Tysabri news patients

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tysabri

1831849 tn?1383228392 This was another big Tysabri news story at ECTRIMS - researchers in Germany presented results on a blood test that identifies patients who will be safe on Tysabri, even if they are JC positive. http://bit.
2015036 tn?1332997788 Some of you probably received the same email I did. Biogen sent me an email saying they could now help people get financing, even if you're on a Medicare plan. So far, only Biogen is working with Medicare patients. There's a lot of paperwork involved, but it look like I'm finally going to start a DMD again. All of Biogen's MS meds are available for the program: Avonex Plegridy Tysabri Tecfidera It's worth calling about.
1831849 tn?1383228392 Something new from the man who developed Tysabri. This talks about repairing/reducing inflammation. http://www.businessweek.
572651 tn?1530999357 Very important news about Tysabri. I have to share this news now, even though I am so tired after my second opinion today with a Neuro. Tysabri WILL be withdrawn from the EU market within the next 6 months. Neuro told me that more people have PML than we know, but he would not give me the figures. It was released to Neuros and Dr's alike on Monday - they were told not to give information out to patients!!!!!! People like me who asked!!!
1831849 tn?1383228392 We can't seem to catch a break! http://www.medpagetoday.com/Neurology/MultipleSclerosis/41255?
572651 tn?1530999357 t do a lengthy washout period after stopping tysabri and I understand that patient had also been on tysabri for a longer period of time. How will they ever untangle is it was the Gilenya, the Tysabri or both that opened the door for PML to enter? Argh! Why aren't answers these days just clearly marked? I hate having all these unanswered questions about therapy that is so critical.
Avatar f tn while on Tysabri. Any news would be appreciated. Also, does anyone report increased fatigue while on Tecfidera? I am over all of the flushing and gastro upset. Just very fatigued - way more than ever before. I am taking Nuvigil and could not make it through the day without it! Be well and try to stay positive everyone.
488198 tn?1493875092 //multiplesclerosis.
Avatar f tn Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.
572651 tn?1530999357 The ongoing TYSABRI Observational Program (TOP) assessing long-term outcomes in RRMS patients in the postmarketing setting TYNERGY, a multicenter one-year clinical follow-up study conducted to evaluate the effect of TYSABRI on MS-related fatigue DEXPRAMIPEXOLE: Design, methodology and baseline features of EMPOWER, the largest randomized, placebo-controlled, Phase 3 clinical trial conducted in patients with ALS to date Additional presentations include long-term data for AVONEX; data highligh
294425 tn?1288528395 And you are right - a big part of the FDA letting Tysabri back on the market in the first place was that Tysabri patients lobbied hard to have it back. Plus, at that time, the thinking was that PML was linked to Tysabri being used in conjunction with other MS treatments, especially interferon. And for 2 years, that seemed to be the case, and everyone was just starting to breathe a sigh of relief... :) Novantrone scares me more, too.
572651 tn?1530999357 //www.businessweek.
Avatar f tn They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?
Avatar f tn Only Tysabri has shown the abilty to cut relapses and lesions by 2/3s. Tysabri is relatively new and is still has some issues. In fact no one knows what it does after 2 years. The more std. MS drugs, which are primarily interferons by the names of Avonex, Rebif and Betaseron cut MS activity by about 1/3. And thats if you have Relapsing Remitting MS. The drugs are all injected. A new drug that is oral "finglomod" is in phase 3 clinical trials.
Avatar f tn I wanted to let all my new friends know that I had my first MRI today since I started taking the Tysabri 6 months ago. I was diagnosed in 1995 and in 1996 I started Avonex- which made me sick everyday for years. I changed to Copaxon in 2000 and I hated it, so I decided to quit all MS medications, except for muscle relaxers, anti-depressants, etc. In 2007, my new neurologist asked me to try Rebif, but my insurance would not pay for it.
1950519 tn?1324518193 Over the last 12 years he has been on all the ABC drugs. Now he is completing the 2 year mark of using Tysabri. Dr Appointment in 2 weeks assume he will stop infusions. I wonder what is next???? How are others doing after all these treatment and now what do they take???
294425 tn?1288528395 This person was previously on Tysabri for 3 years, and was JC positive. There is no information yet as to how long of a wash out period they had before starting Gilenya, how long they were on Gilenya before getting PML, what kind of symptoms they were experiencing, or any info yet about the condition of the patient.
Avatar n tn I had been on Tysabri for 22 month's and just recently stopped. I was wondering if any new info. is out there on the drug Rituxan for MS? I have SPMS with RRMS. I was in a study 3 yrs. ago at UCSF and did really well on Rituxan. However, Rituxan is not an approved drug for MS and at that time my insurance would not cover it so I had to discontinue taking it. Or should I just take a break for awhile and not take any ms med"s?
1831849 tn?1383228392 Lemtrada is a monoclonal antibody, similar to Tysabri and Rituxan. Like Rituxan it is administered via annual infusion. Lemtrada is approved for sale in the European Union, Australia and Canada. http://www.businessweek.