tysabri nausea

Hey Michelle, I've never had nausea from the Tysabri, at least not that I can remember. In the early days I'd sometimes get a headache or a little tired, but that was about it. The infusions themselves have always been pretty uneventful - my issues come from the effects of the Tysabri on my immune system over the long term. Could it be coincidence and you are just fighting off a bug at the same time, do you think?

Do you still receive steroids with your Tysabri infusions? Methylprednisolone is a much more likely candidate to cause this type of severe nausea than Tysabri is.

) Think I am sticking with Tysabri for now, seeing neuro as well tomorrow and I know I will get a good report. Having a great summer with my boys... Just a quick update. I haven't been on the boards for some time, not too much extra time right now. I imagine September I will be back more often. (It is strange, i rarely think of MS anymore. I would love for that to stay.0 The only thing that has been increasing is Migraines.

Now that i am off of Tysabri for over a month, am getting more pesky symptoms. My foot drag is worse, I do more drunk walks, drop more things, use wrong words more often and last night was up with extreme dizziness and nausea and woke up this morning with a new case of ON. Interestingly enough, they are talking about putting me back on Tysabri, I had no antibodies to it (tests are back) and still am having the GI problems. The current theory is that MS is causing the GI problems.

Know others have worse problems, but I'd just love a vacation without Tysabri side effects. I diligently took my Prilosec for the 5 days, and wouldn't you know, on the 6th day, I was back in ER that night, hooked up to IV and fluids. They had to give me a bolus bag before they could draw blood for the labs, guess I was dehydrated. I love it when they make regular rounds with WARMED blankets!

I have read on here by several members, that they have not considered Tysabri or Gilenya because their MS is not that aggressive. What does that mean? I was dx Jan 2010, MRI showed approximately 10 lesions, I had a real hard time accepting my dx....I really wasn't sure I had MS, so I refused a DMD. Then in Oct 2010, I had a new MRI that showed an additional 5 lesions. My Neuro said that we needed to get aggressive and he suggested Tysabri and/or Gilenya.

s neuro appt as I am sure he is either a) going to try to talk me into staying on Tysabri (noooooo as I hide under the covers) or asking me what my 2nd choice is (???) but am clueless. I KNOW I don't want anything with the word NAUSEA associated to it in any way. Anyone want to give me their experience. I'm not shot shy, have given too many of those, just being whimy and wanting as few side effects as possible.

I there a chance of weight changes with the Tysabri. I read that nausea sometimes happens, so I would think then that loss was imminent .... but, I also gained some weight wit the Aubagio, and have had a craving for "SWEET" things. I don't usually eat stuff like that, but the last 6 months I have been almost out of control .... Going to talk to my GP about this one. Thank you all again, and hoping we will get to know each other on here.

Enough...I restarted Tysabri 2 months ago. I have had almost a constant migraine since, now asthma flairing up, coughing, and I am getting hoarse. The reason I stopped it, was I totally lost my voice. my vocal chords were a mess. still having trouble w my voice. I am going for 3 days infusion, starting tomorrow w my headache neuro. It is a 6 hour day :( The good thing is I lost over 10 pounds from being nausea w this unending migraine. I called MS neuro, told here I am DONE w Tysabri.

I will miss my Tysabri as it was 100% paid for by insurance but will not miss the week of nausea and ER visits. By the way ER is never comfortable with MS patients I am learning!

CPAP working better, have dissolvable zofran at bedside, as I wake up either with a headache (from straps too tight) or nausea, so grab one of those; they work almost instantly. So am sleeping better and with Adderall and better rest, am feeling much better. Can I wish away the summer heat/humidity? Not sure I will get the invite for Lemtrada as medicare requires that you have been on two other drugs at least.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

I have had MD for 18 years. Been on Avonex, Betaseron, Tysabri, and now Tecfidera. Unfortunately, I'm also on lots of other medications, mostly due to terrible central pain. My neurologist made me stop the Tysabri after 24 infusions because of safety concerns. I felt my overall best while on Tysabri and have asked him if and when I might be able to go back on the monthly infusions. He does not have an answer for me at this point.

Are any of you on Tysabri? My doctor has suggested that I consider starting Tysabri treatment. His neurology practice runs a TOUCH infusion center. I've been on Copaxone for four years and have just had my first flareup. My recent MRI shows progression of MS with T2 hyperintense white matter lesions in the pons of the brainstem and the frontal lobe. Several of the older lesions have increased in size. Five years ago I was on Avonex. I had multiple flare-ups the whole year on this med.

I would like some information/details from anyone who has had (or seen) the rash you can get from Tysabril and/or PML?? I have been on Tysabri 10 years so far without any major issues. I was outside after my treatment for 10 minutes or so. After taking my shirt off, my husband gasped and asked what was wrong with my back.

I've been tested twice in the last year, and they were both negative. Since you can acquire JCV at any time, I opt to have my status tested once a year since I'm on Tysabri. There is also a Tysabri antibody titre available, now. I plan on doing that once a year, too, although development of Tysabri antibodies is relatively rare.

My new neuro suggested Tysabri based on increased lesions on Interferon (Rebif). Any persons out there on Tysabri that could share their experience?

He feels that Tysabri is the way to go. I know that there are others here on it or used to be. I would love some insight on what to expect, how long it takes, etc... Thanks!

I will start tecfidera in 3 months I hope I dont have the rebound effect I have heard about after stopping tysabri. Tysabri has really changed the way I feel was using a walker now nothing and I do Zumba too. I hope I stay like this but having doubts. anyone using tecfidera? How was your experience.?

So now he wants to take me off of the Copaxone, I have been on for a month and a half, and put me on Tysabri. I started the application process and now waiting for them to call me and get the ball rolling on that. Now he mentioned that this is the top of the line MS medication so that does give me some relief. P.S. I did test negetive for the JC Virus. Any thoughts, experiences etc on this Tysabri??!!

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