well-known research hospital states that he doesn't think I have MS; although, he cannot tell me what I do have.

In early 2006 i had protected sex in Panama with women that i did not know status. I have been tested through ELISA a couple of times since and was neg, and I know the test to be very accurate I dont question that. 16 weeks after exposure I had a oral ulcer around the throat area i have had soft stools on and off for the last couple of years. I recently developed Guttate Psoriasis and eventually Psoriatic Arthritis.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

Tysabri october 2006

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