tysabri ms symptoms

Recently diagnosed with MS (November) and they are starting me with the drug Tysabri. Trying to find out what to expect and if it is helping others with their symptoms? All new to this, really have no idea what I need to know or ask? Just looking for someone with some insight on what I will experience.

Has anyone had an experience where Tysabri triggered old symptoms to return, or had side effects similar to this? I looked up the side effects and it sounds sort of similar, but it's just odd that what I am feeling is exactly the same as my previous relapse, just way worse. Is this a relapse? Side effects? Something I'm stuck with now? Any thoughts would be helpful! Looking forward to reading more!

Hi BL- Welcome to Our Merry Band :-) I was diagnosed 2 years ago, at age 51, with SPMS. My first, and up until a week ago my only, DMD was Tysabri. When I was diagnosed we were able to connect seemingly random events over the previous 20 years. What seemed completely unrelated was related. All were symptoms of MS. Because I'd had MS for so long my doc thought I was out of reach of the injectables. At the time the orals were just starting to come on the market.

Hi. I'm new to MS and Tysabri. I was just diagnosed in July of this year. I basically had no symptoms. Maybe a little fatigue and dizziness but it was always "explainable". I wouldn't even have gone to the doctor then if it weren't for numbness/tingling in my hands. I work on a computer all day so it was very annoying and I broke down and went. And after a few MRIs and other tests this is where I am.

However, I will try to provide you with some information regarding rituximab in MS. I will say though that as you know, the goal of therapies for MS is to prevent relapses and accumulation of lesions in the brain and spine. While being off medications for a few weeks or even months is probably not detrimental, in the long term, it is optimal for patients who can tolerate the side effects of MS medications to be on them.

After an hour long exam by his assistant and him he said I probably have a mild case or ms and recommended a lumbar puncture which was positive for ms. He and his assistant felt I had ppms and they said I could just be monitored by my local neurologist or continue going to the ms center in the city. I went to the center for a follow up visit before making my decision. The doctor asked if I had any new symptoms. I told him about new tingling in my fingers and a funny feeling in my face.

I guess he wants to put me on it because of how quick my MRI showed my MS is progressing considering my symptoms just started in June, got diagnosed in August and my first MRI in July showed one lesion on my lower spinal cord and a few on my brain. I guess the major changes from July to now is his concern. Yes he said I will have to be tested for the JC Virus every 6 months. Here is another concern of mine.

Hi I was diagnosed with MS in May of 2001. My neurologolist wants to me to try Tysabri. I have already tried the shots for ms and they don't work to well with me. But I already have most of the side of effects that go with tysabri. Please help me.

09 and I have since switched to Tysabri. With tysabri, all of my symptoms, (tingling, numbness, and pain) are all but gone. For me, Tysabri was more effective then Copaxone, but if you have MS and are thinking of switching, Tysabri is a very dangerous drug, inform yourself before making the decision.

They found out the reason people contracted PML was because they were taking Avonex/and the other MS medications with Tysabri. I think the Tysabri has given me a second chance at helping slow my disease progress, but with out it I would be on no MS medications to slow the disease. I did alot of research before I decided to start the medication and the one resource that helped me make my decision was reading the Tysabri diaries on line. www.msrc.co.uk/index.cfm?

MS is different for each of us, but if you are familiar with the 5 stages of death, MS runs along the same parallel, but we can go in and out of them and not in any particular order. Denial is my favorite when I am feeling good and have been good for awhile. My latest neuro thinks I've had MS since 1981 (no MRI then) and I went thru 3-4 before finding this one, 3 states away, and won't give him up for anything.

I am a 60-year-old female diagnosed with MS 8 years ago. My doctor advises I begin Tysabri. Anyone out there on that drug? I would appreciate your comments.

Hello, I was wondering if I took tysabri with having MS also RSD because with having the rsd it does weakend my immune system, I don't believe this would be a very wise decision do you?

Someone said that Jose who died from PML were taking more than one MS medication. Is that more than one DMD or treatment for symptoms?

I don't know what I will do if tysabri stops working or if I get the JC virus. I have been on Ty for 6 years. So far I'm doing good.

Okay, I've had MS for 13 years. I was just taken off Tysabri in July, I was on that for almost 5 years. I now have to go on Gylena in January, but before I start the new drug...I have to do 6 months of iv steroids. 3 days every month with NO taper! I have just finished my second round...and I'm ready to through in the towel. The side affects of the steroids are at this point almost not worth doing. They are trying to prevent a relapse since I am not on any MS therapy.

-) In this case MS is the rectangle and HM is the square. Most HM symptoms can be caused by MS, but not all MS symptoms can be caused by HM. That the HM treatments aren't working would make me consider other possibilities as well.

Has anyone been recently been diagnosed with MS and awaiting Tysabri treatment? And been suggested that they may have Bipolar disorder due to several mood swings?

He reiterated that point yesterday. There are pluses and minuses to all MS meds. For me a big Tysabri plus is that I only have to deal with it once every 4 weeks. The thought of daily or weekly self injections was not all that appealing to me. Right before I saw my neuro yesterday I saw my naturopathic doc. Her office is two doors down from his, in the same MS practice. They work together and each is aware of what is being discussed with the other.

m 18 and not sure which medicine to choose. I have narrowed it down to Copaxone and Tysabri, but am not sure which one to choose. I have a phobia of needles that I have been trying to overcome so giving myself a shot wouldn't be optimal but I could manage. I was also worried about developing PML with Tysabri but my doctor made it seem as if he would check my bloodwork regularlly and it wouldnt be an issue. I just wanted to know anyones personal experience or opinions on the two.

The injections only work 33% if started at the beginning stages of Relapsing Remitting MS. There is Tysabri an infusion and their are drug trials for oral medications. Sometimes they can even use chemo but it is rough stuff. Unfortunately to date these are the only proven treatments. Some people go to other countries to get stem cells. The problem is stem cells can't repair damage they can only in some cases slow future damage but usually only for awhile.

ed with MS 8 months ago, and have had 2 relapses with a 6 month period (Sept 07 and Mar 08). My symptoms are sensory, fatigue, and double vision. My neuro is considering switching me from Rebif to either Tysabri or Novantrone. I started Rebif in Feb 2008, however was not on it long enough to really know if it was doing any good as far as disease progression/relapse reduction, as within 8 weeks my liver enzymes had elevated and my treatment was suspended.

At 20 months I had converted to JCV + and the Tysabri was no longer working. While on Tysabri I saw no change in my symptoms. As was said, that is no what any DMD is for. I had no ill effects of any kind.

Tysabri ms symptoms

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