tysabri nice

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

Hi all, I haven't logged in for ages but hope one of you will be able to answer a question for me. I've had eight infusion's so far of Tysabri and am doing really well on it. I'm coming up for a whole year with no relapses and I don't feel bad after my infusion. However, I have started to notice a couple of issues. The first is that around a week after infusion I develop big hives if I sit in the sun (not such a problem in the UK since it's rarely sunny!

Hi SS - Congrats on your move to Portlandia. Even bigger congrats on getting back in your running shoes! Keeping our bodies as strong as we can is really important. As to Tysabri's healing powers I'm not so sure. I am sure that it is effective at dramatically slowing the progress of MS. I'v had 18 infusions and Tysabri is the only DMD I've used. Since starting Tysabri I've seen no appreciable worsening of my MS. If I can stay where I am now I'll be very happy.

I do not have typical ms, but a variant that is still clinically not diagnosed. I have a great neuro @ Stanford & he is recommending I start on Tysabri ASAP. I read up about the JC virus, and regardless plan to begin treatment next week. I don't know anyone with ms or ms variants so I want to know more about Tysabri from people who are on it or have used it. What is your experience? Pros/cons? I have read about side effects but I want to hear your thoughts & how it made you feel.

Most know my unhappy experiences with Tysabri recently but DH drug me home from the ER early this morning. Had been nauseous and upchucking since Monday after my August Ty infusion 10 days ago. Nice doc, ran tons of labs (only WBC was elevated) and x-rays and wonderful meds and hydration fluids. He and I both feel was Tysabri side effect.........now the interesting part is that I seriously burned my esophagus and now have days of liquids and meds while it heals.

I took Tysabri as my first drug, and was + from the beginning. I've been on it for almost 3 yrs and I think it has helped prevent future permanent flares. I have not heard that Tysabri can lead to more, its job is to help prevent more. It will not, however, reverse anything that has already happened or take away the pesky symptoms we often get. You can always go off of it but it sure is nice to only worry about it every 28 days!

My symptoms all magnified, and getting through a day of work was monumental. I guess it was all a matter of time before I flared. My last Tysabri infusion was on 11/2/13, and it took my new neuro and new infusion site two months to get their stuff together. The day before yesterday (1/8), I finally got a Tysabri infusion - Halleluiah!!! Hopefully, this flare will subside soon. I'm not one to go for IVSM unless I absolutely have to.

I know it's been awhile since I've been on here, but wanted to tell all the great people who gave me their support THANK YOU from the bottom of my heart. I could say thanks and all the nice things in the world but it wouldn't do the way I feel for you all justice. Life has turned around for the most part for me. Other than missing my kids everything else has changed drastically in life.

Know others have worse problems, but I'd just love a vacation without Tysabri side effects. I diligently took my Prilosec for the 5 days, and wouldn't you know, on the 6th day, I was back in ER that night, hooked up to IV and fluids. They had to give me a bolus bag before they could draw blood for the labs, guess I was dehydrated. I love it when they make regular rounds with WARMED blankets!

m 18 and not sure which medicine to choose. I have narrowed it down to Copaxone and Tysabri, but am not sure which one to choose. I have a phobia of needles that I have been trying to overcome so giving myself a shot wouldn't be optimal but I could manage. I was also worried about developing PML with Tysabri but my doctor made it seem as if he would check my bloodwork regularlly and it wouldnt be an issue. I just wanted to know anyones personal experience or opinions on the two.

Have you had your follow-up appt? Unfortunately ,none of the dmd's promise to prevent all lesions and relapses. (Wouldn't that be nice!?) The best we can hope for is a reduction... If your neuro thinks this one is no longer effective for you, a change will be made. If you have had the follow-up appt, and nothing was said about your meds- it's perfectly within your rights to bring it up yourself. A phone call may be all that's needed. Best of luck to you.

HI Rita, My friend on Tysabri that you spoke to always got frequent UTI's while on Tysabri, She went off the Tysabri six weeks ago since she was getting alot of new lesions on her spine and wanted to try LDN. Now that she is off the Tysabri, she is having pain for the first time with MS. She is not getting very good effects from the LDN and may end up back on Tysabri. I'll catch up with you later!!

Glad your Tysabri went well. Not so glad on no sleep! Let's hope that is a one night stand! Good for you!

The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.

Hello, all! I was originally diagnosed with primary progressive multiple sclerosis in May 2007, when I was 26 years old. That diagnosis was changed to progressive relapsing multiple sclerosis in October 2007, when I had an exacerbation. My neurologist has never been completely comfortable with my diagnosis, because I don't display "typical" MS in many ways. My first MRI showed more lesions along my cervical spine than in my brain, but my spinal tap displayed (?

Now, based on the last MRI, he has officially diagnosed me and is recommending that I go on Tysabri infusions. From what I can tell on this forum, it seems like he's hitting an ant with a sledgehammer. It seems very unusual for people to be prescribed Tysabri right off the bat. I am very confused as to what drug to go on, if any. His first choice for me is Tysabri, followed by Gilenya, followed by Copoxone.

I was scheduled to have my first Tysabri infusion tomorrow morning at 8:30. The infusion nurse called me Friday at 5:00 and told me we needed to reschedule because they needed one more thing from insurance. This is the same thing that happened with my first insurance approval and then it was denied. I'm worried the same thing is going to happen this time. They had me reschedule for May 30th. I'm afraid to get my hopes up. I guess time will tell.

Definitely call Biogen, they are very nice and will walk you thru it. I used them when I started Tysabri and they paid for the first 3 months themselves until my insurance became effective. But I was approved for 2 yrs worth.

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