Tysabri news november 2009

Common Questions and Answers about Tysabri news november 2009

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Avatar f tn You have to be off of Tysabri for 3 months before you can start it and I would have to stay down there for the week, so certainly have to save up for that! http://photos.al.com/4558/gallery/lemtrada_approval/index.html#/0 It's a great article and happy to share it. And I'm feeling back to normal, now that CPAP is covering the night shift for me.
1831849 tn?1383228392 This was another big Tysabri news story at ECTRIMS - researchers in Germany presented results on a blood test that identifies patients who will be safe on Tysabri, even if they are JC positive. http://bit.
Avatar f tn I have been treated with tysabri for about 18 months. (Prior, all the CRABs) I had a MRI recently reviewed by same radiologist who did several of mine in 2008. He notes increase in size of specific lesions from previous reports including his own, yet refers to them as unchanged. He also notes prominent perivascular spaces are seen within the lower basal ganglia bilaterally. I can see it clearly on the film as well.
Avatar f tn I wanted to let all my new friends know that I had my first MRI today since I started taking the Tysabri 6 months ago. I was diagnosed in 1995 and in 1996 I started Avonex- which made me sick everyday for years. I changed to Copaxon in 2000 and I hated it, so I decided to quit all MS medications, except for muscle relaxers, anti-depressants, etc. In 2007, my new neurologist asked me to try Rebif, but my insurance would not pay for it.
Avatar f tn Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.
1045086 tn?1332126422 //www.nationalmssociety.org/news/news-detail/index.aspx?nid=2525 ---------------------------------------------------------- This one is a clinical study being conducted by Biogen to evaluate the effectiveness of Tysabri in people with SPMS. 800 people are being recruited worldwide to participate in a double blind study (meaning some participants will receive Tysabri and some will receive a placebo and you won't be told which group you are in during the study).
1831849 tn?1383228392 Good news for Lemtrada (alemtuzumab). The Peripheral and Central Nervous System Drugs Advisory Committee has recommended that the FDA approve alemtuzumab for the treatment of MS. As with any of our favorite concoctions there are serious risks, but the reduction in relapse rate seems to outweigh them. http://www.medpagetoday.com/Neurology/MultipleSclerosis/42899?
572651 tn?1530999357 This release last week announced that Tysabri is now in Phase 3 studies for use in treating SPMS. That has to be good news for anyone following the ASCEND trial. You can read the details at - http://www.biogenidec.com/PRESS_RELEASE_DETAILS.aspx?ID=5981&ReqId=1653040#.TyFoJl4mTgY.
2063887 tn?1337829746 My insurance finally approved Tysabri!! Both neuros recommended it, but we've had issues getting approval. My new one was willing to fight for me. I have my first infusion Monday morning. My son graduates on Wednesday so I'm hoping all goes well!
Avatar m tn Hi Sammie- I hope your doctor is wrong :-) I was diagnosed last fall with secondary progressive MS. By the time I realized there was something wrong I had already moved from relapsing, remitting MS to secondary progressive. Turns out I've had MS for more than 20 years! My MS doc started me on Tysabri in November and I've had 6 infusions. The goal is to keep my MY from progressing any further. He seems confident that Tysabri will do this.
Avatar f tn while on Tysabri. Any news would be appreciated. Also, does anyone report increased fatigue while on Tecfidera? I am over all of the flushing and gastro upset. Just very fatigued - way more than ever before. I am taking Nuvigil and could not make it through the day without it! Be well and try to stay positive everyone.
1831849 tn?1383228392 As I type my 12th Tysabri in fusion is flowing into me! It's hard to believe that it's been a year since my diagnosis. I've learned more about MS and life with a life long disease. I've made a few minor changes to accommodate it, but fortunately my life is largely unchanged. Believe it or not, learning I have MS has explained a lot of seemingly unrelated issues. In that sense my DX came as something of a relief :-) Here's looking forward to 12 more Tysabri juice boxes!
1831849 tn?1383228392 We can't seem to catch a break! http://www.medpagetoday.com/Neurology/MultipleSclerosis/41255?
572651 tn?1530999357 t do a lengthy washout period after stopping tysabri and I understand that patient had also been on tysabri for a longer period of time. How will they ever untangle is it was the Gilenya, the Tysabri or both that opened the door for PML to enter? Argh! Why aren't answers these days just clearly marked? I hate having all these unanswered questions about therapy that is so critical.
1831849 tn?1383228392 I had my 5th Tysabri improvement last Sunday. Since then I have noticed a major improvement in the way my legs feel and work. I mean a major improvement. My legs have not felt this good in a very long time. I have also been exercising regularly for the last month and have lost a bunch of weight. I'm trying to determine to what I can attribute the improvement. Is it the Ty infusion? The exercise? the weight loss? I'm kinda hoping it's the Tysabri.
Avatar f tn Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.