tysabri news 2010

This was another big Tysabri news story at ECTRIMS - researchers in Germany presented results on a blood test that identifies patients who will be safe on Tysabri, even if they are JC positive. http://bit.

I wanted to let all my new friends know that I had my first MRI today since I started taking the Tysabri 6 months ago. I was diagnosed in 1995 and in 1996 I started Avonex- which made me sick everyday for years. I changed to Copaxon in 2000 and I hated it, so I decided to quit all MS medications, except for muscle relaxers, anti-depressants, etc. In 2007, my new neurologist asked me to try Rebif, but my insurance would not pay for it.

//www.nationalmssociety.org/news/news-detail/index.aspx?nid=2525 ---------------------------------------------------------- This one is a clinical study being conducted by Biogen to evaluate the effectiveness of Tysabri in people with SPMS. 800 people are being recruited worldwide to participate in a double blind study (meaning some participants will receive Tysabri and some will receive a placebo and you won't be told which group you are in during the study).

Good news for Lemtrada (alemtuzumab). The Peripheral and Central Nervous System Drugs Advisory Committee has recommended that the FDA approve alemtuzumab for the treatment of MS. As with any of our favorite concoctions there are serious risks, but the reduction in relapse rate seems to outweigh them. http://www.medpagetoday.com/Neurology/MultipleSclerosis/42899?

( I am not thrilled w Tysabri at this point. Was doing really well on it, from Jan 2010 until the summer when I lost my voice for 3 months. Tysabri was D/C then per Neuro. In case that was a side effect. I went back on Tysabri in Dec. My voice is still an issue. Neuro doesn't know still if side effect, and is leaving it up to me if I want to stay on. She would like me to stay on it, as there is no other alternative for me at the moment.

This release last week announced that Tysabri is now in Phase 3 studies for use in treating SPMS. That has to be good news for anyone following the ASCEND trial. You can read the details at - http://www.biogenidec.com/PRESS_RELEASE_DETAILS.aspx?ID=5981&ReqId=1653040#.TyFoJl4mTgY.

I have read on here by several members, that they have not considered Tysabri or Gilenya because their MS is not that aggressive. What does that mean? I was dx Jan 2010, MRI showed approximately 10 lesions, I had a real hard time accepting my dx....I really wasn't sure I had MS, so I refused a DMD. Then in Oct 2010, I had a new MRI that showed an additional 5 lesions. My Neuro said that we needed to get aggressive and he suggested Tysabri and/or Gilenya.

My insurance finally approved Tysabri!! Both neuros recommended it, but we've had issues getting approval. My new one was willing to fight for me. I have my first infusion Monday morning. My son graduates on Wednesday so I'm hoping all goes well!

while on Tysabri. Any news would be appreciated. Also, does anyone report increased fatigue while on Tecfidera? I am over all of the flushing and gastro upset. Just very fatigued - way more than ever before. I am taking Nuvigil and could not make it through the day without it! Be well and try to stay positive everyone.

As I type my 12th Tysabri in fusion is flowing into me! It's hard to believe that it's been a year since my diagnosis. I've learned more about MS and life with a life long disease. I've made a few minor changes to accommodate it, but fortunately my life is largely unchanged. Believe it or not, learning I have MS has explained a lot of seemingly unrelated issues. In that sense my DX came as something of a relief :-) Here's looking forward to 12 more Tysabri juice boxes!

You have to be off of Tysabri for 3 months before you can start it and I would have to stay down there for the week, so certainly have to save up for that! http://photos.al.com/4558/gallery/lemtrada_approval/index.html#/0 It's a great article and happy to share it. And I'm feeling back to normal, now that CPAP is covering the night shift for me.

We can't seem to catch a break! http://www.medpagetoday.com/Neurology/MultipleSclerosis/41255?

t do a lengthy washout period after stopping tysabri and I understand that patient had also been on tysabri for a longer period of time. How will they ever untangle is it was the Gilenya, the Tysabri or both that opened the door for PML to enter? Argh! Why aren't answers these days just clearly marked? I hate having all these unanswered questions about therapy that is so critical.

I had my 5th Tysabri improvement last Sunday. Since then I have noticed a major improvement in the way my legs feel and work. I mean a major improvement. My legs have not felt this good in a very long time. I have also been exercising regularly for the last month and have lost a bunch of weight. I'm trying to determine to what I can attribute the improvement. Is it the Ty infusion? The exercise? the weight loss? I'm kinda hoping it's the Tysabri.

Will Tysabri help me if I can't walk very good at all? It's everyday all day,I think I have progressed from RRMS to Secondary progressive.

Hello Courtney. Welcome to our group. Are you saying that your husband's MRIs show progress from 2 lesions to 20 in the brain, over several years? That's a lot, no getting around that. Though it's not good that he's skipped injections here and there, I really doubt that that is the cause of the disease progression. (Disclaimer here, I'm a patient, not a doctor. Just reporting based on my fairly long experience, interaction with other MSers, and extensive reading.

When I first started Tysabri in 2010, I applied for financial assistance through them (Biogen-Idex). I had to send in tax returns and my 3 most recent pay stubs, et voila! $10 copay. This year, my first infusion used up my max-out-of-pocket, so BxBs is picking up the rest. It still means I have to come up with my MOOP, but I've set up an interest free payment schedule with my hospital that does the infusions. Keeping lines of communication open between your insurance co.

This person was previously on Tysabri for 3 years, and was JC positive. There is no information yet as to how long of a wash out period they had before starting Gilenya, how long they were on Gilenya before getting PML, what kind of symptoms they were experiencing, or any info yet about the condition of the patient.

Tysabri news 2010

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